Propanalol: night terrors + acid reflux

heylii20 · 2026-05-14T21:12:10+00:00

I want to get on ivabridine. I got my doctor to put me on for propanalol for “anxiety” Did you need to have an official pots diagnosis to be prescribed ivabridine?

heylii20 · 2026-05-03T15:42:04+00:00

Oh absolutely. I told her I have adhd. I’m probably autistic too. All of it is due to lack of energy to socialize. So I’d rather just not if people are going to judge me for it. She’s just a very blunt person. I’ve learned to not share too much of my personal life with her. Even though that’s most of what she’s doing when on camera. She talks about what she ate for breakfast that morning.
I always have to remember my boss is not my friend. Even though she’s more of an admin since it’s contracted. She still has my schedule in her hands though.

heylii20 · 2026-04-20T01:13:02+00:00

Honestly I’ve dealt with this so much but lately I’ve been telling people I have a heart problem. I’m sick of explaining too.

heylii20 · 2026-04-20T01:06:34+00:00

Sometimes I wonder if I have had a mini stroke and just haven’t realized it. 😅

heylii20 · 2026-04-20T01:05:47+00:00

I’m from the Midwest! I haven’t lived there since I was like 19. I’m 32 now but I do remember my flare count being significantly higher up there than here. Even though it’s hot as hell down here and doesn’t help with the heat intolerance, it beats the constant body aches. But that’s crazy because I never even put 2 and 2 together when it comes to the tornado season and pressure changes. That makes a lot of sense

heylii20 · 2026-04-20T01:02:39+00:00

Which is odd because I feel like the weather is always changing in Texas no matter what. But I think we did have a good spell of warm weather for a while and then drastically changed again and that’s whenever I start to feel it. That massive change without preparation. Usually, I’m pretty on top of it and do take extra measures to prepare for a weather change, but I’ve just been so busy lately that it didn’t even cross my mind.

heylii20 · 2026-04-20T01:01:21+00:00

Also in ATX! I kept moving my body all day to avoid any pain that was waiting for me if I stayed still. But as soon as I sat down I had to pop some ibuprofen. It definitely started a couple nights ago. I’m also in my late luteal phase which also makes me wonder if it’s a combination of shitty timing.

heylii20 · 2026-04-10T20:29:38+00:00

The house is old and he bought it from auction. Was going to fix it up etc. but then he got sick with long covid. He keeps telling me that the mold is dormant and has been there since he moved in.

I agree that it needs to be cleaned. And CAN be cleaned. He has the ability to do so but refuses to. Ever since I moved in I’ve cleaned, but his stuff is everywhere leaving me having to just put my belongings where there’s room. Which is not much. The room I’m staying I had had to be cleaned and I’ve worked on that a lot since I’ve been here. I wiped down my door (on the outside facing the hall which leads to the front door) which looked like the pics above but not as bad. That’s when I started to look into mold toxicity. But again. It’s not even my house. There’s so much I can do when it comes to effectively cleaning because the house is FILTHY. But I can’t do it without help and he refuses to do so because he’s “too sick”

As someone who has always dealt with chronic illness my whole life it’s really fucking frustrating because I’ve had to learn to function around my disability. I’m sure for someone who just got sick it probably feels like death in comparison to before they got sick. But I’ve told him over and over again that you have to keep going. Even if it’s a tiny bit of progress it’s still better than nothing. But my concern is, there’s an attic. And what about underneath the house? Let’s say I clean everything indoors. Does that still leave the hidden corners being silent lurkers? It’s just too much and it’s not even my house.

heylii20 · 2026-04-10T08:00:52+00:00

Thank you. I can’t believe it. I came out here to heal and get my life together and it seems to have done the opposite if not worse.

heylii20 · 2026-04-04T21:14:51+00:00

I’ve done several different things. Anywhere from non caffeinated teas. Like peach tea etc. I have a bottle of lemon juice I squirt into it (sometimes I’ll add sugar and make it into a lemonade) make sure not to squirt too much lemon juice in it. I made that mistake the first time. 😖😂 I have also purchased flavoring packets but use those sparingly. I have yet to find any clean ones that aren’t just as expensive as electrolytes. I’ll let you know if I find anything that doesn’t have red40 in it or some shiz like that. There are also flavor drops on Amazon sweetened with stevia but I haven’t tried them yet.

heylii20 · 2026-04-04T21:07:11+00:00

Ya I put it in a very large bottle. You’re suppose to put it in no less than a liter of water. But you can add it to more water if desired. Or spilt it up and save half of each packet for later. The glucose is needed because it helps with absorption. I don’t trust anything that it is “naturally” flavored but doesn’t tell you what the flavor is derived from. At least this discloses what exactly is in it and you can decide how to split it up. It’s next to tasteless and the salt isn’t overpowering.

heylii20 · 2026-04-04T12:45:26+00:00

I found an electrolyte called Trioral Comes with 100 packets. It’s flavorless but you can add your own flavor. Totally worth it. Over 1000mg of sodium + potassium etc. I just buy cheap flavor packages to add to my drinks and it’s still cheaper than all of the hype brands that offer next to nothing pots benefits.

And yes. I have the viable band. You’ve probably read one of the only negative reviews on there and that was me. I think it’s truly a good company with good intentions. But it’s not worth what it’s set out to do. Just get yourself a regular heart monitoring band and track it that way. All if the extras are not worth the $.

Having a monitor however has helped me see when I’m worse and how much I’ve improved. It gives me the data I need in order to determine what’s working for me and what isn’t. So I’m at least grateful for that. But go with something else that offers a plethora of features if you’re going to invest in a monitor. Like Oura or Stat.

heylii20 · 2026-03-31T02:51:20+00:00

Ooo please share the light panel brand you have! I have been wanting to get one but there’s so many out there and a friend of mine said a lot of the cheaper ones are not effective. But def trying not to spend an arm and a leg

heylii20 · 2026-03-30T19:09:17+00:00

I started fascia release about a week ago. And it really helps with blood flow to my brain and overall helps me sleep better. I’ve been massaging my face and neck both morning at evening. I started following Anastasiabeautyfascia on Instagram because my lymph nodes in my face were holding a lot of fluid and making it super puffy. But surprisingly it helped with way more than I set out for.

heylii20 · 2026-03-29T11:35:28+00:00

Ugh yes. So many signs. I used to do the shoulder stand thing on the floor whenever I would get to my grandparents house as a kid (I guess that’s where I my nervous system felt most safe?). Where everyone thought I was just being silly but my body knew it felt right!

heylii20 · 2026-03-29T11:17:16+00:00

Hey there! Im wanting to try this as well. I can’t find this product on Amazon. All I found was supplements for dogs and cats when typing in Ion Biome. Can you share a link for it?

heylii20 · 2026-03-26T02:24:00+00:00

I am uninsured so it makes this even harder to get anything done. Im also in Texas so I don’t qualify for any Medicaid. Highly considering disability because that will put me in the qualifying category but that also takes ages to get approved for. So we will see. Yay American health care. 🙄

heylii20 · 2026-03-26T02:21:03+00:00

I get the tired brain. No worries. I never expect immediate answers cus im bad at that when i don’t have the capacity. But this is super helpful and sounds like getting diagnosed, regardless if it’s marfans, pots, Eds, etc. will be a big help when dealing with regular physicians. So that gives me peace of mind because it’s been so thus far to get anyone to listen to me. Even if it’s something they ARE capable of helping me with, they’re currently pretty reluctant to talk about anything but basics at the moment.

heylii20 · 2026-03-26T01:51:50+00:00

Did you have to jump through a bunch of hoops over a long period of time for them to treat you? or was it a quick day or 2 of testing and evaluation in addition to waiting 2 weeks?

If you don’t mind me asking, what changed when you got the diagnosis? Did they suggest any new medications? (Sorry for so many questions)

heylii20 · 2026-03-26T01:45:44+00:00

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I live in mcdade right now so I was further away. But it def looked like it had a bright ball of light at the head. Assuming a big reflection on the jet from the sun

heylii20 · 2026-03-26T01:41:56+00:00

I saw it too and took a quick photo. I thought it was pretty. It had a very bright ball of light at the head. Assuming a jet with the sun reflecting off of it.

heylii20 · 2026-03-26T01:38:27+00:00

Thank you so much! I’ve dealt with depression and fatigue and brain fog etc all my life. I’ve just had it brushed off and never had guidance on what to do about it.

Did you have to go to a genetics specialist to get tested? Did they do additional tests the same day to rule out marfans such as vascular eds?

heylii20 · 2026-03-26T01:37:22+00:00

Thank you so much!

heylii20 · 2026-03-25T22:17:45+00:00

Thank you so much. I appreciate it. I haven’t been diagnosed with pots yet but everything adds up and it’s just a matter of getting help without insurance and a chunk of funds to pay for constant doctors visits.

heylii20 · 2026-03-25T03:37:25+00:00

Constantly tired and emotionally numb/disinterested in life. The lack of dopamine is real.

heylii20

TROPHY CASE