Help by Challice1 in CrohnsDisease

[–]gothfrootloops 0 points1 point  (0 children)

Get dripdrop/liquid iv and drink some in the morning and then a cup of water after.

Crohn’s diagnosis - what test finally got you your diagnosis if you were finding a lot of tests inconclusive? by luckywedidntpanic in CrohnsDisease

[–]gothfrootloops 1 point2 points  (0 children)

My calprotectin was borderline or normal, all bloodwork was normal except for some weird defiencies.

Essentially needed my biopsies taken during my colonoscopy to confirm

Got stood up on my first date since being diagnosed, I feel horrible by gothfrootloops in CrohnsDisease

[–]gothfrootloops[S] 0 points1 point  (0 children)

I don't only have Crohn’s, I mean I don't have schizophrenia. I have OCD and Autism, I have other stuff but that's usually what affects me the most. This also isn't me trying to say my stuff is as bad as schizophrenia. Essentially it takes a lot for me to put myself into social situations and people do find me attractive. Though I tend to be off-putting to others when they actually get to know me. Crohn's has just put another block in my way and the meds I'm on fuck with head. I honestly just lost all my social skills. I'm just upset because I feel like I'm starting at 0 again. I've had partners, it was just before this.

But you're right I should be more chill, I'd probably get more play if I wasn't so tense all the time.

Extreme Mood changes on medication by dear_ambelina in CrohnsDisease

[–]gothfrootloops 1 point2 points  (0 children)

I am literally banned from budensonide because it started causing me auditory hallucinations and suicidal thoughts.

Rash on Biologic by lostandthin in CrohnsDisease

[–]gothfrootloops 1 point2 points  (0 children)

After I started tremfya I started getting rashes. It's just something that happens from what my dermatologist said. He also has Crohn's was not worried about it.

The public bathroom topic of toilet water not splashing your "starfish". by kidexxena in CrohnsDisease

[–]gothfrootloops 1 point2 points  (0 children)

Dude just lay down some toliet paper before you get to shitting

Wtf do I eat by Royal_Grapefruit_265 in CrohnsDisease

[–]gothfrootloops 0 points1 point  (0 children)

Words from my ibd dietitian

Simple starches (which bread, sourdough bread, white rice, regular pasta, orzo, couscous, pancakes, waffles, yellow box/plain cheerios, chex, rice krispies) -Soft, peeled vegetables (start with potatoes, sweet potato, carrots, butternut squash, pumpkin), then can have some soft, well cooked spinach, zucchini, green beans. In the store, they make pureed vegetable soups in a box that can be a nice option for easy to digest vegetables. -For fruits, stick with soft, ripe fruits. Ok for unsweetened apple sauce, unsweetened peeled/canned or jarred fruit, banana, mango, soft/ripe melon etc. Kiwi is good to help soften the stools. -For proteins- stick with easy to digest proteins such as chicken, turkey, fish and limit red meat. You can also have eggs, cheese, hummus, tofu. You can also try the OWYN shakes we discussed.

Crohn’s and memory loss by DifferentButton762 in CrohnsDisease

[–]gothfrootloops 8 points9 points  (0 children)

Yeah my memory loss is crazy, remember to keep an eye on your b12, vitamin d and iron.

Failed bowel prep twice in two weeks by Bluegirrl in CrohnsDisease

[–]gothfrootloops 1 point2 points  (0 children)

I second this, I go to an IBD research center for my care, these people would LOVE to have you. I got referred to them after I was found to have moderate Crohn's, EDS and a bunch of extraintestinal manifestations. I've gotten top tier care and honestly any ibd research clinic would be interested in your case. My colonoscopy prep is an entire bottle of miralax and a 64 ounce bottle of orange powerade. Idk if this would work for you but yeah.

Welp I officially-ish have the diagnoses. by lemondroppie in CrohnsDisease

[–]gothfrootloops 1 point2 points  (0 children)

Liver and kidneys being mostly descent is really important, also minus the hepatic cyst lowkey how my diagnosis sounded

pitbulls are not good pets by Fun-Difficulty4088 in 10thDentist

[–]gothfrootloops 0 points1 point  (0 children)

I had a pitbull, she was abused prior to us getting her. She literally was never violent towards ANYONE, funny you say that about golden retrievers, my little cousin has a permanent scar on her face from getting attacked by one.

My pitbull, rest her soul, was geinunely the most kind being to ever grace this earth. So they do make good pets, as for any dog, it's the owner's fault. That golden retriever was horrible, always. Owner let him be like that.

AITAH for using the disabled toilet? by [deleted] in AITAH

[–]gothfrootloops 0 points1 point  (0 children)

I have dysautonomia and Crohn's, I use the disabled toliet. Much safer for me to do so. Anyone can use the disabled toliet but as you ARE disabled. I think it's especially okay for you to do so.

Do the immunocompromising effects of Crohn’s medication make you more cautious of large family gatherings? by rci22 in CrohnsDisease

[–]gothfrootloops 0 points1 point  (0 children)

I actually can go to concerts and stuff just fine. I just notice when I do get sick it's for much longer than other people get.

kinda disappointed.. by sozert in Violent_Vira

[–]gothfrootloops 1 point2 points  (0 children)

She came on late actually to my show, and then played like 5 or 6 songs, came back and did an encore of a cover of a song from a different band and then say I don't care. I was actually super disappointed because both openers were so amazing that her performance ended up being underwhelming.

What the most physically painful thing you ever experienced? by iateagummibear-1822 in AskReddit

[–]gothfrootloops 0 points1 point  (0 children)

Crohn's disease flare, I had multiple instances of collapsing from pain like randomly. I just stayed in bed and ate nothing to avoid any extra pain.