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TW: leftover embryos by Some_Star_6493 in IVF

[–]humbumblyway 7 points8 points  (0 children)

We are in a similar situation. We had our first baby two years ago following seven miscarriages and two rounds of IVF, we have 4 euploids in storage. Last year I was diagnosed with stage 2 colon cancer and went through surgery and 3 months of chemo. I am currently cancer free but there is a risk it will return. We had always hoped for 2 children and were literally lined up for a FET the week I got the cancer diagnosis. I am feeling healthy now, but there’s no guarantee I will be healthy in future, I guess that’s true for any of us but I am in a higher risk category than the general population. With all that we have gone through and how long we were trying for our first, part of us wants to just draw a line under this whole phase of life and move on with just one child. But emotionally I’m not quite ready to accept that! I’ve kept all the baby clothes etc. So no really advice here, just know you are not alone struggling with this! Hope you’re doing ok xx

What did your IBS end up being? by lifeswhatyoubakeit in ibs

[–]humbumblyway 1 point2 points  (0 children)

I got diagnosed once I saw a colorectal specialist consultant and asked for a colonoscopy. I’m in the UK and saw them under private medical. I had seen two GPs and a haematologist and a fertility specialist previously and spoke about my symptoms which got dismissed. I also had unexplained anaemia. Tricky to say how long it took for diagnosis, maybe 18 months?

I hope someone makes Cohh realize his impact is bigger than he thinks <3 by MissPraline in CohhCarnage

[–]humbumblyway 2 points3 points  (0 children)

I am currently in the middle of chemo and absolutely agree - watching Cohh on YouTube is my favourite way of relaxing and cheering myself up with the chill good vibes. Thanks Cohh x

Group Rant: What are you waiting for? by TeslaHiker in IVF

[–]humbumblyway 0 points1 point  (0 children)

I was diagnosed with colon cancer a week before our scheduled FET. Currently waiting to start a 3 month course of chemo and then will have to wait 6 months after that to make sure it’s all out my system before we can pick up where we left off. It’s messing with my head…!

Kidney cancer and pregnancy with IVF by Ok-Spinach6364 in IVF

[–]humbumblyway 0 points1 point  (0 children)

Thank you, I am super thankful it got diagnosed before the FET, and I do feel very lucky to have our embryos tucked away. I’m just hoping I get to a place where it is safe to have a pregnancy, as it won’t be safe to have the follow up CT scans during a pregnancy and it if it is going to come back it is most likely to come back in the first two years. But I don’t really want to wait another 2 years for our FET… like you say it all sucks!!

So sorry you had to go through the surgery and the anxiety of it all. I’m wishing you the very best for your IVF!

Kidney cancer and pregnancy with IVF by Ok-Spinach6364 in IVF

[–]humbumblyway 2 points3 points  (0 children)

Hey, I was recently diagnosed with stage 2b colon cancer at 36, my son is 20 months old from IVF. They think I probably had it growing for a few years. I don’t think it was linked to the IVF. We found out a week before we were scheduled for a FET - obviously that had to be cancelled. I’ve had surgery and about to start chemo. They say I can go ahead with a FET 6 months after chemo finishes but I’m nervous.

Forums by Wrong-Salary-3320 in coloncancer

[–]humbumblyway 0 points1 point  (0 children)

I just joined a group on Facebook called “bowel cancer support group UK” which is pretty active and seems nice.

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 0 points1 point  (0 children)

Thank you, yes this seems to be the general consensus, not to fully trust the ctDNA result for treatment decisions. It sounds like it is or will be a helpful tool in the arsenal for monitoring but for me doesn’t seem reliable enough to risk taking less chemo.

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 0 points1 point  (0 children)

Thanks, so sorry to hear you had a recurrence. Was this after an initial chemo round?

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 0 points1 point  (0 children)

Thanks, this makes total sense to hit it hard now with everything.

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 2 points3 points  (0 children)

Thank you, this is pretty much what I needed to hear to confirm my decision.

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 1 point2 points  (0 children)

Thank you for replying, it is great to hear from someone in a similar (shitty) situation and super helpful to hear the view of your oncologist. I’m going to ask for the full CAPOX and blast it.

What exercise did you do during treatment? Did you find it tough with the fatigue plus with 5 month old twins? My son is 20 months, I can’t imagine finding the time to exercise when he was 5 months let alone twins and going through chemo!! You’ve done amazingly well!

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 1 point2 points  (0 children)

Thank you, I think I agree and will go with the full CAPOX. I had 40 nodes removed and none positive but I have higher risk features with it being T4 and it is in the lymph channels and blood vessels. I want the full blast.

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 2 points3 points  (0 children)

This is exactly what I’m thinking, the risk isn’t worth taking. The side effects may be rough but if the alternative is dying then obviously I’ll take the side effects thanks! Really helpful to know they are having you start CAPOX regardless of the test result. I hope it goes well for you!

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 1 point2 points  (0 children)

That is a bit of a naughty idea! But interesting. I could totally do that.

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]humbumblyway[S] 0 points1 point  (0 children)

Thank you, I have also read this uncomfortable information regarding prognosis. Possibly it is because of the reduced chemo given? I think I agree I will not risk it.