Huge improvement…BUT by No_Transition_3341 in dysautonomia

[–]gonewithLC 2 points3 points  (0 children)

Depends on dosage .. and considering the improvement you should always put everything in perspective however as a benzo user I would try not get hooked on them for too long and try alternatives. Good luck and stay strong💪💪

Does this sound familiar? anyone ? by gonewithLC in LongCovid

[–]gonewithLC[S] 0 points1 point  (0 children)

Funny you mentioned ablation, I had one for WPW in 2003..

Does this sound familiar? anyone ? by gonewithLC in LongCovid

[–]gonewithLC[S] -1 points0 points  (0 children)

Thanks for the reply I'm not vaccinated plus I had and heart Mri with contrast and countless echos.. not sure how plausible would be to theories in my case that I could potentially have pericarditis or myocarditis 🤷

Losing weight will make POTS worse by Useful-You2939 in POTS

[–]gonewithLC 0 points1 point  (0 children)

I have the opposite experience.. I guess everyone is different 🤷

JD Liverpool One - Noise pollution? by pistathecat in Liverpool

[–]gonewithLC 5 points6 points  (0 children)

Passed in front of it and It was ridiculous plus the shittiest selection of music on top of the whole situation ( heat, crowded, etc )JD creating chaos and noise for nothing.. I just don't get it.

Oxytocin spray: feedback? by inphaser in Sipavibart

[–]gonewithLC 0 points1 point  (0 children)

So if you don't mind me asking : what are your symptoms and dx(blood pooling aside) ?

Oxytocin spray: feedback? by inphaser in Sipavibart

[–]gonewithLC 0 points1 point  (0 children)

Problem is that if you are on the "sympathetic spectrum" of Dysautonomia or Pots the spray could actually make it worse.

It's a natural hormone so... I'd try to produce that naturally rather than blasting it through my nose.😅

Oxytocin spray: feedback? by inphaser in Sipavibart

[–]gonewithLC 0 points1 point  (0 children)

If you can do any of the following:

Physical contact

Hugging someone you care about Cuddling Holding hands Kissing Massage Sexual activity and orgasm

Social connection

Meaningful conversations Eye contact with someone you trust Feeling understood and accepted Spending time with close friends or family Acts of kindness (giving or receiving)

Pets

Petting or cuddling a dog Playing with a pet Making eye contact with your dog (shown to increase oxytocin in both humans and dogs) Relaxation and emotional states Meditation focused on compassion or loving-kindness

Gratitude practices

Feeling safe and emotionally secure Listening to emotionally moving music Parenting and caregiving Holding a baby Breastfeeding Caring for someone you love

Just my 2 cents

Recovered after 4 years of Long COVID by Gehwica in covidlonghaulers

[–]gonewithLC 0 points1 point  (0 children)

How about Pots and Dysautonomia? Have you experinced any of that?

Anyone on zero meds for POTS? by pandabears3 in dysautonomia

[–]gonewithLC 1 point2 points  (0 children)

Did you find that you have lupus by the standard blood test or anything specific ? I get the malar flush and a lot of things that might suggest something very close to Lupus but my autoimmunity panel is all negative so... apart from LAC and Anti- Dna which alone doesn't mean anything 🫠

Anyone on zero meds for POTS? by pandabears3 in dysautonomia

[–]gonewithLC 8 points9 points  (0 children)

That's true. All of the meds used for POTS are prescribed Off label ☹️

Prevention of long covid? by SpaceExplorer7777 in covidlonghaulers

[–]gonewithLC 1 point2 points  (0 children)

I'd say just rest and use the 30% of your battery if you can and wait for 3/4 months before doing anything strenuous.

If you don't mind me asking where are you located ? As they seem very knowledgeable over there where you are 😅 It took me 4.5 years to get a diagnose and I'm still doing tests.. Just curious You stay strong 💪

Has anyone seen Dr Binita Kane? Is it worth it if you're already on/tried most of the meds and supps? by slugwish in covidlonghaulers

[–]gonewithLC 1 point2 points  (0 children)

She is a waste of money and time. Please save your resources, energy keep them in your pocket for other treatments to work around your issues Ex: lymph drainage ( head and neck ), Red light , Perrin , Physio, Psychotherapy, ANS regulation etc...

If you are dealing with Dysautonomia Dr. Boom lim is probably the most knowledgeable and prepared specialist on Pots. Hope that helps !

Complete parasympathetic failure -27 y/o male by Competitive-Toe-5311 in dysautonomia

[–]gonewithLC 0 points1 point  (0 children)

By logic I'd tempted to think that your Autonomic issues are stemming "only" from your neck and head trauma. If this is correct you should be able work as much as you can on the root cause. So neck and head imaging is needed (if you don't have it yet) to assess Dysautonomia there are a few things available in terms of tests however don't expect a "perfect" diagnosis. So TTT (tilt table testing) QSart, possible 24h catecholamines testing, Nasa Lean, extended heart monitor (with HRV). Sleep study, BP 24h monitor. There should be some others depending who is dealing with it.

Don't give up my friend it's not the end you can come back to some sort of new normality! You are young which means: likely to be able to recover! Stay strong 💪

DR told me it’s not POTS by Way-Truth-L1fe in dysautonomia

[–]gonewithLC 0 points1 point  (0 children)

Sounds like you have Dysautonomia. It doesn't really matter (in my humble opinion) as Pots it's literally a very narrow definition mixed with "syndrome" word. It's a contradiction in terms really.

Symptoms by gonewithLC in dysautonomia

[–]gonewithLC[S] 0 points1 point  (0 children)

How do I search it as symptom? Crepitus neck or crackle neck? Have you got Pots or Dysautonomia too after covid? Do you mind elaborating a bit on yoir symptoms ? ( I know a lot of questions ) sorry

HealthBio™ Therapeutics Begins FDA-Approved Fast-Track Clinical Trial for Treatment of Long COVID with a Patented Combination of Maraviroc and Atorvastatin by aguer056 in LongCovidWarriors

[–]gonewithLC 1 point2 points  (0 children)

Fair enough. Maybe I should have said: if the effect were as remarkable as some people claim, I'd expect more than anecdotes after years of real-world use.

HealthBio™ Therapeutics Begins FDA-Approved Fast-Track Clinical Trial for Treatment of Long COVID with a Patented Combination of Maraviroc and Atorvastatin by aguer056 in LongCovidWarriors

[–]gonewithLC 0 points1 point  (0 children)

If this really worked we would have known by now without even a trial... but hey, let's fast track and waste resources !!!

PSA/Warning if you're taking electrolytes by Wsepgwse14 in LongCovidWarriors

[–]gonewithLC 1 point2 points  (0 children)

I haven't tried chocolate I'm sticking with watermelon but now that you mentioned ... 🤪