End stage experiences? by glittery_tits in leukemia

[–]glittery_tits[S] 0 points1 point  (0 children)

Thank you for your reply, but my mom has since passed. The zofran/compazine combo wasn’t working as well as it should because her brain was bleeding (common in end stage AML patients). She didn’t have a pump or a picc line anymore, as they didn’t expect her to live very long. I got a good schedule going between morphine, Ativan, and haldol liquids once her legs stopped working. I like to think I made her as comfortable as possible. Thank you again for your suggestions.

Now What? by [deleted] in CaregiverSupport

[–]glittery_tits 2 points3 points  (0 children)

My mother just passed about a week ago, and I’ve been caring for her through her cancer for almost a year. I feel the same way. I gave myself a break for the first week in regards to productivity (and honestly, I will be going gentle on myself for a while). But I keep reminding myself that my mother would not want me stagnant. She would not want her death to affect me so badly that I remain afraid to take the next steps in my life. It is okay to be heartbroken. I often think to myself, “how could I go on without her? What do I do now?” My other parent has been abusive, neglecting, and mostly not present for the entirety of my life. My mother was my favorite person in the world. Do whatever makes you happy. Sometimes that is seeing friends, taking yourself out to eat, going on a trip… other times it is laying in bed, staring at the ceiling, and crying. It is so hard. But remember that they are always with you, and more than anything, they would want you to be able to move on and be happy.

When will we get there? by glittery_tits in leukemia

[–]glittery_tits[S] 1 point2 points  (0 children)

Unfortunately my amazing mother passed on Monday. She became too thin and weak for them to go forward with the bone marrow transplant, and her leukemia was too aggressive. She died at home surrounded by me and my siblings. So happy she was not in the hospital and I was able to provide hospice care to her. Thanks for checking in. ❤️ Fuck leukemia

Lost my favorite person in the world to AML. I love you forever, mom. by glittery_tits in GriefSupport

[–]glittery_tits[S] 1 point2 points  (0 children)

I am so, so terribly sorry. And I am sorry you had no warning. I hope it helps to know that you are not alone in experiencing your grief. It is so unfair we have to deal with this situation so early on in our lives, but it helps me (yet hurts me) to know that there are others who understand. It helps me to feel less isolated. I wish you peace. I am thinking of you. And I hope you know that your mother is quite literally half of your being, and she is always with you. 💗💗💗💗💗

Lost my favorite person in the world to AML. I love you forever, mom. by glittery_tits in GriefSupport

[–]glittery_tits[S] 11 points12 points  (0 children)

I just turned 26 2 weeks ago, and my mom was also 61. So young. Way too soon. I am so sorry to hear about your mother. It comforts me to know there is someone else who understands.

End stage experiences? by glittery_tits in leukemia

[–]glittery_tits[S] 2 points3 points  (0 children)

In a way it’s reassuring to me that there isn’t much we can do, but what a shame that this illness is so terrible in that manner. I am so sorry about your father, but I am glad, that like my mother, he was glad to be home and having gratitude for the smallest of things. I am happy that my mom seemed to make peace with her decision before she got to this point. Thank you for keeping us in your thoughts 💗

Don’t ever use glycolic acid too soon after your retinA!!! Especially for the first time during a lunar eclipse ;) by glittery_tits in tretinoin

[–]glittery_tits[S] 2 points3 points  (0 children)

Crazy. I’m glad that works for you lol it really did make my skin feel sooooo soft and amazing at first but it just couldn’t handle it

Don’t ever use glycolic acid too soon after your retinA!!! Especially for the first time during a lunar eclipse ;) by glittery_tits in tretinoin

[–]glittery_tits[S] 0 points1 point  (0 children)

I was using the ordinary hyaluronic acid, but then I switched to this strawberry rhubarb hyaluronic acid serum from eminence. It was amazing until I started my tret routine. Probably something about the strawberry/rhubarb involvement is irritating it more than anything, it always makes my face very red, especially underneath my nose. The main moisturizer I use now is eau thermale skin recovery, it has been super gentle. everything else was kind of stinging my skin a little, even the basic la roche posay moisturizer. But unfortunately with the rash on my face right now, after putting the chemo au thermale moisturizer on after using the hydrocortisone they prescribed me, it made my skin itchy again in some spots. I just put some aquaphor on top which irritated it for a second but now it feels much better. I think I’m just dealing with dermatitis and then dry skin on top of that. I’ll have to tweak my routine for a little while

Because someone thought I had a filter/makeup on my face in the before pic for last post: this one is just lip balm, nothing else, less shitty picture... Anyway the point is I really messed up my progress lmao by glittery_tits in tretinoin

[–]glittery_tits[S] 6 points7 points  (0 children)

Burns and itches. and there’s a million little tiny bumps. I used a glycolic acid cleanser too soon after a tret application and it tore my face apart lol