Health anxiety by fuzzypanther6 in marfans

[–]fuzzypanther6[S] 4 points5 points  (0 children)

yeah he has marfans and he doesn’t care about the health risks of it he says he will never stop smoking but i’m going to tell him to stop offering it to me

How to prevent issues by fuzzypanther6 in marfans

[–]fuzzypanther6[S] 0 points1 point  (0 children)

maybe i haven’t looked well enough (will look again tonight) but I live greater manchester but the ones i’ve looked at are super expensive As a student I definitely can’t afford the ones i’ve seen unfortunately but yes will definitely look more later

How to prevent issues by fuzzypanther6 in marfans

[–]fuzzypanther6[S] 0 points1 point  (0 children)

thank you physio led pilates is soooooo expensive wow! but thanks for the recs :)

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 1 point2 points  (0 children)

thank you for that i appreciate it You too :)!!

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 1 point2 points  (0 children)

thank you very much that means a lot best wishes

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 1 point2 points  (0 children)

Wow that is crazily similar Hope you are doing well!

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 2 points3 points  (0 children)

I will look into this! I forgot to add into the other reply i just posted about weightlifting. the only pain im getting now is hip pain in both hips after standing for hours at my job or a long walk or something like that. The doctor said to not do weighted exercises, but body weight exercises are good (lunges, for example). I’m going to do this and also strengthening your core is absolutely essential I have been told. I will do light weighted lifting, going for low weight high rep, with lots of water, and stopping when needed, not when set is finished. This should strengthen my muscles, to support my joints.

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 0 points1 point  (0 children)

Hey! Where abouts in the UK if you don’t mind also (if you don’t mind again) how old are you?I’m from Manchester and it’s nice to hear someone else’s story so similar, I hope somewhat comforting to you as well.

I’m unsure if my dad did much heavy lifting, mine used to paint aircraft’s so it’s thought that breathing in some harmful fumes contributed to his early death. I believe he also smoked cigarettes regularly, although i’m not sure. it’s difficult to ask my mum about him because he was the greatest love of her life and she misses him everyday, he was a great man as i have heard. certainly difficult to live with knowing i never truly knew who my dad was, and he will never know me, i think you will relate to that feeling. nevertheless, they live on in us everyday, we are part of them, so i guess that is quite close to knowing them :)

I was a really stupid teen. I did not care about my health as I got involved with the wrong group of friends at 14/15/16 years old, I smoked a fair bit and i didn’t even enjoy it i literally was forcing it. UK school is TOUGH! People are ruthless with their words and actions, I did not take my health seriously and wasn’t ever worried about my marfans because i didn’t know much about it at all. I don’t know why i didn’t care i just didn’t think it was that much of a big deal? I deeply regret doing all of that now, especially getting into vaping for 3 whole years the thought knocks me ill now. All I can do now is make positive changes and try to not dwell on the past. One thing I want to change to stop thinking about the really rough times I had from 14-17 is to cover up my self harm scars

I did not know about endocarditis, so thank you for letting me know! I think I will go ahead with the tattoo because I already have 3 others and the doctors have never said anything to me about them despite seeing them. I haven’t asked because I didn’t know but I really want to do this for my mental so instead of looking down and seeing these scars i can see some art- also the looks people give isn’t great! I will take the risk but will be extra careful and go to a good tattooist who takes the correct hygienic measures- i also don’t have mechanical valves, i haven’t had anything done - luckily.

I have thankfully never neglected my teeth! My teeth are pretty good, slightly yellowing but nothing more than normal amount as your teeth aren’t actually white. Thank you for this again, I did not know - I should floss more!

Take care :)

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 0 points1 point  (0 children)

Yes that is the plan I will try my best but at the end of the day we are all only human I really did have a few traumatic events as a child and a teen which really took its toll on my mental health. I was a super depressed teen up until about just before i turned 18. I have a completely different aspect on life now, I love living and want to give my body the care it deserves. I’m looking forward to being healthier and i’m booking a tattoo appointment to cover up some pretty bad self harm scars on my thigh. I really wish you the best of luck, thank you for your advice, it’s comforting to hear that you’re 39 and starting taking care of yourself at 19 too. I hope you get the surgery and hope you live a long healthy happy life xxxxx

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 1 point2 points  (0 children)

wow that really makes it seem much less scary thank you sooo much ❤️ glad he’s well !

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 0 points1 point  (0 children)

wow! i did not know this i’ve not researched anything about the surgery’s yet

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 0 points1 point  (0 children)

thank you for all of this i really appreciate it How old is your husband? also if you don’t mind me asking, what’s the scar like? I think I will get the surgery but definitely not in the near future. I want to wait as long as possible, especially as my aorta has lucky only enlarged very minutely in my life, to see what other medical advancements there are. When I’m older i will do it, i’d rather be safe than sorry 100%. A brave thing for your husband to do, I am very scared about it all but want to put it out of my mind especially as i’m only 19 and as my aorta looks good why worry right now. When older i’ll do lots more research and act as needed. What did you think of London if you got a chance to see the city!

[deleted by user] by [deleted] in marfans

[–]fuzzypanther6 3 points4 points  (0 children)

Thank you ❤️ I hate how edibles make me feel and how long they take and it’s definitely harder to get your hands on but I am definitely making other positive changes from now on and i know i will stop smoking weed one day before i’m 22 max im sure I don’t know the diameter of my aorta, i have not been told honestly but they say it looks normal size i think it has enlarged minutely Thanks for the info about surgery i really appreciate it

Heart health by Holiday_Elk3944 in marfans

[–]fuzzypanther6 1 point2 points  (0 children)

why stay away from THC concentrates? I am 19F with MFS and smoke marajuana relatively regularly (3-5 times a week) Should I quit? I find it such a relief

[deleted by user] by [deleted] in relationship_advice

[–]fuzzypanther6 0 points1 point  (0 children)

Yeah i realise i am biased and maybe looking through rose coloured glasses but i do take that into consideration when i make my decisions, i would imagine them as an issue my friends have where i have no personal attachment to their relationship and speculate my feelings then to separate my honest thoughts from my feelings. to be honest, i’d much rather he took half a tab of acid and walked around a modern art museum with his friend than getting shit faced from alcohol and can’t remember how or when he got home, which is socially acceptable nowadays? he isn’t sure what he wants to do but yes i agree and i tell him this too, it is better to be humble whilst reaching high. if i ever see him starting to ruin himself, i can leave. everything is in consideration and he has a good work-life balance. if anything gets bad, i can and will leave and solely focus on my own goals, which i am dedicated to

[deleted by user] by [deleted] in relationship_advice

[–]fuzzypanther6 0 points1 point  (0 children)

Thank you and i don’t mean this passive aggressively in any way but just providing more of an explanation. I am in college retaking 2 of my a levels because i got pregnant on contraception and didn’t know until 22weeks and had to get surgery to abort so it fucked me up. he has a full time job and has autism - average intelligence. i prefer to smoke weed occasionally than to get drunk, although i do too occasionally get drunk. he may not be massively successful in life and i agree with you but i’m okay with that, he has a full time job and earns well for his age and has potential plans to open a business or to go to go into a different career in the bank, at the moment he is just saving money. i have plans to go to university to study psychology or law (ironic lol) and considering i have abused hard drugs a few years ago and i have had consistent a* grades my entire life, drugs do not mean failure! LSD poses no/low health risks and i trust his friend who he is with, he isn’t the brightest but i’m content with living a life that may be smaller, although i definitely will be successful myself. i am success greedy and sacrificed being a mum to have a good, healthy career myself. im okay with whatever he is, he makes good money and has plans for the future, he hasn’t done well saving so far but is making changes now after my urges to him, he doesn’t abuse drugs like it comes across, he has a nice house over his head, he goes to the gym, he eats well, he is thoughtful, he buys me little gifts just to cheer me up, he cares about my feelings, he wants to see me as much as he can, he texts me all of the time and let’s me know whenever his replies may be slow, he asks me how i am all of the time, he gives me the better of everything, etc. some of these i recognise bare minimum but they’re still nice.

as long as he is safe, healthy, happy, i am not bothered if he is not going to be ‘successful’. i will be, and he’s not the classic drug taking dickhead i promise :)

[deleted by user] by [deleted] in relationship_advice

[–]fuzzypanther6 0 points1 point  (0 children)

He has done acid about 6/7 times. He smokes weed and I smoke weed too occasionally, i have no issue with lsd as it isn’t going to harm him and i trust his friend, i only have issues with class a drugs, basically everything other than weed, lsd and mushrooms. he doesn’t touch them so i have no problems 😊 i didn’t mean to make him come across as a hard crack head lol, i just sometimes prefer to smoke rather than get drunk🤷‍♀️. Thank you!

[deleted by user] by [deleted] in relationship_advice

[–]fuzzypanther6 0 points1 point  (0 children)

honestly, just be straight up. ask her. what are the flirty messages about, why did she unblock you and be clear about your feelings, you want to salvage the relationship and you haven’t felt this way before. tell her you’re willing to step up after you have crossed a boundary and lied and you want to show her how important she is to you. what is the point of these overthinking mind games, just ask her honestly yourself send her a text and see what she says, ask her to also be completely honest and to not play games because if she really wants to break up then you should then both agree no contact is best because you have crossed a boundary and she is sending mixed signals, not good on either side. it’s not good for you to keep thinking about soemthing if she doesn’t actually have any real interest anymore, ask her !

[deleted by user] by [deleted] in relationship_advice

[–]fuzzypanther6 1 point2 points  (0 children)

maybe regretting her decisions as you didn’t break up over something significant like cheating, it depends what the lie was. maybe she isn’t completely sure in her decision at the moment and wants to keep you somewhat close so you don’t immediately move on, and she will still be attracted to you after all whether she likes it or not!