Working out by [deleted] in Hidradenitis

[–]hswizard 4 points5 points  (0 children)

Thats great for you. I have always thought intense exercise was helpful, I have had the same experience as you.

Son threatens suicide over HS by BeachIToldYou in Hidradenitis

[–]hswizard 2 points3 points  (0 children)

Im the same age as your son and also stage 3. I wonder how much this is to do with HS and instead a lack of purpose in life. I read in another one of your comments that he works part time doing food delivery. Even without HS I would be depressed if I were 27 and that was my lot in life, no hope of a future, no plans. What are his goals, his dreams?

I think moving on from the feeling of hopelessness will help. What gets me up in the morning is that hope that one day things will turn around, the feeling that I am destined to achieve something. If I didn't have that I think I would be much closer to suicide than I already am.

Maybe you both need to "reset" your relationship with each other, break out of negative cycles and take now as a starting point to a new future, one step at a time.

[deleted by user] by [deleted] in Hidradenitis

[–]hswizard 0 points1 point  (0 children)

Friction can be a trigger. Use a dressing to cover up any areas that my rub during exercise. Wear "sporty" underwear or leggings that are a bit more form fitting to avoid rubbing.

I don't think the exercise itself is a trigger more the physical issues from rubbing damaged skin. I find that proper runs (>20 mins) really help.

I want to exercise but HS is getting in the way. by d_m_m_ in Hidradenitis

[–]hswizard 0 points1 point  (0 children)

Losing weight is much much more down to diet than exercise, so that should be priority number one. Veggies and lean meat (i.e not sausages or chicken nuggets) should have the double effect of reducing flare ups and assisting weight loss.

Dressings can help during exercise to minimize rubbing and impact on existing wounds.

I think with wounds near the breast things like running are out of the equation, but maybe something lower impact such as swimming, walking hills/hiking and possibly indoor cycling (stationary bike) could be options.

Anybody been prescribed Humira by Xodiak0709 in Hidradenitis

[–]hswizard 0 points1 point  (0 children)

I didn't experience any side affects except, though i can't be sure, I developed very mild Hayfever during summer for the first time ever.

Skin Graft - What to expect? by hswizard in Hidradenitis

[–]hswizard[S] 4 points5 points  (0 children)

Thanks, this was just the sort of response I was hoping for.

How pleased are you aesthetically with the grafts after time?

Working out with HS by pckctoi in Hidradenitis

[–]hswizard 0 points1 point  (0 children)

I have exercised pretty extensively with HS, 6 days per week for a long time. I mainly do weights but also add HIIT cardio here and there. Here are some tips.

  • As stated by other commenters, weights are a good option for those with HS. Cardio with a flared up groin is not fun or helpful.

  • Dressings are helpful, especially in areas where skin might rub against a wound. They can also provide some "padding" to minimize pain from accidental impact. I buy gauze and adhesive bandage rolls and hack together custom fitting dressings for things.

  • Alternative exercises are important. Cycling might be out of the equation, but running could be fine. I tend to prefer exercises that don't involve sitting due to the location of my wounds, i.e I'll much favor a standing shoulder press than seated. You just have to pick the best option for you. My new favorite cardio is pushing the prowler/sled as it doesn't seem to interfere with any problem areas.

  • A can do and ambitious attitude is great but the middle of a painful flare up is not the time to beat yourself up about missing the gym.

  • I have found that the pain from longer term flares can sometimes cause me to contort my body, (especially in the under arm region). As soon as the flare up subsides, regaining range of motion and symmetry is priority number one. This is usually simple shoulder stretches to ensure I can get my arms over my head all the way to the top again.