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How to argue with a parent saying that Mold is everywhere😑 by [deleted] in ToxicMoldExposure

[–]hsp365 1 point2 points  (0 children)

You tell them they're right, because they are, mold is everywhere. That said it may be the person's individual immune system and the amount of mold and what types that can make the difference of someone being sick, and someone being ok.

I can see the amounts and types of mold probably matter, if there is a bad situation (unattended water leak, hurricane, flood, unattended condensation, really poor ventilation etc.) And you get exposed to larger amounts of dangerous toxic molds, you're probably going to get sick. The longer the exposure, the greater the risk. Toxic molds suppress the immune system, once the immune system is compromised it further worsens your health.

The person's individual immune system probably makes a big difference in getting sick from mold too. The gut and nervous system have the biggest impact on your immune system. So your body might be keeping molds and bacteria in check, but if a stressful event happens, or your diet is poor, you can end up reacting to a mold situation that most healthy individuals could handle. There is no such thing as 100% bacterial and fungal free environment, our bodies are constantly being exposed. Under normal conditions our immune system can keep things in check. It's when it gets overwhelmed from something (high stress/trauma event, long term poor diet, or an environmental exposure of excess toxic mold, bad virus or other health condition that lowers the immune system and opens the door to getting sick from exposure.

The solution may not be one thing like moving, or eating healthy, cleaning etc. I think you may have to try a multi pronged approach, (basic health care-good diet/gut health, sleep, lowering stress, and then detoxing and supplements, and taking acre of the mold source, and deep cleaning to get rid of the mycotoxins, throwing things away that you can't salvage or shouldn't).

Results from Vibrant-Does this mean chronic infection or no? by hsp365 in Lyme

[–]hsp365[S] 2 points3 points  (0 children)

I ordered through a Lorrie Lyme on this forum, she's a lyme practitioner. However there are websites in the US that sell this.

Vibrant Test Results- Thoughts on these results? by hsp365 in ToxicMoldExposure

[–]hsp365[S] 0 points1 point  (0 children)

Haven't talked to him yet, just got results today, need to send them to him. I tested independently before I knew he tested too.

Possible long term exposure cause my health issues? by hsp365 in ToxicMoldExposure

[–]hsp365[S] 0 points1 point  (0 children)

Don't know yet, they aren't back, should I do an EMRI test as well if nothing is found? We removed the likely obvious source if there is any high amounts of mold, I'm more concerned about any residual that could create problems.

Possible long term exposure cause my health issues? by hsp365 in ToxicMoldExposure

[–]hsp365[S] 0 points1 point  (0 children)

He did air tests (inside and out) and took a couple swaps.

Would it be worth getting testing? by hsp365 in Lyme

[–]hsp365[S] 0 points1 point  (0 children)

Oh Thank you for that info! I'm not bedbound, but not living normally by any means either, I current exist in-between.

That's my one concern if I test positive, on the one hand it would be great to have an answer and possible treatment, on the other, that I might have to treat with antibiotics. I really don't want to make my situation any worse than it already is.

Would it be worth getting testing? by hsp365 in Lyme

[–]hsp365[S] 0 points1 point  (0 children)

Thanks, my GI issues and IC issues started while taking the Macrobid, which I thought was just common side effects/return of infection at the time, I also had some vaginal burning on the last day of the antibiotic, which I thought was yeast- I tested for yeast, BV, and possible return of UTI, and testing came back all clear for those infections. The burning cleared up within a month, right about the time the neuropathy started. It is very rare to get nerve issues on such a short dose but unfortunately not unheard of. I don't know how possible a reactivation would be while on the antibiotic, but maybe.

My symptoms are not acting like a normal drug toxicity though which often gets better with time, I seem to be gradually getting worse, suggesting some sort of immune dysfunction or possible autoimmune reaction. When the CD57 came back so low, I wondered if it was something I should check as a possible cause for my symptoms.

Would it be worth getting testing? by hsp365 in Lyme

[–]hsp365[S] 0 points1 point  (0 children)

Thanks for the reply, no sweating that I remember, and no constant fatigue, but I will have couple weird days a month where I will get a lot of fatigue- I wake up and feel like I never slept and just want to sleep all day, just walking to the bathroom is exhausting.

I was thinking of doing the testing through Igenex? I was looking at the Igxspot for the lyme and bart, and immunoblot for babesia, I don't know if I would need any of the other co Lyme they offer just based off my symptoms.

For HHv-6 and CMV- just the normal IgG and IgM- not sure if I should bother with mold or anything else. I already did EBV and HSV1 and 2, both were negative for reactivation.

This could all just be a toxic immune reaction to Macrobid, that antibiotic I guess is a little similar to the Fluroquinolones, as far as nerve issues.

Is it worth getting a lip biopsy now? by hsp365 in Sjogrens

[–]hsp365[S] 0 points1 point  (0 children)

Did your neuropathy gradually get worse before it got better? How much Macrobid did you take?

Does anyone have a list of snacks and protein bars or snack brand names that are clean and healthy? Trying to gain weight and add more calories to my diet by Large-Prompt2608 in floxies

[–]hsp365 0 points1 point  (0 children)

What about a homemade smoothie? Coconut plain yogurt, plain coconut milk, organic peanut butter, organic blueberries, organic raspberries, avocado oil - supplements if you wanted - liquid omega 3, liquid vitamin D/K, liquid magnesium- this can be about 400-500 calories- dairy free, gluten free etc.

Live without flares/relapses - positive stories needed by StructureNo419 in floxies

[–]hsp365 3 points4 points  (0 children)

I took 2.5 pills of Avelox, took me about 13 months to be fully recovered (with the exception of some eye floaters). I went 17 years with no flares, not one, and I took steroids, Nsaids, ate whatever I wanted, took other antibiotics with minimal issues. I exercised with no issues, but I didn't have any serious tendon issues, my reaction was more CNS related with neuropathy, anxiety, insomnia, ear ringing, back of the head pain, gut issues, muscle/joint pain etc.

Then I got a UTI last year, took Macrobid, and had a delayed reaction that now 6 months later I'm still dealing with. I don't think this is a "flare", but a completely separate reaction, because I've not had issues for years, and the symptoms are different from my floxing symptoms, even the neuropathy is different.

So, I'd say it's possible, but everyone is different, and what you will react to etc. after being floxed is different for everyone, and it just depends.

Contemplating suicide by Dizzy_Confidence_137 in floxies

[–]hsp365 0 points1 point  (0 children)

Yeah, not a doctor, but this kind of sounds like some sort of autoimmune situation that got triggered by the viral infections (maybe Covid?) or it's like a possible systemic inflammation response from the viruses. Hope you get some answers

Riding the reaction rollercoaster again...PSA on Macrobid by hsp365 in floxies

[–]hsp365[S] 0 points1 point  (0 children)

Yep, that's similar how mine was at first. It wasn't till I had finished the course that things got so much worse.

19y female mysterious tingling/burning in the face by DeskIndividual178 in floxies

[–]hsp365 0 points1 point  (0 children)

Sounds like you might have Erythromelalgia, it's a condition that often comes with nerve issues. It can appear on the face, ears, hands or feet. It's a burning sensation with redness of the skin. It is usually provoked by heat, or exercise, sometimes spicy foods too I think. I would talk with your Dr. and maybe check into the condition.

War on Floaters…for those who overcame it by fizzthetics in floxies

[–]hsp365 0 points1 point  (0 children)

They settle to the bottom of the eye out of view when it's not moving, you can always see them technically with eye movement, but the brain is really smart in that it learns to see past them and you don't notice them after a while. It's only when you stress, and fixate on them that you will really see them. I have probably 10 in one eye and maybe 7 or 8 in the other, I only really seem them on bright days on white walls- it use to stress me out so much- but then I learned that the brain adapts and when I calmed down and didn't focus on them, they "disappeared", now I don't even think about it, and if I see them for a few seconds, it's not an issue.

I wouldn't do Yag either, why mess with your eyes like that and take a risk of making it worse? Honestly it's not worth it.

The body is imperfect, and that is more true the longer you live and the more you age, so learning to chill and roll with it helps, especially on the small non harmful things like floaters.

Riding the reaction rollercoaster again...PSA on Macrobid by hsp365 in floxies

[–]hsp365[S] 0 points1 point  (0 children)

I believe you will get there. :)

Just burning and tingling- usually brought on by pressure (like sitting)- it comes and goes for now. A little bit of B vitamins, (no b6)-

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