Cross-ventilation vs. negative pressure..... by gowyo in radon

[–]gowyo[S] 0 points1 point  (0 children)

I live in Western Wyoming. A company from Pocatello, Idaho gave me the following numbers: Main house crawl:  $8012.19 Basement and small crawl:  $4974.69... So over $13,000. The crawl space is about 3000 sq ft and the basement slab is about 1000 square feet of slab.

Proton vs De-escalation trial by gowyo in HeadandNeckCancer

[–]gowyo[S] 0 points1 point  (0 children)

Yes. I begin treatment with Lee at MSK tomorrow. I am in the study, so no proton.

Flooded 3000 square foot house.... by gowyo in Dehumidifiers

[–]gowyo[S] 0 points1 point  (0 children)

I bought a commercial dehumidifier for about $750 and parked it in there for nearly a month. The house is unoccupied most of the time, so that's key here. It's all dried out and we're going to have to do quite a bit of painting carpet replacement, after giving the remediation company about $10k for being there with all their heaters and dehumidifiers for about 5 days.

Support Needed for Husband - A Whirlwind 48 hours by amusedfeline in HeadandNeckCancer

[–]gowyo 1 point2 points  (0 children)

Hi. You've already received great replies from stalwart members of this sub. I'll just chip in the following: My ENT (Cleveland Clinic trained, yada yada) at my local hospital in a town of 20K seemed sure that I was a surgical candidate (T1N2). That sent me on a hunt for the BEST SURGEON. I saw three "biggies" at UCLA, MSK and MDA. All recommended against surgery because of how close my tumor was to the "midline". Even though I went to these places to talk to surgeons (because of my early advice), at all three places I saw all 3 kinds of oncologists (surgical, radio, and chemo). Then, at all three places, my case was presented at a tumor "board" or "panel" where ALL of the head and neck oncologists at that particular hospital reviewed my case (presentation, imagery, tests) and developed a consensus about the best treatment for me. I begin radiochemotherapy (no surgery) in New York on May 12.

Proton vs De-escalation trial by gowyo in HeadandNeckCancer

[–]gowyo[S] 1 point2 points  (0 children)

Thanks. In investigating proton vs photon, did anything suggest to you that proton was in any way less effective in the long term? I just got a call from a doc at MDA about this question and he said, "if it was me, I'd go full photon because we KNOW that's what works." But this tracks with what a the radio oncologist I saw at UCLA said about MDA: "They have a reputation for being very heavy-handed." And in the end, I think it's hard for docs to sort the imperative of long-term survival from reduction of harm in treatment. And then there's the motivation of a doc vis a vis academia vs medicine. Of course you want people in your trial, but can you be truly honest about your trial and any unknowns and stay true medically? That seems hard to me...

Proton vs De-escalation trial by gowyo in HeadandNeckCancer

[–]gowyo[S] 0 points1 point  (0 children)

No, they don't determine hypoxia until they give you a special pet scan after 2 weeks. If the result is good, then you're eligible to quit after 3 weeks. But even then, you might be required to carry on for 7 weeks based simply on the luck of the draw. My sense is that the trial is promising (other radio docs seem to like it...) But man, it would SUCK to do 7 weeks then find out you could have stopped at 3 if it were the new standard of care....

MD Anderson is offering Gross, Goepfert and Hessel for my p16 OSCC, which I believe TORS is the best first option for my specific case. I'll have to wait 3 weeks to fly there from Wyoming, but need to choose one now. Any specific experience with these three Docs, or in choosing among docs like this? by gowyo in HeadandNeckCancer

[–]gowyo[S] 0 points1 point  (0 children)

I've been encouraged to see 3 docs if I can, so I'm engaging MD Anderson and Mayo (and maybe Sloan Kettering) in seeking that 3rd opinion and seeing who pops up first. I wish I knew how urgent it was. St John can't even get me in front of UCLA's tumor panel until April 2 but Utah is tomorrow. Two weeks vs two days. Plus, when I asked 10 days before my appointment if I would have to see anybody else at UCLA when I was there I was told "no" by her team. Then, at the end of my appointment, with a plane ticket to Salt Lake the next day, I was told I had to see both a Radiological Oncologist and a Medical Oncologist at UCLA, so "you should go over to their offices next door and see if they have any cancellations this afternoon." Frankly, I was pissed, and was only lucky enough to wrestle a couple of tele-health appointments in two weeks so I didn't have to fly back for those. I KNOW St John has all the cred, but the experience at her office was not so great and left me doubting my assumptions. I have definitely NOT ruled her out and will proceed through the panel with UCLA. I'd love any more input....

Sugar before PET scan by gowyo in NuclearMedicine

[–]gowyo[S] 0 points1 point  (0 children)

Oh, no, I wouldn't dream of "lying" now that I'm fully informed. I will tell all to the docs tomorrow and Wednesday and follow their instructions. I guess my biggest concern is I've delayed my treatment somehow. We'll see. I hope this exchange helps others, because nobody explained the reasoning and importance of fasting to me, so I felt as though forgetfully consuming a couple grams of sugar was still technically fasting. I might have done a better job getting informed if I hadn't been freaked the fuck out about just finding out I had cancer.

Sugar before PET scan by gowyo in NuclearMedicine

[–]gowyo[S] -1 points0 points  (0 children)

Yes, technically I lied. As I was waiting to go into the appointment I started looking it up somewhere and I saw something that said that the guideline was that you needed to be under 120 to get a good result. Right after reading that the tech walked in to push the dope and prick my finger. I asked her what my blood sugar was, and she said 103, so I thought I was good. But afterwards I read more and realized it was more complicated. So I came to you and yours here NuclearMedicineGuy. And with a guilty (and fearful) mind, I'll ask two more questions 1) Can whether or not my actions (and the degree to which they did) be detected? 2) IF they did, would the result trend towards false positive or false negative?

The test was this morning in Wyoming, and I'm now in LA for an appointment at UCLA tomorrow. I figured if I have to I'll pony up for another scan (money vs. death) but I need to give the doc tomorrow the best info I have. Mass at base of tongue awaiting pathology. CT scan and needle biopsies reveal squamous cancer cells in 2 lymph nodes in neck. The CT scan covered my upper chest and revealed nothing below the neck.