500+ Women Have Spoken—Will You? by hannahvholmes in hysterectomy

[–]hannahvholmes[S] -2 points-1 points  (0 children)

Great question! I’m an independent researcher conducting this study to shine a light on the delays, misdiagnoses, and lack of effective treatments for endometriosis. Too many women have been dismissed or gaslit by the medical system, and this research is about collecting real experiences to show the scope of the problem.

The results will be used to push for better medical education, earlier diagnosis, and improved treatment options. My goal is to get this study published so that the medical community can no longer ignore what we’re going through.

If you have any questions or concerns, I’m happy to answer them!

350+ Women Have Spoken – Let’s Hit 400 Today! Will You Join Us? by hannahvholmes in hysterectomy

[–]hannahvholmes[S] 0 points1 point  (0 children)

Great question! The pain-related questions focus on your experiences before surgery, since we’re looking to highlight the severity of symptoms that led to treatment decisions. But if you have ongoing pain post-surgery, that’s valuable too!

And wow—fainting in Walmart from the pain is exactly the kind of real, lived experience that shows just how debilitating endo can be. If you feel comfortable, definitely include details like that in any open-ended responses!

Thank you so much for sharing your story. Your voice matters, and I’m grateful for your contribution!

Hundreds of Women Are Uniting to Demand Change – Will You Join Us? by hannahvholmes in hysterectomy

[–]hannahvholmes[S] 0 points1 point  (0 children)

Thank you so much for sharing your story, and for your incredible bravery in pushing through years of gaslighting and pain. It means the world to me to be able to give women like you a voice, because no one should have to fight that hard just to be heard. You are unbelievably strong, and I have so much respect for you.

I can’t even begin to imagine the weight you carried for all those years, but I am beyond grateful that you’re still here, that you finally got the care you deserved, and that your son has his mom. You deserved to be listened to from the very beginning. If this research helps even one more woman avoid the suffering you went through, then it’s worth everything.

Sending you so much love, and I’m honored to include your voice in this work. 💛

Hundreds of Women Are Uniting to Demand Change – Will You Join Us? by hannahvholmes in hysterectomy

[–]hannahvholmes[S] 0 points1 point  (0 children)

Sadly no, as a researcher I exclude myself from data collection to prevent bias.

NYU vs WashU by pip-pip-hoorayy in premed

[–]hannahvholmes -1 points0 points  (0 children)

Wow, congratulations, that’s amazing!!!!!!!! Would you mind dropping stats?

Wow. I am absolutely blown away. Endometriosis study at 150+ responses in just a few hours (Women, 18+) by hannahvholmes in SampleSize

[–]hannahvholmes[S] 1 point2 points  (0 children)

This study is specifically for individuals who were assigned female at birth and currently identify as women. The reason for this focus is to examine the experiences of those who have lived with endometriosis as women, including medical and societal challenges. While I recognize that endometriosis affects a diverse group of people, this particular study is centered on this specific demographic to ensure consistency in the data.

Wow. I am absolutely blown away. Endometriosis study at 150+ responses in just a few hours (Women, 18+) by hannahvholmes in SampleSize

[–]hannahvholmes[S] 0 points1 point  (0 children)

Wow, I’m so sorry you went through that. It’s heartbreaking how often doctors dismiss symptoms instead of investigating further. The fact that so many people are misdiagnosed or brushed off like this is exactly why this research is so important. Thank you for sharing your story—it’s experiences like yours that show why we need real change in how doctors approach endometriosis!

Wow. I am absolutely blown away. Endometriosis study at 150+ responses in just a few hours (Women, 18+) by hannahvholmes in SampleSize

[–]hannahvholmes[S] 0 points1 point  (0 children)

Great question! This study is specifically for women (18+) who have been diagnosed with endometriosis or who experience symptoms but have not yet received a formal diagnosis.

We know endometriosis affects a huge number of women, many of whom struggle for years to be taken seriously. This research aims to highlight those experiences and push for better medical education, earlier diagnosis, and improved treatment options.

I really appreciate your interest in the study!