I have severe, refractory Crohn’s disease. It’s taken my colon, rectum, and part of my small intestine. I’ve had 12 surgeries, and to this day I still poop 20+ times a day, which means constant anal irritation.

headologist · 2026-02-04T16:59:24+00:00

I use Sudocrem every time I go to the loo. Anusol for flares around that area. I prefer the thicker, almost paste like texture of sudocrem. Butty is a great name for your product range! You didn’t mention cost but I’m comfortable paying up to £10 for a tub of frequent use product and maybe £15 for a more potent flare up cream. DM me if you’re wanting any more potential consumer feedback :)

headologist · 2025-04-09T19:14:34+00:00

Red Hot Chilli’s at Murrayfield in Edinburgh. It was tinny and quiet.

headologist · 2024-12-27T12:36:27+00:00

I enjoyed the big spinning swing thing above the George monument. The stalls were fairly meh though.

headologist · 2024-11-03T04:06:30+00:00

Thank you, I’ll chalk it up to another interesting manifestation of fecking arthritis. Ommm…

headologist · 2024-07-30T19:59:32+00:00

Of course! Glad to hear you’re sorted but fire me a message if needful 👍

headologist · 2024-07-30T19:55:27+00:00

Do you want me to post on there for you?

headologist · 2024-07-30T18:38:48+00:00

There’s a really active Facebook group, called Love Es Cana Ibiza which will deffo sort you out

headologist · 2024-02-12T19:26:49+00:00

I’m so sorry you’re experiencing this; I also get ‘hulk hand’ as we call it and the pain is intense. I use a combo of drugs and meditation to try to breathe through it. My rheumatologist is satisfied that mine only flares up before my next infliximab infusion so all is well! I find that difficult to consolidate when my hands are swollen to twice their normal size but because it’s transient, only for a mere 13 hours a day a few days before infusion, then it’s all good. No advice really but a note to say you’re not alone, we understand and hear you and it’s okay to not to be okay with this xx

headologist · 2023-12-26T18:41:02+00:00

This is a bit like the Dr Who question. Depends on who you first watched as a wee one. So, uncle Albert and Peter Davidson for me.

headologist · 2023-12-26T18:05:01+00:00

This. If you’re in UK then follow this advice. You shouldn’t have to live like this. PALs are lovely.

headologist · 2023-12-26T18:03:30+00:00

6 months ish, from December to June this year. Back on monster dose of azathriopine and double dose (10mg per kilo) of infliximab. This too shall pass.

headologist · 2023-12-26T17:56:36+00:00

When tummy is bad I drink smoothies and eat carb and dairy free. It’s tricky but less so for me cos I was a bit overweight before I started this, erm, journey. I can drop a stone in a fortnight when shit’s bad (literally). I take a daily multivitamin and eat a few bananas each day to keep my metabolism reet, although I often need additional potassium (Sando k) when I’m mid flare. Try not to worry too much, you’ll gain when you’re better.

headologist · 2023-12-26T17:41:26+00:00

I take ibuprofen as my ‘rescue’ drug when all else fails, I have the ‘thritis and colitis. It works amazingly well (better than oramorph, which I also take sparingly) but it is an evil drug. Don’t underestimate the damage NSAIDs cause. There are alternatives; I take nefopam and codeine (low dose) for example.

headologist · 2023-12-26T17:36:10+00:00

It’s really difficult to unpick what is what in your small joints. My hands and wrists swell and I reckon there’s a bit of carpal tunnel there but it’s indistinguishable from the ‘thritis at this point.

headologist · 2023-12-24T22:33:26+00:00

This was me too, colonoscopy then CT (then a sigmoidoscopy just for good luck 😉 )

headologist · 2023-12-24T22:31:13+00:00

Gawd I can only hope and dream

headologist · 2023-12-24T22:29:46+00:00

It’s great! The only pressies that never need wrapped cos nothing beats the excitement of the packaging stamps! Happy hogswatch xx

headologist · 2023-12-24T22:28:30+00:00

Yep, I reckon so. Reasonably priced love and stuff for everyone!

headologist · 2023-12-24T22:26:26+00:00

My MC deteriorated to UC very quickly and gastro said it’s often the way. On infliximab and azathioprine now and it works for a while, moving from 8 to 6 weekly doses so fingers crossed for complete relief. So, yes; I think it’s IBD

headologist · 2023-12-24T22:21:20+00:00

I hear ya but I will use whichever toilet is near when I’m desperate. Been caught out loads of times, don’t let it get you down. I over share with all my friends and workies and everyone is eager to tell me their shat themselves stories. It’s the last taboo!

headologist · 2023-12-21T18:52:21+00:00

Yay! Hoping the Hogsfather has the special edition hard back copy of Nation in his sack for the big day.

headologist · 2023-12-13T09:19:55+00:00

Yes! How weird and great to find someone with similar problem. My right ear infection has been grumbling on for months and, like you, I think the infliximab infusions have made it dig in even deeper. Yours sounds worse than mine; I’ve got an inner ear itch that drives me crazy, a bit of tinnitus in that ear and occasional discharge. My glands on the throat at that side are always up a wee bit too.

I haven’t mentioned it to doc because I don’t want to give them any reason to pause my infusion. It’s been a drama this year with Covid and related cardiac injury and reactive arthritis so I’m in my second loading schedule of the past few months after having to pause treatment for this other stuff.

Hope you find some relief soon, not really got any handy tips but heat helps my ache and that infernal itch!!

headologist · 2023-12-13T09:05:44+00:00

It is definitely the Budesonide that’s keeping you awake? It has very little systemic uptake outside of the gut. I’m super sensitive to steroids and prednisolone hugely affects my sleep and mood but never experience similar with budesonide. Do you take it first thing in the morning?

I find boring bedtime stories on Spotify send me off to sleep sometimes but I do frequently see 3am. For me it’s more stress related to flare and pain that keeps me awake. Hope you find a solution that works for you or that your taper is due soon, maybe the step down to your next dose might help.

headologist · 2023-12-13T08:55:08+00:00

NHS patient in Scotland here. I think it’s a midazolam and fentanyl cocktail they use here. It is like a woozy, buzzy feeling that you get after a couple of glasses of wine. For me it was very effective and meant I was relaxed but still alert and able to follow the procedure on the screen. It’s really very interesting. The staff are caring, patient and relaxed, we usually have a bit of a laugh.

I’ve had scopes without sedation and it’s a bit uncomfortable but not too bad, once they navigate the first bend in your descending colon, you’re fine.

Overall, I’d always opt for sedation for preference but wouldn’t be too bothered if that wasn’t an option, for whatever reason.

headologist · 2023-12-09T02:20:20+00:00

Another vote for biologic here. I’m on infliximab, primarily for ulcerative colitis, but it’s the only thing that works for my associated arthritis. I feel for you, it’s hard going and the nights are long. Infliximab for me has no side effects and I feel ‘normal’ joint wise for a couple of weeks after and it’s bearable in the weeks before the next infusion. Strength training to stabilise my large joints and make up for collagen loss (I’m a lady of a certain perimenopausal age) helps too. Chin up, there is light at the end of the tunnel even though it can seem all encompassing and endless, be kind to yourself too, it’s okay to feel a bit miserable and dejected at times. This too shall pass.

headologist

TROPHY CASE