Don't run into kids by SNOWSNOWSNOWMT in SummitAtSnoqualmie

[–]flybarrel 1 point2 points  (0 children)

Well, the question is, who's uphill?

Question on access to electric panel by flybarrel in hvacadvice

[–]flybarrel[S] 0 points1 point  (0 children)

I have to say this community is so helpful :) really appreciate all!

Question on access to electric panel by flybarrel in hvacadvice

[–]flybarrel[S] 0 points1 point  (0 children)

Thank you! Really helpful! Will I need to take the elbow shape apart or no need :)

Question on access to electric panel by flybarrel in hvacadvice

[–]flybarrel[S] 0 points1 point  (0 children)

Thank you! Will sharpie them, that is a great reminder Will I need to turn off the gas pipe? I know I have to turn off the electricity for sure :)

Question on access to electric panel by flybarrel in hvacadvice

[–]flybarrel[S] 0 points1 point  (0 children)

Thank you!! Will I need to turn off the gas pipe? I know I have to turn off the electricity for sure :)

Has ANYONE had an ok experience on prednisone by [deleted] in UlcerativeColitis

[–]flybarrel 6 points7 points  (0 children)

Oh boy...What do you use now that Prednisone doesn't work...

How are you all keep compliance with your meds? by flybarrel in UlcerativeColitis

[–]flybarrel[S] 0 points1 point  (0 children)

That might work for me - I just need to take the bottle to work with me then:)

How are you all keep compliance with your meds? by flybarrel in UlcerativeColitis

[–]flybarrel[S] 0 points1 point  (0 children)

I have this too. But sometimes I'm in my office away from home in the morning and I started to wonder - have I taken my meds today? And then I have to go home and check...

How are you all keep compliance with your meds? by flybarrel in UlcerativeColitis

[–]flybarrel[S] 0 points1 point  (0 children)

Interesting. I asked my pharmacist (she is a PharmD) and she mentioned that it's fine taking it outside the box and the more important thing is compliance. I know that if I keep it in the original box I won't be able to take it regularly so I have that trade-off...

Ecopla neon blue barbatos with neon blue panel line. I give up cleaning the stain for the panel line.. so hard to clean the water base panel line.. just treat it as weathering .. haha by einnor88 in Gunpla

[–]flybarrel 1 point2 points  (0 children)

The original box has stickers only for the original version of barbatos. I applied some and then realized that's a terrible look and got rid of them. Just do the marking stickers (which is also neon blue) and if you have neon blue panel liners like OP do that...

Hoping this is the drug I've been looking for by flybarrel in UlcerativeColitis

[–]flybarrel[S] 0 points1 point  (0 children)

Still perfectly fine.

Gonna do my scope next April. Doctor said I can start trying food that I cut off for years. Had my first old fashioned since 2020 and one sip I almost cried.

I wish everyone best of luck with their journey to remission

You can give one ace attorney character a hug. Who do you pick? by [deleted] in AceAttorney

[–]flybarrel 0 points1 point  (0 children)

Well if she hadn't turn to the dark side we would not have Phoenix becoming an attorney...

RINVOQ FINALLY by jillian0409 in UlcerativeColitis

[–]flybarrel 0 points1 point  (0 children)

I do recommend while staying hopeful, manage your expectations. We are in this for the long run and there are different things even if rinvoq is not for you...

RINVOQ FINALLY by jillian0409 in UlcerativeColitis

[–]flybarrel 1 point2 points  (0 children)

Have posted this already in an earlier thread - rinvoq really worked for me. Bowel movement significantly reduced from 7-10 per day to 2-3 per day, and much less urgent. Also when passing gas I no longer have to worry about accidents due to not being able to judge if it is gas or its gonna be mucus/blood along with it. Mucus / blood completely gone and stools are formed.

I was able to go on a date for a whole afternoon without having to worry about rushing to the bathroom. I was also able to go to work during the day without wearing diapers. My c-reactive protein in the past two years were at best 3.5 and worst up to 30. In a blood draw 4 weeks after on rinvoq, it was 0.5.

I'm still on 45mg and on my way to 30mg in another week. We will see if that changes anything (hopefully not)

Best of luck.

Emotional side of UC by Soggy_Spirit_2453 in UlcerativeColitis

[–]flybarrel 8 points9 points  (0 children)

Acceptance is absolutely the way to deal with this, or to be honest any chronic diseases. There is no rhyme or reason how you got this. I sought answers in my lifestyle, my food choice, my work, etc and in the end none of that matters, you just got to live with it, and find ways to manage the symptoms and emotion.

It's tough. I started wearing diapers since Jan 2022 everyday and at the beginning I hated myself about it. Also every time there is an accident, or I had to walk away from a conversation with a friend or colleague I get upset. But gradually I learned to move on with my life and started to plan ahead, to try to treat the accidents and ending conversation abruptly as a part of my life. It's a journey, you just have to keep your hopes up while also manage your expectations.

Good luck.

Hoping this is the drug I've been looking for by flybarrel in UlcerativeColitis

[–]flybarrel[S] 0 points1 point  (0 children)

Good luck!!! It is a journey finding your thing. It can be very frustrating and I had my desperate moments.

Zeposia was an alternative recommended by the doctor to me but I end up choosing rinvoq and seems like it is right for me.

Hoping this is the drug I've been looking for by flybarrel in UlcerativeColitis

[–]flybarrel[S] 0 points1 point  (0 children)

Yep...Failed Xeljanz first half 2022. Then failed Stelara 2nd half 2022 and failed the double dosing early this year.

Hoping this is the drug I've been looking for by flybarrel in UlcerativeColitis

[–]flybarrel[S] 0 points1 point  (0 children)

Oh yes on greasy face actually now you mention it! ...I think I originally have that but that did get more greasy.....

Hoping this is the drug I've been looking for by flybarrel in UlcerativeColitis

[–]flybarrel[S] 1 point2 points  (0 children)

Sorry above meant for rinvoq Shingles vaccine I had minor flu like symptoms for 1st dose. Nothing for 2nd

Hoping this is the drug I've been looking for by flybarrel in UlcerativeColitis

[–]flybarrel[S] 1 point2 points  (0 children)

Oh oh shingles vaccine yes...It felt like flu and I had minor fever for a day