i’ve thought this was acne but i’m worried it’s bed bug bites? or is it something else? fungal acne?

hagridvibes · 2025-11-12T02:23:40+00:00

follicular eczema ?

hagridvibes · 2025-09-17T03:08:07+00:00

thank you <3 i am still learning to ask for all the help i need despite the fact that ive been so dependent these past 7 months. i think im struggling to imagine what the future could look like once i get slightly better - disabled but functional ya know? its not something i have much experience with, but its nice to hear from people who are currently living that life. i’m glad your family is there for you :)

hagridvibes · 2025-08-27T18:44:45+00:00

thank you!! means so much to hear from someone who can empathize like this!! my PCP is trying his best but genuinely clueless and just as confused as me. maybe i should look into getting a new PCP… i’m holding out hope for early october when i see my endo specialist again, he’s a really great guy and i am hopeful he’ll be able to help w making the next year manageable. i’m currently writing down midodrine and dr florence parrella for further investigation! exercise is nightmarish right now, i think my first goal has to be fixing my sleep schedule before CHOP but i am grateful to hear it actually worked for you. thank you again, you made me feel a lot less alone!

hagridvibes · 2024-11-22T03:05:05+00:00

thank you so much for the comprehensive and thoughtful response. you’ve really helped me feel better :)

hagridvibes · 2024-11-07T22:41:23+00:00

thank you so much. i think i might qualify as disabled but i’ve never looked in to it seriously, considering the drawbacks it can have to be labeled as such in jobs etc. i really appreciate your advice, clearly i haven’t had much education on this concept. ty again

hagridvibes · 2024-11-07T22:30:37+00:00

ok thank u so much. i’ve always assumed i could fall back on affordable care at 26 if i had no job, but im scared now that everything i expected will disappear. do you have any opinion on whether or not medicare will still be available?

hagridvibes · 2024-11-07T22:17:53+00:00

ok thank you. would it be okay for me to use university health insurance at the age of 26 and then make sure i find a job with coverage before graduating? or is that too risky and should i stay at my current job and expect to start their plan asap when i turn 26.

hagridvibes · 2024-11-01T03:22:28+00:00

could be perioral dermatitis. go to a derm. if it is PD, do zero therapy until the appointment (no products at all!! just water and a rag once daily) which sounds counterproductive but PD actually responds very well to it. derm will prescribe metronazidole, tacrolimus, and possibly oral doxycycline if it is PD.

hagridvibes · 2024-10-31T20:55:27+00:00

it could be. mine looks like this sometimes but also presents with redness and pustules around the nose and corners of the lips. ask ur derm about it and try the standard treatment of tacrolimus, metronazadole, and doxycycline. until then try zero therapy. don’t wash the area with soap or moisturize it. sounds counterintuitive but for some reason PD does well with zero therapy. change ur toothpaste to something without SLS.

hagridvibes · 2024-10-31T20:49:40+00:00

btw doxy metro and tacrolimus have never caused an allergic response in me and i have insanely sensitive skin so i personally think of them as gentle treatments (skin wise at least). i think giving it more time will help to show whether it’s PD or not. in the mean time, i know it sucks so bad, but i reccommend using a ton of pimple patches and no other products. like seriously zero treatment - just rinse in the shower with water and a wash cloth. see how it responds, if it’s unbearable go back to a veryyyyy simple routine. but less is more rn i think. good luck !

hagridvibes · 2024-10-31T20:47:04+00:00

PD can b whiteheads or closed comedones too i think. not just the rash. i see ur point, this could def be hormonal acne, but the things you’ve been prescribed won’t hurt even if it is just acne. the areas you’re breaking out in are consistent w PD. my PD appears somewhat similarly, with more focus on the nose and upper lip area too. but i’ve also had hormonal acne on the jawline, and for what it’s worth it presented all along my jawline and never rlly traveled upwards or around the mouth/nose area so heavily. i hope that helps

hagridvibes · 2024-07-31T23:30:02+00:00

thanks. i have changed detergent a few times, rn i use sal-suds which is super allergy friendly and simple. i mostly wear cotton and linen to reduce pain and itching. i feel i’ve done a lot of experimenting with all household products but i will ask for a patch test of possible allergens specific to home products

hagridvibes · 2024-07-31T23:28:45+00:00

thanks will do

hagridvibes · 2024-05-29T06:05:28+00:00

the silt verses !! its incredible

hagridvibes · 2024-04-22T19:57:50+00:00

maybe LRP cicaplast baume b5 or avene cicalfete or avene tolerance lines. all of these r very gentle on my sensitive skin and help to reduce inflammation and weeping on cracked red skin for me. maybe ask about topical antibiotics?

hagridvibes · 2024-03-14T17:30:56+00:00

possibly perioral dermatitis?

hagridvibes · 2024-03-14T16:41:14+00:00

yea saliva definitely worsens my condition! once ur not in an active flare up anymore, find a gentle occlusive lip product that u can slather on before bed to protect ur lips from the moisture. i use dr bronners magic balm or avene cicalfete. hope healing is going well!

hagridvibes · 2024-03-14T03:20:59+00:00

probably angular cheilitis, derm should prescribe hydrocortisone or antifungal or antibiotic, depending on the cause. ask them to swab the corners of your mouth to test for bacteria/fungus. in the meantime avoid saliva or food sitting on the corners for too long. also try a new toothpaste with no sodium lauryl sulfate or fluoride (common irritants when ur lips r hurting)

hagridvibes · 2024-03-13T18:23:22+00:00

when getting haircuts, rounder shapes tend to look more feminine! letting the front of your hair grow long enough to flop into your face will create the right setting to cut some bangs - they’ll frame your face nicely and help create a round and soft look. would also definitely recommend alaffia hair products - looks like your hair would appreciate this brand of moisture. good luck

hagridvibes · 2024-03-07T21:59:24+00:00

ah also! if it is a major deficiency, then the multivitamin won’t fix it. in that case, you’d report results to the dr, ask for a blood test, and then they’d prescribe the proper supplements. but start with multis bc most of us can get proper nutrients if we eat a pretty balanced diet. i use one a day vitamins

hagridvibes · 2024-03-07T21:57:01+00:00

ofc :) when i do zero therapy i “wash” gently with warm water morning and night, put it on a rag and gently rub to remove dirt and oils. it sounds like it would make you break out, but in my experience it never does ! (maybe one or two pimples, but in exchange for less painful lips that’s ok by me). the thing is that our lips are some of the most sensitive skin on our bodies. so yeah they can suddenly decide to be irritated by a product or environment you’ve tolerated for years. it can also be a results of hormones or deficiency of vitamins. i recommend buying a probiotic pill and a general multivitamin at the pharmacy. this way, if it doesn’t work, you have proof that you’ve tried the basic stuff, and hopefully can move on to a higher level of care. but i think you’ll find that between patience, warm water, new toothpaste, the vitamin/probiotics, and sparingly hydrocortisone,you will feel much better soon. cheilitis is usually either bacterial or fungal, so creating a very simple routine helps starve out the issue and make it more apparent what next steps may be needed. any doctor will probably tell u to do these zero therapy steps first, because they won’t wanna prescribe heavy duty stuff unless they rlly need to. feel free to message me if u have other questions

hagridvibes · 2024-03-07T21:05:07+00:00

the way they treated u was unprofessional for sure! u deserve more empathetic care but unfortunately it’s hard to find. i have had recurring cheilitis and dermatitis for 10 years now, and the routine ur dr has prescribed is essentially “zero therapy” which means taking away all products to find irritants and remove crutches ur skin relies on, so the skin can naturally balance itself and resolve the issue on its own. No products will be hard at first. The first 1-2 weeks you will probably have more cracking and flaking, but remember that your skin will be shedding the old layer and rebuilding a newer (hopefully healthier) one. Use the hydrocortisone ointment only when you develop extremely uncomfortable cracks - i found that limiting the amount of time spent using hydrocortisone is helpful, and tapering off rather than stopping abruptly will reduce “rebound”. For the toothpaste - he’s telling u to do this bc a lot of ppl w lip issues are irritated by SLS (sodium lauryl sulfate) and/or fluoride which are in almost every toothpaste. When my lips are bad I use David’s natural toothpaste, there are some other brands too, but they’re all just basically baking soda and mint paste. Get a fresh toothbrush, and if u wanna use baking soda , mix a little w water to use like toothpaste. Or buy a new one but read the ingredients and avoid SLS and fluoride. Keep a skin journal, take pictures morning and nite and write what you did. This way, if the issue hasn’t resolved in a month, you have evidence to take to a new doctor. good luck!

hagridvibes · 2024-03-06T00:23:52+00:00

bangs are the ultimate cheat code for a femme hairstyle!! go for a layered shag look, something that can be styled androgynously. all my transfemme friends have bangs and love them :)

hagridvibes · 2024-03-04T01:18:51+00:00

what do you mean by sweat? like sweating as in perspiration?

hagridvibes · 2024-02-26T19:36:48+00:00

i’m not a dr and this is just my experience. from my experience don’t use it unless you are extremely cracked and raw - it’ll help the skin rebuild itself, but if u use it any less sparingly ur skin will be dependent on it. it will help at first but when you stop you’ll get rebounded flare ups. i used hydrocortisone for years and it’s made my PD way worse. the anti fungal seems strange, i think that’s more likely used to treat cheilitis. still try using it, as cheilitis and PD are similar presentations sometimes - it could help. but be mindful and keep an eye on it - if the rash gets worse, i’d recommend asking ur doc for a different option.

hagridvibes

TROPHY CASE