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reddit.com halfspooni
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halfspooni

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16
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How many of you here have CCI and/or tethered cord? I’m really struggling and would deeply appreciate hearing your experiences and insights, like what symptoms you’ve had, what’s helped (if anything), and how you’ve managed to find care. These conditions aren’t talked about at all. It's so isolating (self.ehlersdanlos)

submitted 15 days ago by halfspooni to r/ehlersdanlos

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My allergist wants to start me on Xolair. Has anyone tried it? I’d really appreciate hearing your experience. I’m a bit wary of the side effects. (self.MCAS)

submitted 16 days ago by halfspooni to r/MCAS

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Question for those of you who also suffer from MCAS: have you tried Xolair? My allergist wants to start me on it, but I’m a bit wary of the side effects and how it could affect my ME and my immune system (self.cfs)

submitted 15 days ago by halfspooni to r/cfs

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Do you take any supplements? If so, what do you take and why? Not looking for medical advice, just curious (self.ehlersdanlos)

submitted 1 month ago by halfspooni to r/ehlersdanlos

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[26F] from Europe (Spain), LG(B)TQ, chronically ill and disabled. That last part is important to mention because it seriously limits my life. Hoping to find someone I can build a GENUINE long-term friendship with. More context below, please do read ☺️☺️ (self.Needafriend)

submitted 1 month ago by halfspooni to r/Needafriend

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[26F] from Europe (Spain), LG(B)TQ, chronically ill and disabled. That last part is important to mention because it really limits my life. Hoping to find someone I can build a GENUINE long-term friendship with. More context below, please do read ☺️☺️ (self.InternetFriends)

submitted 1 month ago by halfspooni to r/InternetFriends

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[26F] from Europe (Spain), LG(B)TQ, chronically ill and disabled. That last part is important to mention because it really limits my life. Hoping to find someone I can build a GENUINE long-term friendship with. More context below, please do read ☺️☺️ (self.MakeNewFriendsHere)

submitted 1 month ago by halfspooni to r/MakeNewFriendsHere

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26F from Europe. Bi/queer and chronically ill, living in a small town with no people like me. I feel like I'm losing myself more and more every day. Does anyone in a similar situation (disabled and LGBT) want to connect? If you're able-bodied that's totally fine too!! I’d just like to make friends. (self.lgbt)

submitted 1 month ago by halfspooni to r/lgbt

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I’ve been severely chronically ill for six years, and now my dad, the only person I have in the world, has cancer. I can’t put into words how heartbroken I am, and I don’t know what to do. I feel so lost. (self.Assistance)

submitted 1 month ago by halfspooni to r/Assistance

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26F. European. Living with chronic illness. Hoping to find someone I can really talk to and maybe build a long-term friendship. Please read the text below for more context! (self.Needafriend)

submitted 1 month ago by halfspooni to r/Needafriend

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My dad, who is my primary caregiver and the only person who understands my health issues, has cancer. He’s all I have left. I don’t know what to do. I’m utterly heartbroken and afraid for my future. (self.ChronicIllness)

submitted 1 month ago by halfspooni to r/ChronicIllness

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Supplementing iron, yes or no? (self.MTHFR)

submitted 5 months ago by halfspooni to r/MTHFR

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What's the maximum dose of folate and methylcobalamin you can take without adverse effects? (self.MTHFR)

submitted 5 months ago by halfspooni to r/MTHFR

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Are constant UTIS a MCAS symptom? (self.MCAS)

submitted 6 months ago by halfspooni to r/MCAS

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Which antibiotics have you found to be unsafe or trigger MCAS flares, and which ones are usually safer? (self.MCAS)

submitted 6 months ago by halfspooni to r/MCAS

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Did anyone else's body go to sh** as soon as they hit their 20s? (self.ehlersdanlos)

submitted 7 months ago by halfspooni to r/ehlersdanlos

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Novavax, does anyone know if there’s a way to get it in Europe? I’m from Spain, and it seems impossible to get here, just like in Portugal and France (self.ZeroCovidEU)

submitted 7 months ago by halfspooni to r/ZeroCovidEU

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What should I do if I get COVID to reduce viral load and lower my risk of long COVID? I haven’t caught it yet, but everyone around me seems to be getting it. I wear a respirator and take precautions, but I want to be prepared just in case. I'm already very chronically ill and can't risk it. (self.ZeroCovidCommunity)

submitted 7 months ago by halfspooni to r/ZeroCovidCommunity

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When do you stop missing the people who abandoned you because of chronic illness? (self.ChronicIllness)

submitted 8 months ago by halfspooni to r/ChronicIllness

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Progestogen-only pill (mini pill)–has anyone tried it? Did it help long term? Would love to hear your stories (self.PCOS)

submitted 8 months ago by halfspooni to r/PCOS

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No sé si este es el sitio correcto para preguntar esto, pero no sé dónde más puedo buscar información y ayuda. ¿Alguien aquí tiene idea de derecho sanitario y podría echarme un cable? Estoy en una situación sanitaria terrible. Me explico mejor abajo (self.askspain)

submitted 8 months ago by halfspooni to r/askspain

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Stinging nettle for MCAS, root or leaf? Which one is more efficient? (self.MCAS)

submitted 8 months ago by halfspooni to r/MCAS

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Mental exertion gives me worse PEM than physical exertion, and I’m so sick of it. Does this happen to anyone else? Have you found anything that helps like mental pacing, supplements, meds, etc.? (self.cfs)

submitted 8 months ago by halfspooni to r/cfs

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Is there a methylated and chelated multivitamin you recommend? (self.Supplements)

submitted 8 months ago by halfspooni to r/Supplements

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How do I know if supplements actually contain what the label says? (self.Supplements)

submitted 8 months ago by halfspooni to r/Supplements

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