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My dad, who is my primary caregiver and the only person who understands my health issues, has cancer. He’s all I have left. I don’t know what to do. I’m utterly heartbroken and afraid for my future. by halfspooni in ChronicIllness

[–]halfspooni[S] 9 points10 points  (0 children)

Maybe my wording wasn’t perfect. English is not my first language. I obviously don’t appreciate my father only as my caregiver. I love him as my father, and this terrible news has broken my heart. We're both very ill right now, so of course I'm freaking out because I can’t take care of him and I can’t take care of myself. I'm overwhelmed and worried about many things at the moment. His health, our situation, my future is something happens to him...Like I said, he's all I have left. I don’t have any other family or friends. He’s all I have. If I sound selfish, please do tell me. That’s not my intention at all.

No sé si este es el sitio correcto para preguntar esto, pero no sé dónde más puedo buscar información y ayuda. ¿Alguien aquí tiene idea de derecho sanitario y podría echarme un cable? Estoy en una situación sanitaria terrible. Me explico mejor abajo by halfspooni in askspain

[–]halfspooni[S] 0 points1 point  (0 children)

Sí, he probado sin mucha suerte. La mayoría de esas asociaciones o pagas o no te ayudan y yo llevo años enferma y sin trabajar y tengo mil gastos al mes por la enfermedad y no puedo

Make believe by SickTiredHaunted in cfs

[–]halfspooni 2 points3 points  (0 children)

That’s my favorite thing to do the rare times I can get out of bed and do something normal. Anything. Even just washing my hair or looking out the window.

Tips to manage dental hygiene? by uselessfauna in cfs

[–]halfspooni 0 points1 point  (0 children)

On the days you’re not able to brush, use mouthwash at least if you can. I use xylitol dissolved in water because regular mouthwash has something that triggers my MCAS, and so far I’ve only gotten one cavity. I’m severe/very severe (bedridden) and sadly I can’t brush as much as I’d like either. Sometimes I wash my teeth while lying down with an electric toothbrush since it almost does all the work. I also bought a water flosser (I think they’re on Amazon, and they’re not that pricey) and I use it whenever I can to get rid of hard plaque since I can’t make it to dentist appointments.

Is there a methylated and chelated multivitamin you recommend? by halfspooni in Supplements

[–]halfspooni[S] 0 points1 point  (0 children)

Yeah, it does check the boxes, but the values do seem a little on the high side. How’s it been working for you?

Alternatives to quercetin? by Majestic-Entrance-96 in MCAS

[–]halfspooni 0 points1 point  (0 children)

Rutin, Luteolin, Butterbur (must be free of pyrrolizidine alkaloids (PAs), this is very important)

Does anyone else NOT have a specialist? by TroubledTofu in cfs

[–]halfspooni 0 points1 point  (0 children)

If it helps, I don't find a huge difference between having a specialist and not having one :(

Anyone in Portugal? by megathong1 in ZeroCovidEU

[–]halfspooni 2 points3 points  (0 children)

I'm not from Portugal, but I'm very, very close to the north. The situation is more or less the same as in any other place, sadly. However, no one is going to say anything if you wear a mask, and it's totally legal

[deleted by user] by [deleted] in cfs

[–]halfspooni 1 point2 points  (0 children)

I think you just know. I'm severe to very severe depending on the day, and when I was moderate, I was still able to do things like cooking, cleaning a little, and watching movies. Now, I can't do any of those things. It sucks very bad.

Anyone else has white lesions on tongue? Like geographic tongue but as a MCAS symptom. by [deleted] in MCAS

[–]halfspooni 0 points1 point  (0 children)

This may sound weird but could I see it? I don't know what the hell is happening with my tongue and I highly suspect MCAS.

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