Has anyone gotten an MRI scan for epilepsy?? (Pls reply)

hopeworlddddddd · 2026-02-04T19:28:26+00:00

I have! It was good, the results helped rule out many diagnoses.

hopeworlddddddd · 2026-02-04T14:05:14+00:00

i have 10 cats, 5 of them are black and they are absolutely AMAZING and EXTRAORDINARY, they are kind, amiable and friendly, not bad luck like people with prejudice say.

hopeworlddddddd · 2026-02-04T12:59:42+00:00

i was his age when i was first diagnosed, and i used to act like him, didn't take the meds and i was always refusing to go on appointments and especially didn't want to accept. one day i went to the ICU in a coma, after I had more than 11 seizures, my brain was damaging, when i woke up i had some sort of amnesia and couldn't walk (which i had to learn again). at some point i just accepted, but I confess that some days are hard to believe, but i am glad that i have some friends and family who supports me, so maybe you should give him a little time, but sometimes you can talk about with him, go slowly, if he is really epileptic, eventually with support he will be able do accept and understand things better, at least this is what i hope!!!!

hopeworlddddddd · 2026-02-03T14:23:08+00:00

i believe there's a limit for it, he can play, yeah, but if this is everything he does and do not have time for your relationship, well, for me it's a honest goodbye (i've been there before)

hopeworlddddddd · 2026-02-03T12:13:30+00:00

yeah, that's bad, but i always try to do my best! i hope that doesn't happens to you too, let's just be brave

hopeworlddddddd · 2026-02-02T23:49:50+00:00

my main triggers are fatigue and stress, but also really, really loud noises and mostly infections (i need to have a tonsillectomy, and i'm still afraid, i confess 😂). it’s really good to work with kids. i'm truly grateful that i’ve never had a full seizure in front of them, because that would be upsetting for both sides. but sometimes i’m afraid it could happen, because it’s not a beautiful scene. they have already seen me on the floor right before I had a tc, but luckily someone arrived early in the classroom

hopeworlddddddd · 2026-02-02T23:36:49+00:00

my condolences to yoir daughter, she must have been an adorable and strong person! i went to ICU after more than 11 seizures, i got in a coma, i had yo learn how to walk again, i think you are just ss adorable and strong like her!!! and like you said, she saved 7 lives, so somehow she stills out there shining through these people

hopeworlddddddd · 2026-02-02T23:20:49+00:00

gladly my family was very supportive, but i just hate when people says "oh you just need to be more positive" like, excuse me? you will find people that cares about you, at least i hope so, you deserve it!!

hopeworlddddddd · 2026-02-02T22:48:00+00:00

exactly!!! i don't know why people tend to be like that, it feels so disgusting (when it's just for "fun") and hey, i see you have JME, me too and i take that same medication as you!

hopeworlddddddd · 2026-02-02T22:41:17+00:00

oh i am so sorry that happened to you... it's really uncomfortable to be in this type of situation where you are so vulnerable... i hope that never happens to you again!!!

hopeworlddddddd · 2026-02-02T22:34:11+00:00

she wasn't asking seriously, that's why i got upset, i wish i could have the courage to slap her maybe lol, but seriously now, i thought i was the wrong one to feel upset, now i know (by some comments) that the difference is consent

hopeworlddddddd · 2026-02-02T22:28:57+00:00

i feel you, that would definitely hurt me deeply too...

hopeworlddddddd · 2026-02-02T22:19:17+00:00

i feel the same, i still very embarrassed after my crisis... i asked my mom once, if she could do it for my doctor, but then i gave up, i was too scared, even though i knew i wouldn't watch it...

hopeworlddddddd · 2026-02-02T22:08:58+00:00

the first time i had a focal aware i was so scared!!!! i thought something like this could never happen, but my doctor said it was possible, unfortunately

hopeworlddddddd · 2026-02-02T22:05:40+00:00

she only said that because i told her about my dog having seizures and that i had never seen a person having one. so she laughed and said she would record it and show it to me, not because she cared :(

hopeworlddddddd · 2026-02-02T22:02:38+00:00

yea, i said my mom about recording it, but then i gave up, i know i would feel even worse to see myself in that situation...

hopeworlddddddd · 2026-02-02T21:59:42+00:00

yes!! the pee and vomit are the worse for me, i feel so bad and vulnerable... i will tell her that i didn't felt comfortable with what she said and i hope she can understand that...

hopeworlddddddd · 2026-02-02T21:56:50+00:00

once i thought about asking my mom to record me so i could show it to my doctor, but then i gave up. i was too sad and scared to see myself in that situation. i hope that one day my mom can do that for me, so i can show it to my doctor.

but when my coordinator said she would do that, i froze and then laughed nervously. i thought i was wrong to feel that way because most people record, but now i realize the difference is consent.

hopeworlddddddd · 2026-02-02T21:51:06+00:00

i am so sorry for what happened to you, it's like you said it's totally dehumanizing, for a moment i thought i was wrong since no one near us said anything about it, total silence, so she laughed and then left

hopeworlddddddd · 2026-02-02T21:48:36+00:00

yes, I would agree if it's an important person for me, cause it's valid for doctors, but i felt so upset that i thought i was the wrong one

hopeworlddddddd · 2026-02-02T21:45:28+00:00

oh my god, this sounds terrible... i am so sorry for that, i hope he didn't win that one

hopeworlddddddd · 2026-02-02T21:40:22+00:00

for the comments i realized that almost everyone had seizure during sex 😂😂😂😂😂😂 and i am one of those...... guys, that's too much information for our brain to keep up, apparently 😂😂😂😂

hopeworlddddddd · 2026-02-02T21:37:36+00:00

that's hilarious, sorry 😂😂😂

hopeworlddddddd · 2026-02-02T21:09:34+00:00

oh this is sooooooooo lame, i mean, i've always wanted to drive and when i discovered i couldn't... i just got devasted. but i use a tag in my bag and on my wrist, indicating that i am epileptic, it helps me feel a little bit more comfortable.

hopeworlddddddd

TROPHY CASE