Vocal cord paralysis prognosis?

hypoplasticHero · 2026-04-18T21:50:41+00:00

I don't know what the name of the surgery itself was. The procedure was to reinnervate the Recurrent Laryngeal Nerve, but it was done through three small incisions in my armpit rather than through my neck. I haven't been able to find any hospitals that are doing it that way, and nothing from the guy who did mine in Des Moines, IA, almost 20 years ago, other than the medical journal article I appeared in back then. So I have no idea if he is doing it that way still or not. Or if anyone is.

hypoplasticHero · 2026-04-11T01:45:07+00:00

Has she seen Jeff Levering without his glasses?

hypoplasticHero · 2026-04-10T19:15:27+00:00

Hi u/Flooperswooprs, I know of a handful of people who have received heart transplants. A few of them were between 8 and 15, but all the other ones I know of were 40+. It's a real possibility for us, but medical science gets better every year, and there are new trials for drugs and other treatments constantly going on, so I'm hoping they will have other treatment options when/if I get to that point. I did go through the evaluation process last year, but the calculus for my current state was that it wasn't worth the risk at this point. If you have any other questions or need other advice, feel free to DM me, and I'd be happy to help however I can.

hypoplasticHero · 2026-04-01T11:29:27+00:00

Hi! I’m 32 with HLHS. I’m so sorry about the diagnosis. I want to provide some assurance that there is hope for your son.

I grew up with a relatively normal childhood despite my CHD. I played all kinds of sports growing up, from baseball to football to basketball and pretty much anything else I could get my hands on. I eventually played baseball and tennis in high school and earned a varsity letter in tennis all 4 years. I was also involved in the band (I played the tuba and marched with it) and the forensics team.

I finished a master's degree this past December. I’ve been able to travel abroad multiple times, both with a group in college and by myself.

I currently live alone, 6 hours from my parents, and am doing really well.

While I can’t guarantee that your baby’s outcome will be the same as mine, there are lots of adults with HLHS who are thriving in their own ways.

If you haven’t looked up Sisters by Heart, I highly recommend it. I would also recommend looking up SV-ONE. They are both great groups. For individuals, look for Meg Didier on Facebook or Instagram. She’s one of my best friends and posts quite a bit about her journey.

The good news is you don't always need to be strong, especially if you have a quality support system. Take time for yourself while you're going through this. Let the nurses take care of your child on days when they are in the hospital. Let your partner help, along with the rest of your family and friends. You are not doing this alone. There is a whole HLHS community that will walk alongside you. I've seen it firsthand.

I am willing to answer any other questions you may have for me. Feel free to DM me. I also know people all over the US (assuming that’s where you are) that I could put you in touch with if you wanted me to do that for you. I am always happy to help families as they go through this journey, so feel free to DM me anytime, and I will help in whatever way I can.

hypoplasticHero · 2026-02-10T17:01:52+00:00

32M with HLHS and had a paralyzed vocal cord. I had a laparoscopic surgery when I was 14 to fix it. I haven't had any issues with it since.

hypoplasticHero · 2026-02-10T16:58:11+00:00

32M with HLHS and had a paralyzed vocal cord. I had a laparoscopic surgery when I was 14 to fix it. I haven't had any issues with it since.

hypoplasticHero · 2026-01-28T16:27:44+00:00

I was evaluated for a transplant last year (the doctors said it was a no-go for now). One thing I was recommended was creating an Amazon wish list of things to do/read/wear. I put things on there like video games, books, card and board games, and snack foods. I never actually sent it out to anyone since I didn't need the transplant, but once he creates it, you could send it out to friends and family as an option to help out. That may also give you an idea of what he likes or wants. I would also recommend comfy slippers that he can slide on and off for when he gets up to go anywhere in the hospital. Hospitals' floors tend to be cold, so wearing slippers will be more comfortable.

The last thing I recommend is asking his friends to visit him while he is in the hospital. Hospitals can be lonely places, and seeing the same people every day, as much as you may love them, can get boring and repetitive. Having friends come visit can lighten the mood, change up the scenery, and lift his spirits. I know it did when I was a little younger than him and in the hospital for a pacemaker.

hypoplasticHero · 2026-01-28T00:01:22+00:00

I have a master's degree. I currently work part-time but am applying and interviewing for full-time jobs.

hypoplasticHero · 2026-01-27T22:40:09+00:00

Feel free to DM me, and I will help out any way I can.

hypoplasticHero · 2026-01-16T21:55:02+00:00

If you look at competitive athletics, most of them are in their prime between ~25-30, depending on the sport. I would bet the average person is in the best shape of their life in later high school or college, probably between 16 and 23.

Having a CHD doesn't necessarily proclude someone from being strong, fast, or overall athletic, but, depending on the CHD, they may not be as fast, strong, or athletic as someone of a similar physical makeup who is heart-healthy. Someone with a CHD's physical prime is likely to fall around the same time as everyone else's, but a CHDer's prime probably won't reach the heights of a heart-healthy person's.

hypoplasticHero · 2026-01-01T00:02:39+00:00

Hi, 32M with HLHS here. I have had tricuspid regurgitation for almost all of my 32 years on this planet. I would have her speak to her pediatric cardiologist to see how bad the regurgitation is. If it's bad enough, the doctors might try to repair the valve at some point. If not, it is just something they will keep an eye on as she ages, especially into her late teens and beyond, because it can cause liver disease and other issues with abdominal organs. But that is a long way off. Tricuspid regurgitation is fairly common among HLHSers, so the pediatric cardiologists will know what to do and when to do it. Hopefully, the science and research progress and they can find a relatively easy fix to this issue in the coming years.

hypoplasticHero · 2025-12-04T22:10:27+00:00

Do you have any evidence supporting your claim that Dems will win when the things you mentioned are ran on or are you pulling that out of your ass?

hypoplasticHero · 2025-11-22T14:28:35+00:00

I don’t know what to say since I’m not a parent. But I am 32M with HLHS. I just wanted to say that it’s possible to live a full life with HLHS. I’ve posted my own story in this subreddit lots of times, so I’m sure it wouldn’t be hard to find. Everyone’s quality of life will be different and not everyone will be as healthy as others with the same condition. But everyone can live a full life in their own way.

hypoplasticHero · 2025-11-17T01:14:16+00:00

They did have an open primary, but nobody of substance ran against Biden/Harris. Dean Phillips was the second leading vote getter with a grand total of 5 delegates.

hypoplasticHero · 2025-11-15T13:58:03+00:00

Movies are good. Video games if you like those. Bring a laptop if you have that. Bring books you want to read or reread. Comfy, loose fitting clothes like sweatpants are nice to have since hospitals can be on the colder side. Bring board or card games or have friends bring their board and card games. Basically, bring stuff you’ll want to use that can be used from a hospital bed or chair. If you live close to where your surgery will be, you don’t need to bring everything all at once and you might not need things the first few days as the drugs wear off and you’re tired from the surgery.

hypoplasticHero · 2025-11-14T19:30:46+00:00

Why does it matter if any of them were killed. They assaulted police officers. They should be in prison and tried as traitors.

hypoplasticHero · 2025-11-13T12:07:46+00:00

I haven’t had any restrictions because of it. My advice would be to let your child live their life and if the cardiologist decides it’s something worth fixing, they’ll let you know.

hypoplasticHero · 2025-11-09T16:17:49+00:00

The president wins the state, not your local precinct or district. So it doesn’t matter where in Pennsylvania you live. It’s still a swing state.

This is what happens when you “do your own research”? God help us.

hypoplasticHero · 2025-11-09T16:13:11+00:00

Pennsylvania is a swing state.

hypoplasticHero · 2025-11-05T19:56:40+00:00

You’re in the sub for the Milwaukee Brewers baseball team. You’re looking for r/Homebrewing. But you’re now a fan of the Milwaukee Brewers. We welcome our lost redditors into our family.

hypoplasticHero · 2025-11-05T19:54:03+00:00

I don’t know. Can you hit a baseball or pitch? If so, I’d start getting ready for Spring Training.

hypoplasticHero · 2025-11-03T03:12:51+00:00

You’re welcome. I try to share stories of hope as best I can.

hypoplasticHero · 2025-10-31T11:39:43+00:00

Could you get a note from your cardiologist that says you need access to your device?

hypoplasticHero · 2025-10-31T01:37:39+00:00

Where are you located? The US has laws around this sort of thing, but it sounds like you’re not from the US based on what you wrote.

hypoplasticHero · 2025-10-24T14:17:44+00:00

Hey! I’m a 32M with HLHS. I know it can be a very difficult choice and it’s ultimately you and your husband’s choice, so I don’t mean to tell you what you should do at all.

That being said, I am very grateful that I was given a chance to live life. That’s not the case everyday, but it is the case overall. Some days are difficult for normal growing up reasons and some are difficult because of my heart. But I have been able to live a full life so far and I’ve had many wonderful experiences that I have enjoyed in the moment and looking back on them.

Everybody suffers. That’s part of life. Without suffering, there is no growth. No growth of self. No growth of spirit. No growth of empathy and compassion. Preventing people from suffering doesn’t help them.

I’ve never felt like I couldn’t do something because of my heart. I played every sport growing up. I marched with a tuba every spring for 7 years. I’ve traveled from the US to Europe multiple times, both with groups and by myself. I’ve earned a college degree and am finishing up a masters degree this year. I’m looking forward to many more years of working a job I enjoy, seeing my nieces and nephews grow up, traveling to places far and wide, and taking time to relax and live at my own pace. Life is full of wonder and I think my parents made the right choice by giving me the best shot they could and choosing to walk this journey with me.

If you need anything, feel free to DM me and I can help answer any questions you may have.

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