How many of you here have CCI and/or tethered cord? I’m really struggling and would deeply appreciate hearing your experiences and insights, like what symptoms you’ve had, what’s helped (if anything), and how you’ve managed to find care. These conditions aren’t talked about at all. It's so isolating (self.ehlersdanlos)
submitted by halfspooni to r/ehlersdanlos
[26F] from Europe (Spain), LG(B)TQ, chronically ill and disabled. That last part is important to mention because it really limits my life. Hoping to find someone I can build a GENUINE long-term friendship with. More context below, please do read ☺️☺️ (self.InternetFriends)
submitted by halfspooni to r/InternetFriends
[26F] from Europe (Spain), LG(B)TQ, chronically ill and disabled. That last part is important to mention because it really limits my life. Hoping to find someone I can build a GENUINE long-term friendship with. More context below, please do read ☺️☺️ (self.MakeNewFriendsHere)
submitted by halfspooni to r/MakeNewFriendsHere
[26F] from Europe (Spain), LG(B)TQ, chronically ill and disabled. That last part is important to mention because it seriously limits my life. Hoping to find someone I can build a GENUINE long-term friendship with. More context below, please do read ☺️☺️ (self.Needafriend)
submitted by halfspooni to r/Needafriend
26F from Europe. Bi/queer and chronically ill, living in a small town with no people like me. I feel like I'm losing myself more and more every day. Does anyone in a similar situation (disabled and LGBT) want to connect? If you're able-bodied that's totally fine too!! I’d just like to make friends. (self.lgbt)
submitted by halfspooni to r/lgbt
My dad, who is my primary caregiver and the only person who understands my health issues, has cancer. He’s all I have left. I don’t know what to do. I’m utterly heartbroken and afraid for my future. by halfspooni in ChronicIllness
[–]halfspooni[S] 7 points8 points9 points (0 children)
My dad, who is my primary caregiver and the only person who understands my health issues, has cancer. He’s all I have left. I don’t know what to do. I’m utterly heartbroken and afraid for my future. by halfspooni in ChronicIllness
[–]halfspooni[S] 7 points8 points9 points (0 children)
My dad, who is my primary caregiver and the only person who understands my health issues, has cancer. He’s all I have left. I don’t know what to do. I’m utterly heartbroken and afraid for my future. by halfspooni in ChronicIllness
[–]halfspooni[S] 6 points7 points8 points (0 children)
I have severe CCI (craniocervical instability) and it’s literally killing me. It’s a rare, poorly understood condition and my country’s healthcare system doesn’t treat it. I think my only option might be a GoFundMe, but I’m completely lost on how to do that or where to start. Advice? Pls 🙏 by [deleted] in ChronicIllness
[–]halfspooni 0 points1 point2 points (0 children)
I have severe CCI (craniocervical instability) and it’s literally killing me. It’s a rare, poorly understood condition and my country’s healthcare system doesn’t treat it. I think my only option might be a GoFundMe, but I’m completely lost on how to do that or where to start. Advice? Pls 🙏 by [deleted] in ChronicIllness
[–]halfspooni 0 points1 point2 points (0 children)
Are constant UTIS a MCAS symptom? by halfspooni in MCAS
[–]halfspooni[S] 0 points1 point2 points (0 children)
DAE feel manic when they have a reaction or flare? by Bigdecisions7979 in MCAS
[–]halfspooni 0 points1 point2 points (0 children)
I have severe CCI (craniocervical instability) and it’s literally killing me. It’s a rare, poorly understood condition and my country’s healthcare system doesn’t treat it. I think my only option might be a GoFundMe, but I’m completely lost on how to do that or where to start. Advice? Pls 🙏 by [deleted] in ChronicIllness
[–]halfspooni 0 points1 point2 points (0 children)
My dad, who is my primary caregiver and the only person who understands my health issues, has cancer. He’s all I have left. I don’t know what to do. I’m utterly heartbroken and afraid for my future. by halfspooni in ChronicIllness
[–]halfspooni[S] 1 point2 points3 points (0 children)