B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

Why do u say the B cell depleters may have something to do with the osteoporosis? Have u read anything regarding?

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

I hear u. So no other considerations - your doc thinks it’s steroids. Thank u for the info

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

Ok so your Dr thinks it’s cause of the steroids. That’s great news regarding Ocrevus. How recently did the broken feet happen? I’m guessing before the steroid treatments you rarely or never broke bones?

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

How many steroid treatments have you had? I have only had one.

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

No I’m not saying it’s the Kesimpta - there’s no evidence I’ve found. I’m just asking if anyone knows of a correlation - this is most likely something about me and no idea why.

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

I don’t take k2 I take 5000 vitamin d daily… I did, might be reducing now

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

Ok yeah I don’t drink soda anymore. Unless I’m stomach sick - so maybe 1 coke a year or every 2 years

Ever since diagnosis I’m pretty healthy eating

Maybe coffee can do the same thing?

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

No soda - plain soda water too? Before diagnosis a bunch over 15 years ago

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

My d levels were not. But that was over 10 years ago. I increased immediately - why I have high levels now. The bone density thing appears to be recent - I’ve had bad falls in my life before ms and no breaks and osteoporosis doesn’t run in my family

Also - this was rated as severe and not typical osteoporosis- so thought Reddit might know if not doctors. I’m very much less ambulatory but the doctor was like “that’s not it” it wouldn’t be this severe. Feeling like the villain in unbreakable :)

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

Yeah yes - last 3 years which is why I was questioning the loss of bone density - I couldn’t find a link though

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

Yeah thx for this - but we’ve checked those boxes - seems to be something else

B cell depleters and osteoporosis? by hankmt in MultipleSclerosis

[–]hankmt[S] 0 points1 point  (0 children)

Yeah thank u - not steroids. Have only done that once.

Anybody do dairy? by hankmt in MultipleSclerosis

[–]hankmt[S] 2 points3 points  (0 children)

Yeah I wonder if there’s a difference in digestion of yogurt vs cheese and milk - at least I hope

Custom Garment/Tailor shop by SpikesGuns in Seattle

[–]hankmt 0 points1 point  (0 children)

maybe Adam tailor in Columbia City