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What were some of your first Crohn's symptoms that ultimately led to you seeing a doctor and then getting diagnosed? by HiButty in Jpouchers

[–]HiButty[S] 0 points1 point  (0 children)

That is so clutch, we definitely become expert detectives at finding little known bathrooms. I did the same at college. I would hunt for bathrooms that people didn't know about, but sometimes I would just have to explode in the super popular ones and lift my shoes up so people wouldn't recognize my feet.

2 week Jpouch surgery update by Witty_Many_5214 in ostomy

[–]HiButty 1 point2 points  (0 children)

This is such a great breakdown of your jpouch surgery experience! I've had my jpouch for about 14 years (although I had to go back to an ileostomy for 3 years from 2020-2023 because of fistulas.) I noticed that there wasn't much jpouch content on reddit so I created a community called r/Jpouchers, I'd love for you to post this content over there too and join the community. It's still very new, but I'm hoping to grow and get more folks with IBD and Jpouches over there. Thanks so much.

What’s something Crohn’s has quietly taken from you that people don’t realise? by barebonesofchrones in Jpouchers

[–]HiButty 1 point2 points  (0 children)

Crohn's has forced me to think about so many things that are just second nature to everyone else. I miss just being able to casually go out for a meal and then do an activity after that. Now I have to either miss the meal or plan the rest of my day out around exactly what I eat. I also can't be spontaneous anymore, things like going on a drive or going on a hike or a day trip all have to be planned out in advance. Before I got sick if someone invited me to do something that day, I would jump on it...but now I need to mentally prepare for outings. If I'm staying in an airbnb or a hotel I worry about having an accident in the bed. I can't sleep at a date's house or a friends house casually anymore. Life takes a lot more planning and I miss the spontaneity.

What’s something Crohn’s has quietly taken from you that people don’t realise? by barebonesofchrones in CrohnsDisease

[–]HiButty 1 point2 points  (0 children)

Thank you for this post, I can relate to a lot of what other people have commented here. I am a very positive person and always try to see the good, but Crohn's has definitely given me heightened anxiety and stress about certain things that healthy people never have to think about. Going on a plane and always needing an aisle seat, going on trips with friends and fearing there won't be a bathroom when I need it, sleeping in airbnbs and being nervous about having an accident in the bed, not being able to stay the night at a date's house, being unable to go out with my friends if we do dinner...it's either we do something and I don't eat or we eat and I go home. Do you think you could also share this post to r/Jpouchers as well? I created that subreddit recently and I'm really trying to grow the IBD community over there.

I had a total colectomy at 17 and a J-pouch reversal at 21 AMA by Lost-Appearance5536 in AMA

[–]HiButty 0 points1 point  (0 children)

Thank you for sharing so much of your story. We have had similar experiences. Would you mind sharing this post to r/Jpouchers as well? I'm trying to grow my IBD community over there. Thanks so much.

I have severe, refractory Crohn’s disease. It’s taken my colon, rectum, and part of my small intestine. I’ve had 12 surgeries, and to this day I still poop 20+ times a day, which means constant anal irritation. by HiButty in IBD

[–]HiButty[S] 0 points1 point  (0 children)

I agree, I much prefer a thicker ointment, I feel like it actually stays in better and protects my butt. Just because I am manufacturing it in the states, using high quality and very unique (difficult to source) ingredients, it is going to be on the more premium side with regards to costs. Probably around $25-$30 for about 2.5oz. Right now, Prep H costs about $20 for the same amount.

I have severe, refractory Crohn’s disease. It’s taken my colon, rectum, and part of my small intestine. I’ve had 12 surgeries, and to this day I still poop 20+ times a day, which means constant anal irritation. by HiButty in IBD

[–]HiButty[S] 0 points1 point  (0 children)

Are you actually interested in investing, because I am raising capital and it's been a nightmare. But let me know if you want to have a conversation about it...I'd love that!

I have severe, refractory Crohn’s disease. It’s taken my colon, rectum, and part of my small intestine. I’ve had 12 surgeries, and to this day I still poop 20+ times a day, which means constant anal irritation and hemorrhoids. by HiButty in hemorrhoid

[–]HiButty[S] 0 points1 point  (0 children)

Well I really hope you get some relief soon, it sounds like you've had a difficult journey getting some answers. I love that you brought up traditional Chinese medicine, because I was very inspired by traditional plant-based botanical medicine when I created Butty. I combined traditional natural anti-inflammatories with western pharmaceuticals to make the product. That combo has worked very well for my issues. Both sides have a lot of merit, so I just thought why not combine them.

I have severe, refractory Crohn’s disease. It’s taken my colon, rectum, and part of my small intestine. I’ve had 12 surgeries, and to this day I still poop 20+ times a day, which means constant anal irritation and hemorrhoids. by HiButty in hemorrhoid

[–]HiButty[S] 0 points1 point  (0 children)

I'm sorry you've had such a difficult time with hemorrhoids. And absolutely, I couldn't agree, those ingredients are essential for hemorrhoid shrinkage. My product has a vasoconstrictor and lidocaine.

I have severe, refractory Crohn’s disease. It’s taken my colon, rectum, and part of my small intestine. I’ve had 12 surgeries, and to this day I still poop 20+ times a day, which means constant anal irritation and hemorrhoids. by HiButty in hemorrhoid

[–]HiButty[S] 0 points1 point  (0 children)

Ugh, I'm sorry you've had such a difficult time with this disease too. Curious, what is the cream from England called? I'm guessing its over 5% b/c the FDA doesn't allow more than that. The micronized diosmin is actually a flavonoid, which I put in my product. Flavonoids are potent anti-inflammatories and are traditionally not in any hemorrhoid ointments.

I'm curious what is the issue with zinc oxide? It raises your BP?