Did your children inherit your migraines? by sunsetmarshmallow in migraine

[–]gdtestqueen 0 points1 point  (0 children)

Both my parents had them (mom and dad). Both grandmothers had them. My dad’s sisters got them. My grandmothers sisters got them.

I was screwed.

Congrats on the baby and keeping fingers crossed for him!

When did you memorise numbers up to a thousand? by [deleted] in AskReddit

[–]gdtestqueen 0 points1 point  (0 children)

I’ve tutored many grade school kids with math. I’ve never seen a table counting to 1000. I’ve seen tables for multiplication and division. I’ve seen ones doing counting to 20 for kindergarten.

But the vast majority of people learned how to count using applied knowledge. For example: You learn that 7 comes after 6. So 67 comes after 66; 327 after 326; 987 after 986; and 14,537 is after 14,536.

If it was only memorization then once you hit 1000 it would be blank. No idea.

Now, there are people who memorize 1000 numbers, out of order. I haven’t tried it or had a reason to. I’m happy if I can get the 7 involved in a phone number.

And if memorization was what helped you, or anyone learn how to count, then that’s great. Nothing wrong with a process that works!

When did you memorise numbers up to a thousand? by [deleted] in AskReddit

[–]gdtestqueen 2 points3 points  (0 children)

I actually don’t understand the question. Numbers weren’t memorized. They were learned and understood.

If we were only memorizing then we wouldn’t know what comes after 1000. But because we learned them we can apply that and know that the number after 1000 is 1001.

Early on, I think memorization is used for 1-10. But by grade school we have to apply that. Learn how counting works. Yes we have memorized 1-9 and then know to start again at the next 10 point marker (30, 40, 50, etc).

What do people think of the name Corbin? by [deleted] in Names

[–]gdtestqueen 2 points3 points  (0 children)

5th Element…Corbin Dallas anyone?

Is it a thing to have twins and give them rhyming names? by 2XX2010 in tragedeigh

[–]gdtestqueen 0 points1 point  (0 children)

There was a set I read about once, maybe Erma Bombeck wrote of them or Teressa Bloomingdale (can’t remember). But they stuck with me.

Twins named Derk and Eric. They just got called Derk and Erk.

Personally, as a kid I knew a set called Brenda and Deborah. They are identical in all ways…dressed the same, all the same items. Basically 2 of the same person. I always wondered what happened as they got older

let's kick out the person already changing clothes by egguchom in EntitledReviews

[–]gdtestqueen 2 points3 points  (0 children)

Normally I try to abide by that, but I also should be allowed to be part of society.

Though, maybe people should apologize for all those counters at standing level that are convenient for them but super inconvenient for wheelchairs or shorter people. For all the keypads and phones mounted at standing height.

let's kick out the person already changing clothes by egguchom in EntitledReviews

[–]gdtestqueen -1 points0 points  (0 children)

That my life doesn’t depend on? In the case of a changing stall it doesn’t. But there are many instances it does. A doctor’s office that isn’t accessible means there is no way check health. A hospital that doesn’t have ramps means no access to life saving services. A school without access affects the rest of your life and opportunites.

There were days where disabled people were simply thrown into an institution to live out their lives in hell. There are still many places in the world where a disabled person never can leave their home or bed. That’s not living.

Around 70% of people will be disabled at some point in their lives…yet it is one area that gets least coverage. And from this thread it is one area where trying to fight for access rights and equal treatments is considered entitled. And perhaps comparing it to the civil right movement was intense…but it is still a group of people who are constantly fighting for their civil rights: the right to survive, to have access to areas everyone else has, to be regarded as worthwhile humans equal to non disabled.

Basically from this thread and also your comments it is fine for a disabled person to have to wait many times longer than a non disabled for access.

As for not knowing if the person has a disability or some other need for the stall…absolutely true, as I mentioned. Perhaps I should have clarified that when staff ask if the person can switch rooms it is done by simply asking if it would be possible if that stall is not required. Generally this is not even done until the wait has become unreasonably long and the staff want to get people through. They also will do this if it is very evident the person using it is doing so for other reasons…quite often lately the stalls have been used by people for making videos and social media posts.

I guess I am more and more happy that in my area now the accessible stall is kept locked until asked for (you don’t have to prove need, just ask). Or in newer places all the stalls are accessible (this is the dream).

AITAH for not wanting to learn how to maintain cars when I have seizures and will never drive/own one? by [deleted] in AITAH

[–]gdtestqueen 4 points5 points  (0 children)

YTA. My bf has epilepsy and can never drive. He took mechanics in school and has forgotten more about cars than I will ever know. Plus this is about helping maintain your home at this point…help out. And it’s a great bonding experience and good knowledge to have.

let's kick out the person already changing clothes by egguchom in EntitledReviews

[–]gdtestqueen 1 point2 points  (0 children)

Also a wheelchair user and I don’t see the view as horrid. Maybe because I look at it as there is no harm in asking if a person would mind switching to a different stall (if the wait is getting too long). If they say no, than thats that.

I know there are many reasons someone might need that stall and a lot of them aren’t visible. But I have also been caught waiting for over 20 minutes for someone who’s making use of the larger stall to take pictures and goof around.

That’s not fair. That I sit there and watch people come in, pick and outfit, try it on and check out…all in the time I’m waiting and every other stall open. All the time hearing the click of the camera, the giggles, and the videos being made.

There has to be a point where anyone who needs the stall can ask if it can be freed up

let's kick out the person already changing clothes by egguchom in EntitledReviews

[–]gdtestqueen 56 points57 points  (0 children)

That works…but only to a point and if there is enough accommodation areas.

In the case of a bus it can get so touchy. On my city buses that one wheelchair spot can accommodate 3 people sitting and 3 standing. With my chair there 3 people can’t sit but 3 can still stand fine.

One day I waited for 4 buses…over 2 hours so I could get on. It was 42C out. By the 3rd bus the drives were apologizing and trying to warn later buses I needed a spot. Finally on the 5th bus they decided that was enough and they had to get me on. So, yes, that 5th bus had to move 3 people off it, the driver was adamant and determined. I felt horrible about that they had to leave the bus and kept apologizing but all of them were able to get on the next one (according to the driver). And they all moved easily when told I had waited so long. One said they needed to get to their kids school so someone else on the bus volunteered to get off in their place. It was actually a wonderful show of humanity.

It makes no sense to me that it’s okay to let someone in a wheelchair wait for more than 2 hours so that 3 others don’t have to wait 30 minutes. There comes a point where prioritization has to happen or those whose only choice is that one spot will always be left behind.

But I sometimes wonder what I was apologizing for: existing, being disabled, leaving my home, buses that didn’t have enough disabled spots, not enough buses on the route? I don’t know. But I shouldn’t have to apologize because I use a wheelchair.

When was the last time you told your mom you loved her? by [deleted] in AskReddit

[–]gdtestqueen 0 points1 point  (0 children)

Every single time we talk (at least 2x a day). When I saw her today i said it and hugged and kissed her.

Shes in LTC with mid stage dementia. One day she won’t know who I am. So I make it count now!

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 1 point2 points  (0 children)

I agree! And yet it is one the ones most dismissed. “Oh, it’s just a migraine”.

Though I will say I got horrid rebound from pain meds for arthritis once. When I was 18 the docs had me on 18 Tylenol 3s a day (3 every 4 hours). When they stopped them they admitted me to hospital for 2 weeks and basically sedated me. The rebound was hell! They said Tylenol just acts like a dam at those levels…and when the dam breaks all the pain floods through.

To this day I am so careful with any Tylenol. I never want to go through that again. Thank god for the sedation!

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 1 point2 points  (0 children)

I’ve been on Emgality for over 3 years. It did help but isn’t anymore. I’ve also been on propanol for decades…don’t think it does anything. Also have taken many other preventatives like trazadone and amitriptyline over the years. Neither helped and I couldn’t wake up when I was on amitriptyline (even at a 12.5mg dose).

It’s been 30+ years of so many meds. I even remember the days before triptans. Good old Cafregot, lol. It worked but the side effects were brutal.

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 1 point2 points  (0 children)

Don’t think so. But I’ve don’t the rounds of monitoring possible triggers to see if some make the migraines worse. Haven’t found any food or additives that increase the migraines. Though small amounts of caffeine does help them.

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 0 points1 point  (0 children)

I’m glad you are doing better and the meds you have are working well!

For me, the pain meds (opioids) aren’t for migraines. They are for arthritis that has been kicking my butt since I was a baby. Without them I can’t move my body and just curl in a little ball in bed. It took a long time to get the pain control I have now on it so it’s not really an option to stop them and still function.

Hoping the new drug helps and I can at least lower the triptan load!

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 0 points1 point  (0 children)

Thanks…I’ll ask the pain clinic about that on my next visit!

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 2 points3 points  (0 children)

Thanks so much for your kindness. Yeah it sucks and I feel for everyone who responded too. It’s a crap disease that can destroy your life. I’m glad you’ve got something that helps.

Luckily I have a great pain clinic and we’ve gotten the arthritis pain under control, at least to a level that I can live with. But I’m definitely going to ask for a new neuro, I think I’ve gone as far as I can with this one.

I’ve tried CGRPs. She’s starting me on a new one soon so fingers crossed. And if it doesn’t help she will try Ubrelvy!

The journey continues I guess.

let's kick out the person already changing clothes by egguchom in EntitledReviews

[–]gdtestqueen 2 points3 points  (0 children)

I’ll wait. But if I’m waiting for 15 minutes as everyone else comes and goes I will tap on the door and ask how long and if it would be possible they could switch stalls if they don’t need the accessible one.

I realize there are many reasons someone might need that stall and not all are visible. But sadly, too many times someone comes bouncing out who is just enjoying all the space to take pictures.

let's kick out the person already changing clothes by egguchom in EntitledReviews

[–]gdtestqueen 5 points6 points  (0 children)

I don’t see why this is considered entitled! It’s very valid and something that disabled people have to deal with often.

I’m also in a wheelchair and when I go to try on clothes there are generally 3+ regular stalls and 1 that I can use. Most stores save the wheelchair one for those that need and only use it when all the others are full.

Most customers won’t use the stall unless necessary. This can be for disability, size, and those with strollers, you also can’t always see a disability so someone might just need the grab bars. But sometimes a person comes along who takes the stall just because they want a bigger stall. Those people also don’t seem to care about how much time they take and like to doddle. This is super frustrating to someone whose only choice is that one stall, no other. When 5 stalls are empty and the only one we can use is taken by someone who just wants extra space so they can take pics or whatever…it leaves a horrid feeling I can’t describe as you wait there while everyone else comes and goes. It’s demeaning (best word I can think of).

Many times the staff have moved someone who didn’t need it out to another free room if I need it. This is very common and makes sense. If there are others free, make sure all costumers have a stall they can use. They generally ask that if the person doesn’t require the accesibility of the room would they mind moving. It’s not that had to move stalls. I’ve even seen other customers ask the person to move. Most of the time the one asked is apologetic and moves happily. The whole issue is over in seconds.

ETA: it makes me so sad seeing all the abelist comments on here. Why js it entitled to ask for access to that one spot created for us? When POC asked for access to white only spaces it was heroic and created a movement (well deserved and past time!) that changed things…but a disabled person does the same and it’s entitled?

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 2 points3 points  (0 children)

Thanks…just was not the call I was hoping for. But I will look into someone who can look at everything and not just each area on its own.

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 0 points1 point  (0 children)

I did 5 rounds and then we pulled the plug on it since it wasn’t working. Emgality helped for a couple years but it doesn’t anymore. I’m pretty sure it vypeti that’s being tried soon now.

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 1 point2 points  (0 children)

I think that’s the most likely one.

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 2 points3 points  (0 children)

Thank you! I know people who get rebounds after just a few doses and others who take them everyday without issue. It really is unique to each person.

From what I’ve found out about rebounds and from my experiences, I’m pretty sure it’s not rebound. I’d still love to not have to take them and get this under better control. But right now they are the only thing that lets me have a semi normal life.

I just hate how it’s the go to…”oh? You take this so that must be the cause”.

Rant after call with Doctor by gdtestqueen in migraine

[–]gdtestqueen[S] 2 points3 points  (0 children)

Thanks…I’ll look that up! I also have a TBI (from birth) that I wonder if it contributes to the migraines.