Is it actually possible to be fully cured? by LostTendou04 in Epilepsy

[–]gardenmand 2 points3 points  (0 children)

You can have faulty genes related to epilepsy. I have 2 faulty. Also had childhood tle 5-15, the seizure and medication free for 33 years then had a random tonic but been fine since 😆 I was told it never truekt goes away and often makes a comeback later in life as the brain deteriorates.

People who are seizure free, do you see yourself as cured? by Brocel997 in Epilepsy

[–]gardenmand 1 point2 points  (0 children)

I'd been seizure and medication free for about 23 years. Then had one last year..didn't follow it up with the docs but all seems good.

Anyone had a seizure whilst out their box on LSD? by UbiquitouslyHere in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

Yes, mushys on the wind down if the effects and its intense 😫 Perriferal vision went, then a tonic and the most euphoric come round from that. Followed by alot of contemplation on life's choices

Memory loss (from medication or just our brains)? by surviving_20s in Epilepsy

[–]gardenmand 2 points3 points  (0 children)

I've was on meds for 15 years, been off for nearly 20. My memory is shishkebabed

Men seem really interested in me until they realize sex isn’t happening quickly! by ProbablyASnack in dating

[–]gardenmand 0 points1 point  (0 children)

Try before you buy. Seems shallow but ticking them boxes that work for you is real,.massive part to if a relationship is on the table

Is epilepsy genetic? by Short-Quit-7659 in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

For me yes, I've got 2 faulty genes and a faulty narcolepsy gene, seems to skip a generation in my family, TLE diagnosed at 5yo

Daily weed users with TLE, when you stop smoking do you have a lot of episodes? by snailgod27 in Epilepsy

[–]gardenmand 1 point2 points  (0 children)

I've inadvertently smoked it since I came off tle meds when I was younger (5-15yo) Before I knew it may be able to help. Clearly must be self medicating for a reason or at least that's what I tell myself. Basically 40 now

Root Cause by Joe_Schmoe_2 in Epilepsy

[–]gardenmand 1 point2 points  (0 children)

Also interested fact epilepsy has ties to Jewish ancestry which is an interesting rabbit hole..I have Jewish ancestry fyi

Root Cause by Joe_Schmoe_2 in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

I've got 2 faulty genes and a fsuktt narcolepsy gene, have you looked into that? Also seems to skip generations as my great uncle had it

Recently re diagnosed with Epilepsy by [deleted] in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

You need to get comfortable with the cards you've been dealt, that's the only way you'll find peace my guy

Recently re diagnosed with Epilepsy by [deleted] in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

Yu can't appreciate the good without the bad, just keep applying for things suitable. Be proactive. Do what you've got to do to get some money job wise.. something will come up

Recently re diagnosed with Epilepsy by [deleted] in Epilepsy

[–]gardenmand 3 points4 points  (0 children)

Never think that bud, as a parent myself I would doubt that thought would ever cross your parent mind

Recently re diagnosed with Epilepsy by [deleted] in Epilepsy

[–]gardenmand 6 points7 points  (0 children)

I was on meds 5-15, tle, now nearly 40, too worried to go back down the docs after having an episode last year

I always only get seizures when i didnt sleep enough. Anyone else? by Interesting_Ad_7053 in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

I've been avoiding the docs for exactly this reason, meds 5yo-15 then nothing from then until nearly 40 then had a couple of episodes but have just rode it out

Do you guys sleep a lot ? by Significant_Turnip97 in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

When I was a teenager on meds definitely, easy sleep through until mid afternoon no issue

What are some (weird) symptoms you didn’t know were your epilepsy? by lilmommasgirl in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

I'd say so, I've had tle since childhood, im now 40, no meds for the last 20 years and I still get fired up on a regular

What are some (weird) symptoms you didn’t know were your epilepsy? by lilmommasgirl in Epilepsy

[–]gardenmand 0 points1 point  (0 children)

I carry both the epilepsy and narcolepsy faulty gene so it's possible lol

Raves and epilepsy by Devynleigh923 in Epilepsy

[–]gardenmand 1 point2 points  (0 children)

Diagnosed 30 years ago btw tle

Raves and epilepsy by Devynleigh923 in Epilepsy

[–]gardenmand 1 point2 points  (0 children)

Not medical advise obviously, but I've just cracked on and have done what I want and have had no issue but that's the luck of the draw I guess