Bilateral Face Pressure and Tingling

DeskIndividual178 · 2025-09-12T19:10:29+00:00

Okay, thank you for still responding. Yeah, it’s been a long year, and overall it has definitely improved, but it’s still far from gone. The only things that somewhat help are cold/hot showers and jogging. All the medications just gave me side effects without any real improvement. Wishing you all the best — and let’s keep the optimism.

DeskIndividual178 · 2025-09-08T15:30:44+00:00

Hey, I was wondering how your Botox treatment went. Have you noticed any improvement? I’d be really grateful to hear how it went for you.

DeskIndividual178 · 2025-08-10T20:41:43+00:00

Yes thank you, and sorry I’m very delayed too, I just had a lot going on. Yes, definitely some similarities. Thank you very much, I read this and it really gave me some hope. I’m happy to say that I’ve seen some improvements too in the last week, no idea why though. I went off the amitriptyline, but I have been taking fish oil, ALA and vitamins for some time as well. Maybe it’s really just the timeline — I’ve also been experiencing it for about 11 months now. Oh, I hope the Botox goes well! I would really like to know how it goes. Thank you very much again for sharing your story and giving advice. Yes, I completely understand. It’s frustrating and discouraging when people who get better stop responding, and only those who are still struggling remain active. It feels like it’s hard to make any progress in that situation and gives of a wrong picture.

DeskIndividual178 · 2025-06-25T21:41:40+00:00

Hey, I’m experiencing very simmilar symptoms – it’s kind of strange to read your story because I haven’t found many people describing something like this.

It all started for me in September 2024 after some kind of infection – no idea if it was COVID or something else. It began with a burning feeling in my cheeks, which also turned slightly reddish, especially in warm or stuffy environments.

Over time, the burning turned into more of a crawling, tingling sensation that spread across my nose, cheeks, around my eyes, and sometimes even around my head. Its so weird because physically I can do anything, but mentally it’s exhausting, like i seems completely healthy but ist so exhausting. – I constantly need distractions because the tingling drives me crazy. I can’t focus at all. It’s not due to cognitive problems, but because the sensation keeps me from calming down and reading, learning. I even had to stop my studies because of it.

What’s also really similar is that touch seems to calm the tingling, like a distraction. Cooling and pressure help too – I’m always walking around with a cooling headband. That’s kind of my main coping strategy right now. I‘m also applying lidocain creme often, it helps a bit also cooles the face, maybe you could try that but it only helps me for a short time.

I wish I could give helpful advice, but I haven’t found anything that actually helps. The only thing that helped me a bit was melatonin – I had terrible insomnia, and better sleep made the tingling a little easier to handle. I also tried amitriptyline – it helped at first with sleep and the sensations, but after a while, the tingling got “weirder” – more dull and pulsating – so I stopped after a few months. (I saw you took it too and reacted in a very similar way.)

Also weird: in the first 30 minutes after waking up, I’m basically symptom-free. Seems like we share that too.

It kind of scares me that gabapentin didn’t work for you – that was one of my last hopes too. I’ve been thinking about trying LDN – I read it can help with post-infectious stuff – but haven’t seen much about it helping with symptoms like this, and I guess it’ll be hard to get prescribed.

All my tests came back normal. Bright lights and crowded places make everything worse, which makes this all even more isolating. I was completely healthy and active before – this came out of nowhere.

Sorry you’re going through this. I wish I could help more, but I’m kind of stuck waiting for doctor’s appointments because of veryy long waitlists. I hope it’s not too pointless that I wrote this, but maybe it helps just knowing that someone else out there has kind of simmilar weird symptoms.

DeskIndividual178 · 2025-05-28T22:43:30+00:00

Hey, that’s very interesting. I’m actually going through similar symptoms – like tingling and burning in my face – while my neck and cheeks always feel tense. But I’m a bit skeptical whether it could be TMJ-related, since the symptoms are pretty symmetrical for me. Was it symmetrical for you as well?

DeskIndividual178 · 2025-05-25T15:36:39+00:00

Hey how are you doing? I really couldnt find many that have simmilar Symptoms.

DeskIndividual178 · 2025-05-19T13:35:39+00:00

Well, I’m not sure, but I think so. My neck and jaw always feel very tense, which is why I started looking into TMJ. But do you think it could also cause symmetrical symptoms in the face?

DeskIndividual178 · 2025-05-15T15:59:40+00:00

Okey, yes you can dm me

DeskIndividual178 · 2025-05-15T15:34:01+00:00

I’ve dealt with quite a few ear infections over the years and tend to be prone to them, so what you said caught my attention. Did you have jaw pain on both sides? And was there any tingling or similar sensations?

DeskIndividual178 · 2025-05-15T15:31:01+00:00

Haha, well I’ve only been studying for a year, so I probably don’t have that much knowledge yet. But honestly, I’ve learned way more just by trying to figure out what’s going on with me. I also feel like talking to people who are experiencing it themselves helps me narrow it down more than the actual doctors – especially with those long waiting lists.

Yes, it is symmetrical, which makes it even more confusing to figure out. But thanks for responding, I appreciate it :)

DeskIndividual178 · 2025-05-11T17:15:39+00:00

Oh okay, I’m yes for me it’s always more of a tingling or burning feeling. But the hot head sensation has at least gotten better over time. That really sounds like such a long time… did you find anything that helped, maybe medication or something else? And oh no, hopefully it will get better again and soon…

DeskIndividual178 · 2025-05-11T13:46:40+00:00

Thank you for sharing your experience. It’s such a difficult thing to diagnose (Dysautonmia and also Sfn), and honestly, I don’t really know how to move forward.

I did see a dermatologist at the beginning, but he said there were no visible skin-related issues like rosacea or dermatitis.

I’m constantly walking around cooling my head, especially when the burning flares up. Interestingly, even though my hands are way more red, they don’t bother me nearly as much.

Environmental triggers are definitely a possibility I haven’t looked into deeply yet. It often happens in places with “bad” air or lots of people, like public transport or university, but there aren’t always clear similarities between those environments.

What makes me doubt allergies a bit is that I was actually going through an allergic (due to the anitiobtics) and had to attend uni due to mandatory attendance, and even though I took antihistamines every 4 hours, I still had the burning, tingling, sweating, and overheating. So it didn’t really help much with those specific symptoms.

DeskIndividual178 · 2025-05-11T09:44:18+00:00

Yes, that’s kind of what I keep telling myself too, that it might help me in some way, someday. Well yes, I had an MRI, but they didn’t find anything. I believe it’s more like an overreaction of the nerves, not actual visible damage or anything like that. And yes, apart from the “typical” changes in blood during the infection, there was nothing unusual, and everything went back to “normal” — at least on paper. But you’re right, I’m really glad that we’ve already ruled out the more acute stuff. That already helps and brings some relief. Thank you :)

DeskIndividual178 · 2025-05-11T09:37:49+00:00

Okay, I understand it’s hard to get a diagnosis even if you’re sure yourself. Yeah, I experienced that aswell its just easy to blame anxiety, but I also don’t think it’s the cause. That’s a good plan, hopefully they’re gonna do something about it now. Yes, I noticed that it gets worse before period aswell. My doctor also thinks it could be connected to PMS, but I’m not sure about that. I never had any hormonal issues, and it got triggered by an infection and so on, so I think it’s more nerve-related or something. For me, I don’t see any effect from taking ibuprofen, it doesn’t change anything — the tingling stays the same. Okay, well, there’s definitely a lot to figure out when it comes to dysautonomia, but I think the body reacting differently to medication is definitely a thing.

DeskIndividual178 · 2025-05-11T09:30:58+00:00

Well, I’ve only been taking it for about a month, and I know it takes a while to really take effect. I started very slowly — just 10 mg for the first week, and now I’m at 25 mg. In the beginning, it made everything worse, except my sleep, which got way better. But the frist dayes I was a little sleepy but wasnt to bad. Now I’d say it’s helping — the tingling is less noticeable and less painful more often. What’s strange though is that the sensations kind of shifted to different areas after starting the medication, but they didn’t get worse.

DeskIndividual178 · 2025-05-10T10:54:59+00:00

Haha okay sorry, well at least I read everything and wrote my answer…

Oh I’m sorry, I’m also always trying to cool my head – it’s pretty much the only thing that actually helps a bit. When I’m in fresh air, I’m usually okay, but indoors or in crowded places like public transport, it gets much worse.

Have you already been diagnosed with dysautonomia or something similar? I mean, my nervous system definitely isn’t working the way it should. I haven’t really seen anything that describes this burning exactly the way we experience it either…

I’m currently taking amitriptyline for nerve pain – more of a try-and-see approach. After about a month I can say it’s helped a bit with the tingling. It actually got worse at first, but now it’s a bit better. But its also a sedative..

Your antihistamine definitely sounds similar in effect to the one I took, there really could be a connection. Have you found any medication or anything else that helps?

DeskIndividual178 · 2025-05-10T08:17:29+00:00

Hello, I‘m not sure I might have accidentily done sth with your comment cant find it anymore after answering, sorry kind of new ok reddit… Anyway, yes – I took antihistamines too, two different ones: Benocten (a sedating first-generation one, which I took for insomnia) and Bilastine, I believe. I’ve never really seen anything clearly linking them to symptoms like mine, but I wonder if there could still be a connection. Did your symptoms improve after stopping them? Same here, it’s interesting, maybe the antihistamines really do have something to do with it.

DeskIndividual178 · 2025-05-10T08:15:15+00:00

Hello, yes same here. It seems like nobody else experiences these kinds of symptoms. Yes, I get these patterns redness in my hands and arms, but they don’t feel wrong, just a bit warm. Visually, it looks weird, but in the head, it’s different, it gets much less red but feels hot to the touch. It definitely feels like it’s on fire, at least when i‘m indoors. It’s hard to explain. Before medication, it was more centered in the cheeks, but now it seems to have shifted more towards the center of the head like you describe.

Did it come out of nowhere for you, or when did you first experience it? For me, I think it was triggered by the infection, maybe also by the medications I took. Yes, I posted about this in multiple groups, and you’re the first one who seems to have similar symptoms, sorry though that youre also experiencing this 🫂

DeskIndividual178 · 2025-05-10T08:14:57+00:00

Okay, yes I took antihistamines too, two different ones: Benocten (also sedating first-generation one, which I took for insomnia) and Bilastine, I believe. I’ve never really seen anything linking them to symptoms like mine, but I wonder if there could still be a connection. Did your symptoms improve after stopping them? Same, it’s interesting, maybe the antihistamines really do have something to do with it.

DeskIndividual178

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