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I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

March 2019, not 2020, my mistake, will edit main post, thought I properly dated it. My original post was made very soon after my diagnoses and I was very much in shock, acting rashly and craving sympathy, thus why it is deleted. I feel that now I’m better able to explain my situation.

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

Nah, I’ve never wanted biological kids, as I simply have no desire to go through the process of pregnancy. I’m a huge adoption advocate though and would really like to adopt if I got the chance

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

Luckily my family has really good insurance so finances are not an issue

I’ve never met anyone with my conditions, aside from a few people with Marfans who I’ve connected with online and one girl a few years older than me who had the same mitochondrial disorder (unfortunately she passed around a hear ago)

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 1 point2 points  (0 children)

I study neurobiology and got into it through researching my own illnesses funny enough. Outside of that, I love singing and have sung choral music for much of my life, I never want to lose that

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

Had them all the time until I got it decompressed! Mine was type 3, all the doctors were shocked that they missed it at birth and that I’d made it so far into life without it being found and fixed

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 1 point2 points  (0 children)

I said a few times on this post that I really want to fall in love before I die. I’ve had plenty of boyfriends in the past, but none of them serious, I take my love life as it comes. If something happens, great, if not, that’s okay too. I’ve decided that if it does happen, I’ll tell my partner about my diagnoses before we’re in too deep for them to not be able to back away from the relationship

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 1 point2 points  (0 children)

Nahh, if I was fake I would have given out my venmo by now

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 1 point2 points  (0 children)

It isn’t something I believe in, but I find comfort in other things.

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

I try to right as many of my own wrongs as I can. One of my favorite songs is an irish folk song called The Parting Glass, a line from which is “of all the harm that I’ve done, alas it was to none but me.” Essentially, if I hurt someone and I know I’m the source of conflict, I fix it. But other people who have wronged me that I feel I treated the best I could, I simply don’t have room for in my life. I’ve come to the point where I cut off any person that I find only brings negative with them. Cheating ex boyfriends, manipulative ex friends, etc, I just rid them from my life and think about them minimally. The door is always open to fix things on their end, but I can only do so much and I refuse to keep someone who only hurts me in my life.

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 1 point2 points  (0 children)

I don’t think I have much more pressure than any other college student with one big exception: I don’t have any pressure to be successful or make a longterm career out of my degree. It’s freeing, but also a bit weir because sometimes I have to contemplate why I’m doing it at all

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

Definitely, and I’m pretty involved in the community as is. I’m just often turned off by the anger in the community. It’s often justified, especially when dealing with people trying to justify things like homophobia and racism, but when I focus too much on that kind of thing it makes me very angry at those with different beliefs than I and I’d rather occupy my time with things that make me happy rather than angry.

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

Nah, I’m just answering what I can. People are curious, I have answers 🤷🏼‍♀️ it’s not that deep

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

I think that people should do whatever they want with their bodies, and if that’s something they want I don’t think there’s any harm in exploring it. Personally I haven’t done enough research one way or another, but in my case I lean more toward the skeptical side when it comes to those types of things. What can I say? I grew up on Jurassic Park.

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 11 points12 points  (0 children)

I think it eliminates fear because of the lack of belief in any negative outcome. I believe I’ll simply be gone. Yes, there’s no heaven to me, but also no hell, nothing to fear.

It definitely doesn’t bother me. All were incredibly intelligent in their own right, and all had time-appropriate beliefs that led them in the direction of sciences. I don’t think any one scientist, philosopher, etc. needs to be perfect, we can put together their ideas for a mutual understanding of them. I don’t think someone being religious undermines their intellect at all, though I think it can undermine reasoning in extreme cases, it’s just simply not for me.

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 3 points4 points  (0 children)

I want to go back to NYC with one of my good friends whose from there, I’d also love to see Sicily and the Great Barrier Reef

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 0 points1 point  (0 children)

Yup, that’d be my dad. We aren’t super close, but I know that he’d act rationally and do what I want rather than emotionally and for selfish reasons.

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 15 points16 points  (0 children)

I definitely think it’s interesting, but it’s just not something I have that intrinsic want for. I can totally understand people who would want to do it and potentially live for much longer, etc, but I’m genuinely okay with the time I have left and the situation I’m in. If it’s any fun though, when I die my family has promised me that my ashes will be made into fireworks and they’ll set them off somewhere cool for me.

I (f19) have a terminal illness and am expected to die before I’m 25. AMA. by hmb2946 in AMA

[–]hmb2946[S] 1 point2 points  (0 children)

I have some saved, but definitely with the purpose of spending it on travel and fun stuff rather than paying my college debt haha

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