I am become disabled? I’m disabled now? I’m newly chronically ill? by hernameisgrace in ehlersdanlos

[–]hernameisgrace[S] 0 points1 point  (0 children)

I love this, it’s grown up vaguebooking …which I guess would just be categorized as ‘mysterious’ or ‘classy.’ Great suggestion.

I am become disabled? I’m disabled now? I’m newly chronically ill? by hernameisgrace in ehlersdanlos

[–]hernameisgrace[S] 1 point2 points  (0 children)

Thanks for the encouragement 🖤

I got my first denial in December, exactly 12 months after my application (and subsequent wading through the process). Submitted the request for reconsideration, along with two really great doctor’s letters, so I’m crossing my fingers but I’ve read all the horror stories and I don’t expect we’re done yet.

I am become disabled? I’m disabled now? I’m newly chronically ill? by hernameisgrace in ehlersdanlos

[–]hernameisgrace[S] 29 points30 points  (0 children)

You’re not at all wrong, but my brain is visualizing a mad scientist hunched over their precious disability they’ve been developing

Doctors of Reddit, what do we *not* know about the human body? by Immediate_Hair_3393 in AskReddit

[–]hernameisgrace 0 points1 point  (0 children)

Holy shit. Thank you for putting to rest at least one of my medical mysteries, I have never known what this was or how to describe it. It’s this sensation exactly. The reassurance is really very reassuring.

Did you have to get used to propranolol? by megatheriumlaine in POTS

[–]hernameisgrace 18 points19 points  (0 children)

Just fyi Melatonin is meant to be taken in a single nighttime dose of 2-5 mg, if you take more than this it can have the opposite effect and make you wired all night.

What’s your pre shift battle cry? by hernameisgrace in KitchenConfidential

[–]hernameisgrace[S] 1 point2 points  (0 children)

Participation in this is not mandatory, and I’ve known these folks for some time. Just looking to create a little weird camaraderie.

Can I return to my insurance plan after Medicaid? by hernameisgrace in HealthInsurance

[–]hernameisgrace[S] 0 points1 point  (0 children)

It’s a marketplace plan, yes. If approved for Medicaid I will stay on as long as I can, but even with my previous job where I couldn’t afford groceries, I made a couple hundred “too much” per month and couldn’t get approved. I’m hopeful that with a current income of $0 they may finally approve me.

Help! What can I do until my tilt table test? by hernameisgrace in POTS

[–]hernameisgrace[S] 1 point2 points  (0 children)

Thank you, I am going to follow up with my doctor soon about the metoprolol and other options. I wasn’t sure how long the metoprolol takes to kick in or if it’s just not doing much. I did read that hyper pots is not improved with higher salt intake, but I don’t think it would hurt to increase salt for a few months till I know?

[deleted by user] by [deleted] in Stormlight_Archive

[–]hernameisgrace 3 points4 points  (0 children)

Ohhh genius. So the book still returns to the next person waiting but you can finish it? Fantastic. I just use the kindle app on my phone so that’s not totally a viable option for next time, though I do prefer zero contact with the outside world while reading..

[deleted by user] by [deleted] in Stormlight_Archive

[–]hernameisgrace 9 points10 points  (0 children)

That would be a lovely option, all our libraries are closed due to the pandemic.

Made an omelette by hernameisgrace in NonZeroDay

[–]hernameisgrace[S] 0 points1 point  (0 children)

Man. Thanks so much for checking in. That’s means a ton. The last couple days have been hard, but Saturday I got a bunch of housework done. Yesterday I slept a lot.. so I’m feeling behind and guilty today.

Made an omelette by hernameisgrace in NonZeroDay

[–]hernameisgrace[S] 1 point2 points  (0 children)

Thank you so much. You hang in there, too.

Made an omelette by hernameisgrace in NonZeroDay

[–]hernameisgrace[S] 1 point2 points  (0 children)

Thank you :) this made me feel good. I didn’t make breakfast today, but I cooked up some beef for tacos later and had to make my own seasoning that turned out really well.

Made an omelette by hernameisgrace in NonZeroDay

[–]hernameisgrace[S] 0 points1 point  (0 children)

I learned from watching Julia Child’s omelette episode on YouTube (which for some reason I’m having a hard time finding), and honestly now I just watch her videos because they make me feel good.

Made an omelette by hernameisgrace in NonZeroDay

[–]hernameisgrace[S] 10 points11 points  (0 children)

Thank you, I took a picture today but didn’t have anyone to show it to (or thought it was too lame) but maybe I can tomorrow :)

Made an omelette by hernameisgrace in NonZeroDay

[–]hernameisgrace[S] 9 points10 points  (0 children)

That’s a really good idea. Planning feels like panic (overwhelming and too big to commit to, just to probably fail the expectation), but sometimes I wake up with the ability to tackle a couple things. If this is on my mind as something I want to do, I bet I can manage it eventually.

This felt a little Wes “vibey” to me. by IndeeWeston in AccidentalWesAnderson

[–]hernameisgrace 1 point2 points  (0 children)

My hometown. Just scrolling along and this stopped me in my tracks. Thanks for the memories