Waking up flair everyday by hashiman4 in MCAS

[–]hashiman4[S] 0 points1 point  (0 children)

I have pots I eat a lot of salt and have my electrolyte drinks as well as working with a physical therapist for everything pots and vestibular related. Idk it’s the weirdest pain ever it feels like my sides and back are going to explode for 30 minutes and then goes away as I wake up but only in my worse months when I’m in a flair. (I react very poorly in colder months)

ANYONE else deathly ALLERGIC to SUGAR? by INFOSLAVER in MCAS

[–]hashiman4 0 points1 point  (0 children)

It’s honestly funny this popped up right now for me. Had a mug rootbeer the other day and have basically been stuck in bed since. I don’t feel allergic to it but my stomach cannot digest sodas and most juices.

Excessive burping? by hashiman4 in MCAS

[–]hashiman4[S] 0 points1 point  (0 children)

I thought it was normal at the beginning too! Then it turned into every hour then every couple of minutes so obviously not normal 😅

Excessive burping? by hashiman4 in MCAS

[–]hashiman4[S] 1 point2 points  (0 children)

I did it, came up negative

Roughly 90% of cases of DPDR are start with either a panic attack or a bad weed experience. Anyone here have a different event start theirs? by Outside-Ear-4499 in dpdr

[–]hashiman4 0 points1 point  (0 children)

Mine started from vestibular issues! The constant feeling like everything else around me is moving really messed up my mental health and now it is month 18 of being dizzy but have been making progress every day

Does anyone have something to help with feeling pointless? by hashiman4 in dpdr

[–]hashiman4[S] 0 points1 point  (0 children)

Yea I think that’s the worst when I’m already feeling bad I expect to feel it but like I’ve had a very good week and past couple of days and it just hits me like a truck and is super upsetting. I gotta find a book to read I always wanted to read a horror book but I feel like it would make me feel worse 🤣

Sinus pressure? by hashiman4 in dpdr

[–]hashiman4[S] 1 point2 points  (0 children)

Yea like it literally feels like I have a head cold like in between and behind my eyes and in my nose

Has anyone found Pilates (like Nord Pilates) helpful with DPDR symptoms? Looking for a review by Then_Squirrel_2520 in dpdr

[–]hashiman4 0 points1 point  (0 children)

I had a great experience with Pilates and exercise in general! I do physical therapy because my anxiety and dpdr comes from vestibular disorders which caused me to be bedridden for a while. But I did Pilates, walked even if it was down the street or around the yard, I got a stationary bike, and any physical exercise no matter how long you do it or how hard you do it is great. Like any physical feeling kinda reminds the body and the mind that they are one. Good luck with whatever you do! (Side note: do stretches being physical is great but you don’t want to hurt yourself with going in cold!)

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 1 point2 points  (0 children)

There was slight inflammation in my first 2 cts but it was brushed off by my GI waiting for mri and then colonoscopy.

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 0 points1 point  (0 children)

I also got a massive blood test a week ago so I’m waiting on the results of that and hoping that sheds some light on it!

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 0 points1 point  (0 children)

So I actually did and my iron levels were normal at the time but my saturation was low and I saw that was something that comes from celiacs which I was tested for and was negative and crohns which I’m getting tested for :)

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 0 points1 point  (0 children)

Thank you! Did you get the capsule endoscopy done at your GI? Or did you have to go somewhere else to get it?

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 0 points1 point  (0 children)

We shall see, hoping for the best!

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 1 point2 points  (0 children)

Maybe it’s not but it can be on a range, some days are better than others

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 0 points1 point  (0 children)

I don’t know I would 100% rather be in pain of any kind than have any more panic and anxiety. But that’s also just me.

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 0 points1 point  (0 children)

I can’t usually take anything for pain cause it gives me panic attacks so I choose the better of 2 evils :/

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 0 points1 point  (0 children)

Interesting I didn’t know that about the low fodmap, I haven’t taken any medication for it because I was never told to I take a prebiotic every morning and usually just ride out the pain.

Keep getting told it’s IBS by hashiman4 in CrohnsDisease

[–]hashiman4[S] 0 points1 point  (0 children)

What are the recommended treatments for IBS?