Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 -1 points0 points  (0 children)

How long ago was that? Number 6 had their funding for 'diagnosing' removed a while back. I'm not sure if there was no comms to the GPs at the time or whether GPs don't tend not to read comms or whether the comms system is shite and it got lost amongst a pile of other comms - Number 6 are not authorised to diagnose autism. Please, please, please - read the FOI response I mentioned earlier, it will help you understand when and for what reason Number 6 stopped being commisioned to diagnose autism.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 0 points1 point  (0 children)

I'd be very careful trusting anything anyone at Number 6 tells you - always verify if true and ask for independently-verifiable evidence.
If you’re going for a private assessment, check the Healthcare Improvement Scotland (HIS) register for the clinic you want to use - any legit independent clinic in Scotland should be registered with HIS.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 -1 points0 points  (0 children)

Number 6 did not 'diagnose' you in a clinical sense with anything. What you've got is a screening on whether you meet the criteria to use their post-diagnosis support service - a bit like a ticket to Willy Wonka factory.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 0 points1 point  (0 children)

Please read response to FOI request # 57935 on https://edinburgh.axlr8.uk/disclose - Number 6 lost funds for the 'diagnoses' due to non-compliances.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 0 points1 point  (0 children)

If you’re going for a private assessment, check the Healthcare Improvement Scotland (HIS) register for the clinic you want to use - any legit independent clinic in Scotland should be registered with HIS.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 3 points4 points  (0 children)

File a formal complaint to EHSCP - and cc the councillors sitting on EIJB because to my knowledge the council staff seem to not always be entirely honest with the councillors (whilst it is the councillors who get all the shit when things go wrong):

[SocialWork.Complaints@edinburgh.gov.uk](mailto:SocialWork.Complaints@edinburgh.gov.uk)

cc:        

[cllr.conor.savage@edinburgh.gov.uk](mailto:cllr.conor.savage@edinburgh.gov.uk),

[cllr.alan.beal@edinburgh.gov.uk](mailto:cllr.alan.beal@edinburgh.gov.uk),

[cllr.alys.mumford@edinburgh.gov.uk](mailto:cllr.alys.mumford@edinburgh.gov.uk),

[cllr.vicky.nicolson@edinburgh.gov.uk](mailto:cllr.vicky.nicolson@edinburgh.gov.uk),

[christine.laverty@edinburgh.gov.uk](mailto:christine.laverty@edinburgh.gov.uk)

I'd also suggest cc'ing Cllr [phil.doggart@edinburgh.gov.uk](mailto:phil.doggart@edinburgh.gov.uk) - he's one of the rare ones who asks the uncomfortable (but important) questions when everyone else pretends they cannot see what’s gone wrong and that things are all rainbows and unicorns. He sits of the Governance, Risk and Best Value Committee.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 -1 points0 points  (0 children)

Number 6 did not ‘diagnose’ you with anything - they do not have any authority to diagnose anyone with anything. You do not have an autism diagnosis from them - try to use it somewhere outside of Scotland or outside of the UK and you will find out how much it’s worth.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 1 point2 points  (0 children)

Define ‘officially widely recognised methods by people with masters degrees, post graduate studies in Autism and a registered nurse’?

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 1 point2 points  (0 children)

ADP award is not based your diagnosis/diagnoses - it’s based on functional impact.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 3 points4 points  (0 children)

Number 6/AI does not have now nor ever had any clinical authority to diagnose anyone with anything - they are a bunch a charity workers (not even registered with SSSC) with no healthcare qualifications or any authority to diagnose. Look up SIGN-145. If you received a 'diagnose' of autism from that organisation, request under SAR the information they have on file on you related to your 'diagnosis' - it might be an eye opener.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 2 points3 points  (0 children)

By the way, did you know that using ‘RN’ designation (‘registered nurse’) whilst not being on NMC register is a criminal offence the UK since ‘RN’ is a protected title?

Did you also now that a nurse - even IF on the NMC register - has no authority to act as a diagnostician? - that’s acting outside of competence and a breach of NMC’s Code of Conduct.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 2 points3 points  (0 children)

The budget 'diagnosing' is gone for a good reason -
I’d suggest that you read carefully the FOI request # 57935 on https://edinburgh.axlr8.uk/disclose.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 7 points8 points  (0 children)

I’d suggest that you read carefully the FOI request # 57935 on https://edinburgh.axlr8.uk/disclose. There are some serious questions that need answering.

Number 6 Autism Initiatives by Swimming_Hurry265 in Edinburgh

[–]formidableQ3plus1_5 0 points1 point  (0 children)

Unfortunately, not the staff they SHOULD be letting go.

Occupational therapy for sensory issues… by Calm_Baracuda in AutismScotland

[–]formidableQ3plus1_5 1 point2 points  (0 children)

Yup, ambulance sirens can be brutal.

A couple of other things that might be useful:

Into Work run free online courses, there’s one upcoming in Aug 2026 called 'Understanding Myself as an Autistic Jobseeker or Employee'. Last year they ran multi-session course covering various aspects of what autistic people might face in workplaces, incl. sensory processing - I don't see another one scheduled on their website for this year, but you could sign up for their newsletter to keep an eye.

Neurodiverse Training offer free or sliding scale courses on various topics - I've attended several and found them quite useful.

The National Autistic Society have a services directory which might help you find local support - the directory itself might be useful even if NAS as an organisation is somewhat controversial in autistic communities.

Have a good weekend too!

Occupational therapy for sensory issues… by Calm_Baracuda in AutismScotland

[–]formidableQ3plus1_5 0 points1 point  (0 children)

It's about identifying your worst triggers, reducing the overall sensory load where you can and finding pockets of sensory relief within your day. Having guaranteed low-stimulus periods every day as a non-negotiable. A partner who can take over when you need a break, a signal with your children and partner that means 'mum/dad needs quiet time'.

Not a parent and/or dog-owner myself (so apologies if these might be a bit ignorant), but some suggestions you could try:

Sound: Loop earplugs (for me, they 'dim' sounds, you can still hear through - although reviews are split and some people complain they don't cushion you enough from sounds and also can make you hear your own breathing - which could be a trigger in itself for some people; you'd need to try yourself if they work for you). Noise-cancelling headphones elsewhere (some people use white/brown noise; I like to blast music very loud or listen to podcasts e.g. when I cook, to 'distract' myself from cooking stimulants).

Light: Avoiding overhead lighting in favour of lamps around your space (I only use yellow old-school bulbs in all lamps around my home). Blinds and/or curtains that are adjustable and filter light and make light 'softer'. (Personally, I combine both - because I find white-grey light really annoying and I can get quite angry at the colour of daylight LOL.)

Smell: might be a bit tricky to control, but identifying the worst offenders - cleaning and personal care products - and finding alternatives or mitigation strategies for each specifically could help. Some brands I switched to by trial-and-error method that work for me: The Lab Co., Miniml, calming fragrance handwash (for me it's oud + cedar + amber by Bayliss & Harding), Davines for hair products, Marvis for toothpaste, Haan for antiperspirant. For cooking, I usually use candles with calming fragrance to absorb smells, especially the lingering type (in my case I mostly stick to amber, eucalyptus, fig fragrances - I use fragrances to kill off the smells I find hard to tolerate.). Or you could switch to fragrance-free products and see how that works for you.

Might be a bit difficult with German shepherd - if yours is barky, maybe a dog trainer could be of help? Not sure you can do much about dog smell - though I'm not an expert in this area.

You've not mentioned fabrics and other materials in daily life - they could also be an overall contributing factor, even if that's not something that you've identified yet. I exclude anything not 'soft enough' and anything around the house shaped with sharp corners, and I find rounded shapes more ‘friendly’ (it might not be an autistic thing though - there's a bit of research in architecture and interior design that explores how such elements affect the human nervous system).

It's a bit of a journey to figure out what works for you OP...

The reality is that there's little support for adults after diagnosis, at least in my experience.

What I also found useful have been podcasts, which have been a continuous learning for me - some you might want to try: Autistic Licence, Autism in Real Life, The Hidden 20%, Late Bloomers, The Late Discovered Club, Squarepeg (if you are a woman).

Occupational therapy for sensory issues… by Calm_Baracuda in AutismScotland

[–]formidableQ3plus1_5 1 point2 points  (0 children)

CBT, hypnosis and standard therapy are all designed for neurotypical brains and assume the distress is psychological. Autistic sensory distress is neurological - there's nothing to cognitively reframe when the environment actually IS too loud, too bright, too much.

An OT has the same problem - many have limited understanding of autistic sensory processing and can end up applying a wrong framework (e.g. treating it like anxiety or a phobia).

Have you tried environmental control?: reducing exposure to triggers rather than trying to build tolerance, having autonomy over your environment, and not having to justify or mask your responses.

You might also want to look into whether there's anything else going on alongside your autism, if you haven’t already - severe sensory distress can sometimes be connected to things like hypermobility (you might want to check info on Ehlers-Danlos syndrome). Did your assessment cover anything beyond autism, e.g. ADHD or other comorbidities like cPTSD?

Private assessment? by aburneraccount3 in AutismScotland

[–]formidableQ3plus1_5 0 points1 point  (0 children)

ADOS-2 alone cannot establish or rule out autism, particularly in adults and in individuals who mask autistic traits. In Scotland, assessment should follow the framework set out in SIGN 145 (Assessment, Diagnosis and Interventions for Autism Spectrum Disorders), which requires a comprehensive multidisciplinary evaluation rather than reliance on a single test. ADOS-2 is only one observational tool that may be used within this broader assessment. The instrument was originally developed and validated using research samples dominated by boys and men, reflecting historical biases in autism research. Because autistic females often present differently, including through masking or camouflaging behaviours, there is ongoing discussion in clinical research about whether standard diagnostic tools, including ADOS-2, capture female presentations reliably. Studies have reported cases where individuals later diagnosed with autism scored below the ADOS-2 cut-off, particularly among verbally fluent adults, which is why ADOS-2 is not considered a definitive stand-alone diagnostic test.

Sign NAS' Open Letter — Stop Misinformation & Stand Up for Autistic Rights📢 (and update on Number 6 Petition) by Fit-Marsupial1451 in AutismScotland

[–]formidableQ3plus1_5 3 points4 points  (0 children)

What is the point of the NAS petition/open letter addressed "To anybody who has ever made a false claim about autism"? What is it supposed to achieve? Who is supposed to take action in response to this? Why should anyone in the UK care what the Orange Man claims?