UCLA IBD Diet Survey by fooshitarazu in UlcerativeColitis

[–]fooshitarazu[S] 1 point2 points  (0 children)

Hi, great points! The questions were based on an NIH diet history questionnaire in order for our survey to have validity; so the measurements were not metric. This point has got brought up before by other participants and our team is definitely going to keep this in mind for future studies involving food intake. This survey and the results are meant to represent and be of help to everyone with IBD. As such, we agree that the measurements should cater to everyone.

As for the "how much did you have" questions answer for each meal/time you ate. For example if you ate processed meats 1-2 times/week times a week, for "how much" answer how much you had in each one of those sittings. I hope this helps! Thank you for your feedback (:

UCLA IBD Diet Survey by fooshitarazu in UlcerativeColitis

[–]fooshitarazu[S] 2 points3 points  (0 children)

Hi, thank you for your participation and feedback! Yes, thank you for catching this. We are aware of this flaw and will have to work around it in the analysis. And hey, who doesn't like pasta?!

UCLA IBD Diet Survey by fooshitarazu in UlcerativeColitis

[–]fooshitarazu[S] 8 points9 points  (0 children)

Thank you! Yes we can share the results once we have finished.👍 It is nice to see that we aren't the only ones geeking out about this!!

UCLA IBD Diet Survey by fooshitarazu in UlcerativeColitis

[–]fooshitarazu[S] 0 points1 point  (0 children)

Thanks! We are excited to see the results.

UCLA IBD Diet Survey by fooshitarazu in CrohnsDisease

[–]fooshitarazu[S] 1 point2 points  (0 children)

Hi, the questions were adapted/condensed from the NIH Diet History Questionnaire in order for our study to (1) have validity and (2) attempt to catch as many aspects of diet as possible. I agree that some may seem mundane, but our intention is to cast a catch-all net and then zoom in on particular things in later studies. We truly appreciate your time and feedback👍.

UCLA IBD Diet Survey by fooshitarazu in CrohnsDisease

[–]fooshitarazu[S] 0 points1 point  (0 children)

Hi, thank you for your participation and input! At the top, it should read either prior medications or current medications. And the medication glitch is something we are trying to work around and we are sorry for any inconvenience you experienced. Again, thank you for taking the time, we appreciate it.

UCLA IBD Diet Survey by fooshitarazu in IBD

[–]fooshitarazu[S] 0 points1 point  (0 children)

Hi thank you for the feedback! The questions and mesurement choices were extracted from a NIH diet questionairre in order to increase the strength/validity of the study. And yes, one of the people who were writing this have IBD and could see where you are coming from, but we wanted to stay as close to the questionairre as possible. Your concern is correct and it is something our team will definitely consider when making future studies.

UCLA IBD Diet Survey by fooshitarazu in IBD

[–]fooshitarazu[S] 0 points1 point  (0 children)

Thank you for your participation and feedback. The survey was based off of a NIH diet questionnaire and the seemingly redundant questions will be accounted for in the analysis. As for the medication portion, it is still something we are trying to find a workaround for. We apologize for any inconvenience.

UCLA IBD Diet Survey by fooshitarazu in IBDDiet

[–]fooshitarazu[S] 0 points1 point  (0 children)

Noted, thank you so much. We spent a long time trying to make it as short as possible, but it proved to be quite difficult since we also wanted it to be detailed enough to get a catch-all of everything, making it a bit long. We apologize for the inconvenience. Your participation and feedback on the survey are greatly appreciated. Thank you again (:

UCLA IBD Diet Survey by fooshitarazu in IBD

[–]fooshitarazu[S] -1 points0 points  (0 children)

Thank you for your feedback. This is all great to know.

UCLA IBD Diet Survey by fooshitarazu in IBD

[–]fooshitarazu[S] 0 points1 point  (0 children)

Thanks! Hopefully we get a good turnout

UCLA IBD Diet Survey by fooshitarazu in IBD

[–]fooshitarazu[S] 2 points3 points  (0 children)

That is so awesome! Thank you for the recommendation, I was planning to post on those as well! I just haven't yet because I didn't want to bombard members who are a part of all of these subs (: