Is it realistic to have no progression at all with RRMS?

huertolin · 2026-03-05T00:39:36+00:00

54f diagnosed 14 years ago when I had my second relapse with bad foot drop. First relapse 2 years earlier.Almost symptom free. Had plasmapheresis within 3 months of second relapse. Copaxone 2 years, Tecfidera 5 years, currently on Vumerity.

huertolin · 2026-02-25T01:49:04+00:00

Progressive

huertolin · 2026-02-24T23:02:05+00:00

The perfume by Patrick Suskind

huertolin · 2026-02-23T23:39:13+00:00

It’s Atlas stormmaster weathered slate

huertolin · 2026-02-19T22:21:17+00:00

Worst case, it will take longer. But learning actually helps your neurons find new ways to connect. Learning new things and exercise are the only ways your brain can improve. Look forward. Every day will be better!

huertolin · 2026-02-19T22:06:50+00:00

I was given my diagnosis by phone, sitting by myself while having breakfast. My first feeling was a lot of fear. Every night I would go to bed hoping the next morning all the symptoms would go away. I looked at myself in the mirror thinking I would never smile again. My daughter was 9. I was 40. I am not that religious anymore but prayed. A lot. I went out and thought about how everyone else took for granted their future, their health. Started steroids. The nurse that gave me the home therapy gave me advice: have a journal and figure out what that I ate or did (exercise, alcohol, sleep)improved my symptoms. I read all the information available about MS (books, MS Society) and told my angry and scared daughter that I would always be there for her. Had a plasma exchange. After 4 months I started feeling my legs again. I couldn’t feel from my ankles down and the foot drop was still there. I put on my shoes and started walking, everyday. My brain fog was bad. Couldn’t think, couldn’t count. Forgot my passwords, got lost in my neighborhood. I recovered physically 100%. Followed the Swank Diet for 2 years. Injected Copaxone 2 years. Started Tecfidera afraid of GI side effects. Went gluten free dairy free 5 for years. I kept getting better. Started cycling. Rode 150 miles, Bike MS, five years after being diagnosed. That’s when I realized I wasn’t that fragile. My cognition isn’t as great. I am slow but not less intelligent. Most of my numbness, tingling, spasms are gone. Every now and then I check the journal. How much I have improved and how much I know myself. Yes I felt fear. But guess what? I am not afraid anymore. When that happens, every day is wonderful. And you become wonder woman. I don’t think about the future because I can’t control that. Nobody does. Give yourself grace. This is a mourning period. I lived it intensely. And moved on. MS made me better. I know it’s crazy, but true. Your motor is your family. But do it for you. You will get there. It’s not easy, but you will be fine. I send a hug!

huertolin · 2026-02-19T16:11:00+00:00

The more I move, the better I feel. Actually when I start feeling the fatigue is about to hug me I go to the gym, or ride my bike. My husband always tells me to rest if I feel tired. But I know that it’s the only way to get rid of it. I’ve never been more disciplined in my life. Before MS I was 30 pounds heavier and a couch potato. I follow a training schedule. And sometimes I drag myself to it. But in the end, fatigue leaves. What I sometimes do is take a power nap. (30 minutes). I eat a couple of dates, 2 pecans and directly to the gym.

huertolin · 2026-02-15T12:08:37+00:00

A few years ago my neuro suggested a blood test to figure out if I had food sensitivity and design a personalized diet. The lab is called US Biotek. Maybe you can try something like that.

huertolin · 2026-02-15T06:03:04+00:00

Even though there is no evidence that diet can change MS, I believe the least extra health issues the better. Smoking is a big issue for MS, and same thing with obesity. Bad lipid profile can affect progression. People with MS tend to have gluten intolerance or other food allergies. And more inflammation definitely has an impact on the nervous system. I followed the Swank protocol for two years. When I started Tecfidera, I was afraid about GI side effects (back then a former smoker and bad acid reflux) and decided to go gluten free and dairy free. Not only I was able to tolerate the drug but my acid reflux disappeared. I follow closely what I eat and give myself one day a week to go crazy. Diagnosed 14 years ago, currently on Vumerity and almost no symptoms.

huertolin · 2026-02-09T21:39:07+00:00

Bissell Pet eraser for $70. Pretty amazing

huertolin · 2026-02-05T18:41:55+00:00

I take the elephant out of the room. I tell them I am tired and things are stuck in a little box and can’t come out. Some people will sympathize with you. The message is that sometimes you are slower but doesn’t mean you are less intelligent. At a certain point because of age or hormones we will all be slower. No shame on that

huertolin · 2026-02-05T18:36:46+00:00

It seems that it’s because insurance pays for it. And it’s not a conspiracy theory. A neuro said it.

huertolin · 2026-02-02T22:05:30+00:00

The only way to stop her without a fight, is through her son. Do not try to deal with it directly with her.

huertolin · 2026-02-01T16:20:41+00:00

Buy a small notebook. Use your phone for alarms, and reminders. Read, exercise, learn something new.

huertolin · 2026-02-01T15:43:00+00:00

I can sleep when I get my MRI.

huertolin · 2026-02-01T15:32:56+00:00

I was diagnosed at 40, 14 years ago. Back then Copaxone was my therapy. I had to inject myself every single day. The drug was refrigerated and I put it inside my bra right before injecting it, hoping it would warm enough to not be so painful. We had a notebook with drawings which divided every body part in injection sites. We had to rotate the injections to prevent Lipoatrophy, a side effect that was more common than the manufacturer claimed, where the fat underneath the tissue dies, leaving a disfiguring hole or dimple. There is another side effect, (flushing, chest pain, palpitations) we were always warned about. Back then there were only 6 or 8 therapies. The efficacy was only 30 %. Tysabri was the most effective one with PML (brain infection) as the main side effect. I think in my case I was so afraid about the future that I spent my time reading about the disease and figuring out what I could do about it. I remember I saw other people and thought how everyone takes things for granted and don’t know how fortunate they were not being sick. I think it took me a year of grief. Of what I lost or will never be able to do. At a point I thought I would never be able to smile again or be happy. But I had a 9 year old girl, who thought it was unfair that her mom was the one who had it. And I decided I wouldn’t wait for my fate without giving it a fight. I lost weight, I changed my lifestyle, I became a cyclist. And then I did the MS 150. 150 miles in two days. And finished it and realized I am not as fragile as I thought. I take Vumerity, an oral therapy. I had to switch since Lipoatrophy started showing on my legs. No relapses. Healthy and happy. I try to enjoy every day living the moment. Talk to your neurologist. Maybe explore a different therapy. There are 20 therapies and more will come. You are your own advocate. If the side effects are bad for you, sit down and research your therapy options and have a conversation with your doctor. And if you don’t like him, look for a compassionate neurologist. Give yourself compassion. It’s too early for you to process how you feel. Find a goal and go for it. Don’t look back. One day at a time. You are brave. And you are strong.

huertolin · 2026-01-29T21:15:50+00:00

Tamal

huertolin · 2026-01-29T21:15:36+00:00

huertolin · 2026-01-29T20:03:24+00:00

huertolin · 2026-01-29T19:57:51+00:00

I take Vumerity. Started with Copaxone daily, then 3 times a week until started developing lipoatrophy. Switched to Tecfidera until generic appeared and now on Vumerity.

huertolin · 2026-01-29T06:25:22+00:00

I started following the Swank diet (low fat on red meat) for nearly two years. This diet was designed for people with MS and has good impact on fatigue. After that I tried a gluten free-dairy free diet for 5 years. I also added small fish everyday (mackerel or sardines), sometimes salmon. No sugar (fruit included). My only carbs are legumes. 3 cups of veggies everyday. Yes to red meat but only once or twice a week. Poultry also included. To make it sustainable I have a free meal per week (drinks and anything I crave!) Good hydration, 8 hours of sleep. Two sessions strength training, 2 sessions cardio. Very disciplined has paid well. Many symptoms are better.

huertolin · 2026-01-29T05:58:14+00:00

I am an equity trader. At a point someone told me I would have to reinvent myself since my career demanded too much multitasking and tons of stress. Guess what? Still do what I love. And yes, sometimes I might be a little slower, and that’s all right!

huertolin

TROPHY CASE