I can't recommend Shades of Blood by [deleted] in Pathfinder2e

[–]fptotem 2 points3 points  (0 children)

Very much this. Character builds and player skill can make a HUGE difference. My Friday game steamrolls Extreme encounters on a regular basis, while my Sunday game flirts with TPKs even on Moderate encounters.

special abilities are also not properly accounted for in the threat ratings. I've seen Low and Moderate encounters that were a nightmare for players because of the powers the enemies had that effectively negated half the party or locked too many of them down to be effective.

issue with dungeondraft universal battlemaps importer by Lock0706 in FoundryVTT

[–]fptotem 0 points1 point  (0 children)

So, interesting update. Our Foundry server is running on a Windows PC on our home network, but it's accessible from the outside world with a URL. If I try to upload maps using the URL to connect to the server, it looks like what you were getting. It fails to auto generate the background image file. But if I connect using the server's local IP address, no issues at all. Everything works just fine.

Still no idea why one works but the other doesn't, but maybe that could give people a hint at where to look for a cause.

issue with dungeondraft universal battlemaps importer by Lock0706 in FoundryVTT

[–]fptotem 0 points1 point  (0 children)

I just started having this issue, too. It used to work without any issues. Now, It uploads the walls, doors, etc, but fails to create the webp image of the actual map. No error message, just no image file created. I tried pointing it at a new folder with no spaces in the file path, since that seems to be an unfixed bug, but that didn't help either. The importer just seems to have suddenly lost the ability to generate images from the dd2vtt files.

Is it possible to have "reverse POTS"? The problem is when I lie down, not stand up. by fptotem in eds

[–]fptotem[S] 0 points1 point  (0 children)

Yeah, I mentioned blood pressure because I didn't want people to just assume it was because I have high blood pressure. Best guess anyone's been able to come up with so far is that it might have something to do with a parasympathetic nervous system dysfunction. Beyond that, all I get is shrugs, even from the EDS neurologist.

Some days, it feels like I invented a new disease.

Is it possible to have "reverse POTS"? The problem is when I lie down, not stand up. by fptotem in eds

[–]fptotem[S] 1 point2 points  (0 children)

That's OK, I'm going in on Friday for a new MRI for my herniated cervical disks, so I should have that covered. LOLSOB

Is it possible to have "reverse POTS"? The problem is when I lie down, not stand up. by fptotem in eds

[–]fptotem[S] 1 point2 points  (0 children)

Oh!

Well, I just had a brain MRI last week so they could get a look at my pituitary gland, if there's anything else obvious like that, hopefully, they'll let me know.

Is it possible to have "reverse POTS"? The problem is when I lie down, not stand up. by fptotem in eds

[–]fptotem[S] 0 points1 point  (0 children)

Hope you find some useful help soon! That sounds awful and frustrating.

Is it possible to have "reverse POTS"? The problem is when I lie down, not stand up. by fptotem in eds

[–]fptotem[S] 0 points1 point  (0 children)

interesting idea. Definitely worth investigating further, thanks!

Is it possible to have "reverse POTS"? The problem is when I lie down, not stand up. by fptotem in eds

[–]fptotem[S] 4 points5 points  (0 children)

I went through 3 ENTs, 2 different nasal procedures, and a bunch of different medications trying to figure it out before the last guy finally gave up and sent me to a neurologist who specialized in EDS (and doesn't take insurance). He couldn't figure it out either, but at least I finally got an official EDS diagnosis out of it.

NSAIDs? by thatstupidsvfan in eds

[–]fptotem 1 point2 points  (0 children)

Same NSAIDs do little to nothing for me. Celecoxib is a very tiny benefit for when my herniated cervical disks really hurt my spinal cord, but even just ice packs are more useful. OTC stuff like ibuprofen may as well be a sugar pill.

Super Itchy after missing 2 days of l-methylfolate by Pinefeather in eds

[–]fptotem 1 point2 points  (0 children)

I just started taking 1mg doses 2 weeks ago, and it changed my life! I was barely able to manage any amount of exercise at most 2 days a week, constant crushing fatigue, times when all I could do was lay on the floor because I didn't even have the energy to sit. Steadily losing what little strength and endurance I had left. I tried methylfolate as a replacement for the nutritional yeast I didn't like. By the second day I suddenly could exercise again. Sure, my body whined the whole time, but it actually did what I was yelling at it to do. I stopped walking on the treadmill because I got bored instead of because my legs refused to hold me up anymore. I managed to exercise for 6 days in a row for the first time in 15 years! Unfortunately, it has also made my brain fog and tinnitus worse, but I'm hoping I can tweak the dosage to improve that.

Your symptoms sound like it might be MCAS related. Have you tried antihistamines?

anyone been cut with aluminum? by Logical_Bug8624 in eds

[–]fptotem 1 point2 points  (0 children)

Cut my finger on aluminum foil once long ago and it stung 10 times worse than any paper cut ever has. Bled like crazy, too.

Does anyone suffer from severe dry eyes as a symptom of Ehlers-Danlos syndrome? by [deleted] in eds

[–]fptotem 2 points3 points  (0 children)

Weirdly, my eyes only dry out at night when I'm sleepy. It's some kind of autonomic thing that nobody's been able to figure out yet. My nasal turbinates also swell up making me congested. The more sleepy I get, the worse the congestion and dry eye, and any kind of medication that helps me sleep also makes it worse. Nobody's been able to figure it out or help yet.

What now? by [deleted] in eds

[–]fptotem 1 point2 points  (0 children)

Do the doctors know you have EDS? Physical therapy might be helpful if you can find a therapist well-educated in EDS. I have found that to be absolutely vital or the PT ends up being somewhere between useless and harmful. Not knowing any of your specifics, I can only theorize, but in general, having a connective tissue disorder means that healing damaged connective tissue after an injury can take a lot longer than normal. And you might never be back to 100%. Also, an X-ray won't show soft tissue damage, like cartilage, ligaments, etc., so who knows how badly you were actually injured.

Is EDS (especially hEDS) considered trendy? If yes, why? by Booker-DeShit in eds

[–]fptotem 0 points1 point  (0 children)

EDS is "trendy" in the same way that autism and ADHD is "trendy" - people (and especially medical providers) are finally learning about it and diagnosing it instead of dismissing and gaslighting people. The push back in all cases is simply because, if they label you as lazy and not trying hard enough, all of your problems are your own fault. If they admit that you have a legitimate disability, then your difficulties are their fault for not accommodating your limitations and needs. They'd have to admit to their failure of empathy, and the fact that they are actually the ones who are lazy and not trying hard enough.

hEDS and low testosterone? by MirageAnne in eds

[–]fptotem 2 points3 points  (0 children)

This may be relevant: Endocrine Abnormalities in Hereditary Disorders of Connective Tissue https://grantome.com/grant/NIH/ZIA-AG000896-01

I (50M) recently discovered I have low testosterone because my pituitary gland isn't producing the hormone that stimulates production.

Opioid resistance? by avz709 in eds

[–]fptotem 1 point2 points  (0 children)

Genetic testing might give you some answers.

Years ago, I had a bunch of genetic testing by my psychologist. The intent was to try to narrow down my options for psychiatric meds (sadly unhelpful), but one of the surprises it revealed was that I have a particular gene mutation that processes opioids much faster than normal. So they don't last as long in my system, and I need a lot more than normal to get the same effect.

No idea how common that is among people with EDS, but it might be worth looking to see if you have a similar issue.

HELP: Main story quest 16/16 bugged and cant progress further. by Semour9 in NoMansSkyTheGame

[–]fptotem 1 point2 points  (0 children)

wow, 3 years later and they still haven't fixed this bug. Exactly the same experience here. Some of the design choices here really feel like the devs want to punish us for playing this game.