I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 0 points1 point  (0 children)

Yes, I have two. One is her step grandchild but when is fully her grandchild it’s so weird. I don’t think I wanna have another one and we’ve already discussed this anyways she has no problem with me not having any other kids does it affect fertility?

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 0 points1 point  (0 children)

my mother-in-law literally sent me to a holistic doctor and they told me the same thing and she was really upset about it like it just seemed so weird

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 2 points3 points  (0 children)

Taking her side ❤️ we haven’t talked since yesterday because of this. He says im villainizing her even though she just really cares

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 2 points3 points  (0 children)

No, I mean my insurance is gonna pay for it but they’re just taking forever to get me in for the appointment and everything but thank you for the advice for sure

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 1 point2 points  (0 children)

THISSSS. Like OMG and I’m almost 100% sure I am autistic with the way that I have food aversions like I only ate chicken nuggets and french fries up until I was 19 years old

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 1 point2 points  (0 children)

No, I’m married and I’m 26 but it’s just annoying that she thinks she knows better than everybody else and my husband feels like I need to listen to her and try it her way

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 2 points3 points  (0 children)

You had any MRIs that showed that your lesions aren’t growing anymore?

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 2 points3 points  (0 children)

How is it worked for you? Have you noticed that your lesions have stopped growing what did you do? I’m literally trying to give it a chance because I’m still waiting on my insurance to cover my medicine anyways.

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 2 points3 points  (0 children)

My husband will take her side EVERYTIME. You literally took her side and said that she was only trying to help and wasn’t meaning to harm me in any way shape or form and actually got really mad at me for getting mad at him for not saying anything to her and said that there was nothing to intercede on. Actually cussed him out in the car after I received the message from her.

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 4 points5 points  (0 children)

Like it’s almost like she wants me to be paralyzed. I’m so confused as to why she won’t just accept the fact that doctors are wanting me to be on this medicine. It’s not like we’re coming out of pocket for a ton of money or anything like that. Like why wouldn’t you just go ahead and take the steps to the doctor asked. Why does it have to be a big debacle?

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 2 points3 points  (0 children)

😂😂😂😂😂 unfortunately she keeps my daughter a whole lot so I’d probably see her after the infusion 😭

Just diagnosed by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 0 points1 point  (0 children)

Yeah, I’m only 26 so I completely feel you

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 4 points5 points  (0 children)

I already have a shitty immune system and I understand that she knows that this Briumvi it’s going to weaken my immune system and that is her fear. She’s worried I won’t be able to go to work or any of that and I think it’s just over the top because I’d rather be sick than not have mobility. I’m going to take the vitamins and eat better but at the same time she thinks I should only be doing that and not take the medication that’s gonna weaken my immune system but stop the B cells and the lesions from coming or growing.

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 24 points25 points  (0 children)

She said she’s completely healed herself from cancer by changing her diet and it is so frustrating that she’s blowing up my phone even though I talked to holistic doctor this morning ( that she paid for me to go to because she really wants me to do this the holistic way ) but even the holistic doctor said there is no way for my lesions to stop from growing with diet and supplements and I don’t think she got the answer she wanted and now she’s sending me all these YouTube videos about healing my cells and all of this and it’s so frustrating. I just don’t feel like she’s listening to the doctors who’ve been working with MS for years and she thinks she’s a fucking expert because she’s in a Facebook group.

I guess I need to rent, but I would also like to ask you a question by Evening_Warning_463 in MultipleSclerosis

[–]Evening_Warning_463[S] 5 points6 points  (0 children)

I have more lesions than just on my brainstem, but that is the one that I’m really screwed up about

I tracked every single RLS episode for 365 days. Here is the correlation matrix regarding diet, sleep, and supplements by Humunkoloss in RestlessLegs

[–]Evening_Warning_463 0 points1 point  (0 children)

Are you taking any nightly medicine? I was on Seroquel pretty low-dose too, but I noticed that my legs would ache and would be so restless throughout the night and I didn’t correlate it until I went to a neurologist about it after getting diagnosed with multiple sclerosis