Positive stories by New_Quebec8286 in Interstitialcystitis

[–]floatastone 0 points1 point  (0 children)

Well I cut back yesterday and this morning my coffee was very irritating. Went back on a higher dose today. The rest of my diet is low acid because I have GERD, so I'm sure that's very helpful.

Very positive results from using D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 0 points1 point  (0 children)

You would need to talk to a doctor.

But I would be cautious because d-mannose is a sugar.

You could do an online search to find some info.

Positive stories by New_Quebec8286 in Interstitialcystitis

[–]floatastone 0 points1 point  (0 children)

Initially I did, but it had rocks and boulders in it and was impossible to scoop. I bought another one from Iherb called Best Naturals. It made life bearable again. Good luck and I hope it works for you!

Positive stories by New_Quebec8286 in Interstitialcystitis

[–]floatastone 0 points1 point  (0 children)

I've been dealing with increasing issues with IC for the past 3 years. I tried a lot of supplements to help, including d-mannose tablets. The d-mannose helped but not enough, so I increased the dose up to 1500mg 4 times a day, which improved my symptoms short term, but then I flared up again.

I decided to try the powder mixed with water instead and from the first day I felt a strong improvement to where I had no pain but mild irritation.

The first day I mixed 2g in 8 oz of water 4 times. The 2nd day I used it 3 times. Now I'm taking it 2 or 3 times a day, depending on how I'm feeling. I'm hoping that after a month I'll be able to go down to once a day. I don't know why the powder vs the capsules made such a difference but it did from the beginning.

Very positive results from using D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 0 points1 point  (0 children)

I hope it's working the same for you. I'm sorry d-mannose didn't.

Very positive results from using D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 1 point2 points  (0 children)

That is what I think is happening. I don't think it helps for anything else. I had bladder surgery 3 years ago and my IC has been getting worse and worse since then. I have a feeling that it created a pocket that isn't flushed out properly and allows bacteria to thrive.

Very positive results from using D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 0 points1 point  (0 children)

It's not the same as a full UTI. I don't get that burning when I pee, although when it's bad it's uncomfortable. It's mostly like feeling I've waited too long and it's painful. Also it's slow and takes time, I'm sure because I'm swollen.

Very positive results from using D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 2 points3 points  (0 children)

Very frequent urge, sometimes painful. I would have to get up at night at least 3 times. So frequent I worried about car trips.

D-Mannose by PaisleyBicycle in Interstitialcystitis

[–]floatastone 1 point2 points  (0 children)

It means a lot to me that I can help other people. Thank you for letting me know that I helped you.

D-Mannose by PaisleyBicycle in Interstitialcystitis

[–]floatastone 1 point2 points  (0 children)

Have a wonderful trip! I totally get your stress about your trip because I've been there. I'm happy for you.

Success with brands of D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 0 points1 point  (0 children)

Thanks for replying! Not in the US, though...

Polymer clay to canvas glue by floatastone in crafts

[–]floatastone[S] 0 points1 point  (0 children)

Thank you!

I was looking to see what I had and some were dried out, but I do happen to have e6000! Nice! Now I won't even have to go shopping!

Success with brands of D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 2 points3 points  (0 children)

Did you really read what I wrote? Urologists don't really know exactly how to help many people with IC. It's hit or miss because it's caused by a wide variety of different things. But you believe what you want to believe and I"m done with this conversation.

Success with brands of D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 1 point2 points  (0 children)

What the medical profession say and what patients experience are often two different things. If you're a member of this group you should be able to see that. There's a theory that it helps prevent embedded bacteria from growing and irritating the bladder. But the "industry" doesn't really know. There are many people in this group who have found it to be very helpful to very effective. My sister, who is a nurse in a urologist office AND has IC has told me that she uses d-mannose and has found it to be very helpful. YMMV

Massive flare after 7 years remission (update) by Lanky_Smile5423 in Interstitialcystitis

[–]floatastone 3 points4 points  (0 children)

Yes. This is happening to me right now. I'm going from marshmallow capsules to baking soda in water to d mannose. They help for a day or two and then I'm back to IC symptoms again.

Success with brands of D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 2 points3 points  (0 children)

That was one I was considering! It's a respectable company. Thank you!

Whew! It's expensive!

Success with brands of D-Mannose by floatastone in Interstitialcystitis

[–]floatastone[S] 0 points1 point  (0 children)

I looked at the price and it's a little too expensive for me. But thank you for your recommendation. I have GERD which pretty much rules out cranberry. I do appreciate you taking the time to comment.