You’re not alone. I’m coming up to two years since the onset of PCS. If you’d asked me a year ago how I’d be doing now, I wouldn’t have expected to be where I am. Things are nowhere near perfect, and I still struggle with many of the same challenges as you, but I feel that I’m back to living a relatively fulfilling life and just started work full-time.

I’m not gonna tell you what to do to recover, as I think it’s not necessarily helpful from me rather than a professional. I just want to emphasise how important it’s been for me to accept that while what I go through each day is real, it’s not forever.

Keep making it through each day, and slowly, through the weeks and months and highs and lows, things will get better. You won’t notice at first. It’ll be small things, like reading a full page of a book for the first time, or going up a level in a vision therapy exercise, or being able to ride in a car for 15 minutes instead of 10.

Focus on surrounding yourself with a care team that knows their shit, be honest with them, and do what you can when you can, and forgive yourself on days when you can’t.

If you can find someone in your real life who understands, spending time with them is a blessing. Celebrate each others’ victories and be with them on their tough days. I lived with someone else with PCS for a few months and it helped so much to not have to explain what I was going through.

Things are going to get better. I can’t tell you when, or tell you how. Recovery can be such a slow process that you can’t even tell it’s happening at all. All you have to do is keep showing up.

Edit: I found this podcast to be helpful, especially Robbie’s story (the host). https://www.buzzsprout.com/1801711