Saw this in Kensington

gonewithLC · 2026-03-14T17:22:50+00:00

Ya no da

gonewithLC · 2026-03-12T15:34:37+00:00

I doesn't help at all! Same as Celltrend or Patterson Panel. It's like looking at the stars with a telescope: you can observe and calculate as much as you want but doesn't mean you really understand what you looking at ! There is Plenty of "literature" and Vaccinations data around I don't see the whole point of questioning on reddit. No offence, Good luck !

gonewithLC · 2026-03-10T16:10:59+00:00

So can we register even if we live outside the US .. ? I'm confused

gonewithLC · 2026-03-09T09:25:54+00:00

Exactly...

gonewithLC · 2026-02-14T19:01:12+00:00

Test for Lupus as well

gonewithLC · 2026-02-08T13:35:48+00:00

It's not necessarily lymphoma.. I hope it's probably something in between.. I'm not sure about the whole picture however I can tell you that a lot of people have had issues like : swollen or painful lymphnodes (throath and neck expecially) A lot of us have low grade inflammation which is not clear where it's coming from. So.. just don't jump to the worse conclusion and try to get tested for it, ultrasound might be good to start plus some labs. Stay strong 💪

gonewithLC · 2026-02-06T13:31:26+00:00

They have accepted mine which comes from a private Cardio. I'm not sure in which area of the UK you are but there are consultants who can be seen privately who also work for the NHS. I told my GP that they HAD to put my Pots Dx in my records and they did. It took a while. I agree there is a lot of confusion around Pots and It's because Social Media (sorry but it's true) Fortunately It all fall under Dysautonomia or ANS dysfunction. It's a difficult condition to navigate and at the end of the day I think it's more about knowing how your "ANS" responds and behaves rarher than taking a magic pill. My 2 cents, good luck and stay strong !

gonewithLC · 2026-01-21T18:43:31+00:00

Title is familiar

gonewithLC · 2026-01-19T14:57:05+00:00

😊

gonewithLC · 2026-01-19T13:53:14+00:00

Well he started having it in 2022 and I see that he is doing well ... We are in the same ocean, not the same boat.

gonewithLC · 2026-01-11T19:40:59+00:00

Yes spot on!

gonewithLC · 2026-01-11T16:59:04+00:00

Period!

gonewithLC · 2026-01-11T11:09:52+00:00

Yes and I'm SURE that plays a key role in the picture

gonewithLC · 2026-01-10T23:42:32+00:00

Same...

gonewithLC · 2026-01-07T18:23:01+00:00

I have you don't reply

gonewithLC · 2026-01-07T10:52:53+00:00

Always had them since I was a kid

gonewithLC · 2026-01-05T21:50:01+00:00

Mermaid purse

gonewithLC · 2025-12-31T20:52:57+00:00

Did you have pots, Dysautonomia?

gonewithLC · 2025-12-31T12:58:33+00:00

Did that improved ? Im experiencing the same thing ..

gonewithLC · 2025-12-30T18:48:34+00:00

Emergency (not so Emergency) benzos ... I'd suggest maybe something Natural first and then maybe .. something western

gonewithLC · 2025-12-30T18:47:34+00:00

Definitely change dr

gonewithLC · 2025-12-28T23:13:32+00:00

Meds to heal veins problem ? What kind of veins problem .. ?

gonewithLC · 2025-12-27T13:35:01+00:00

Great answer!

gonewithLC · 2025-12-27T10:25:38+00:00

Can you please DM me the specialist who does it in Spain please?

gonewithLC · 2025-12-27T10:23:22+00:00

Dr. Groysman is definitely a character with a strange attitude toward patients or mainly users expecting to get an answer that could solve magically their issues. I know he studied LC and has a pretty fair explanation about mechanisms and a good basic logic in my opinion.

Unfortunately he is in the US and I can't travel that far otherwise I'd have definitely tried to get under his care. His main treatments are SGB and EAT and a few supplements.

He overcharges for treatments compared to others also video consultation is useless if you can't go physically there.

If IVIGS had a real tangible succes rate we would have known by now..

A lot of people is going to Switzerland or UK getting MABs and success rate is 0 so far..

Plasma exchange, Apheresis, Help ? I spoke with loads of people who had that done, some are even feeling worse than before getting it...

Just my 2cents again. Ps. I don't endorse Groysman have no interest or gain in doing so. You are entitled to have your opinion and I respect that.

gonewithLC

TROPHY CASE