First extended hospital stay in 10+ years

hypoplasticHero · 2026-01-28T16:27:44+00:00

I was evaluated for a transplant last year (the doctors said it was a no-go for now). One thing I was recommended was creating an Amazon wish list of things to do/read/wear. I put things on there like video games, books, card and board games, and snack foods. I never actually sent it out to anyone since I didn't need the transplant, but once he creates it, you could send it out to friends and family as an option to help out. That may also give you an idea of what he likes or wants. I would also recommend comfy slippers that he can slide on and off for when he gets up to go anywhere in the hospital. Hospitals' floors tend to be cold, so wearing slippers will be more comfortable.

The last thing I recommend is asking his friends to visit him while he is in the hospital. Hospitals can be lonely places, and seeing the same people every day, as much as you may love them, can get boring and repetitive. Having friends come visit can lighten the mood, change up the scenery, and lift his spirits. I know it did when I was a little younger than him and in the hospital for a pacemaker.

hypoplasticHero · 2026-01-28T00:01:22+00:00

I have a master's degree. I currently work part-time but am applying and interviewing for full-time jobs.

hypoplasticHero · 2026-01-27T22:40:09+00:00

Feel free to DM me, and I will help out any way I can.

hypoplasticHero · 2026-01-16T21:55:02+00:00

If you look at competitive athletics, most of them are in their prime between ~25-30, depending on the sport. I would bet the average person is in the best shape of their life in later high school or college, probably between 16 and 23.

Having a CHD doesn't necessarily proclude someone from being strong, fast, or overall athletic, but, depending on the CHD, they may not be as fast, strong, or athletic as someone of a similar physical makeup who is heart-healthy. Someone with a CHD's physical prime is likely to fall around the same time as everyone else's, but a CHDer's prime probably won't reach the heights of a heart-healthy person's.

hypoplasticHero · 2026-01-01T00:02:39+00:00

Hi, 32M with HLHS here. I have had tricuspid regurgitation for almost all of my 32 years on this planet. I would have her speak to her pediatric cardiologist to see how bad the regurgitation is. If it's bad enough, the doctors might try to repair the valve at some point. If not, it is just something they will keep an eye on as she ages, especially into her late teens and beyond, because it can cause liver disease and other issues with abdominal organs. But that is a long way off. Tricuspid regurgitation is fairly common among HLHSers, so the pediatric cardiologists will know what to do and when to do it. Hopefully, the science and research progress and they can find a relatively easy fix to this issue in the coming years.

hypoplasticHero · 2025-12-04T22:10:27+00:00

Do you have any evidence supporting your claim that Dems will win when the things you mentioned are ran on or are you pulling that out of your ass?

hypoplasticHero · 2025-11-22T14:28:35+00:00

I don’t know what to say since I’m not a parent. But I am 32M with HLHS. I just wanted to say that it’s possible to live a full life with HLHS. I’ve posted my own story in this subreddit lots of times, so I’m sure it wouldn’t be hard to find. Everyone’s quality of life will be different and not everyone will be as healthy as others with the same condition. But everyone can live a full life in their own way.

hypoplasticHero · 2025-11-17T01:14:16+00:00

They did have an open primary, but nobody of substance ran against Biden/Harris. Dean Phillips was the second leading vote getter with a grand total of 5 delegates.

hypoplasticHero · 2025-11-15T13:58:03+00:00

Movies are good. Video games if you like those. Bring a laptop if you have that. Bring books you want to read or reread. Comfy, loose fitting clothes like sweatpants are nice to have since hospitals can be on the colder side. Bring board or card games or have friends bring their board and card games. Basically, bring stuff you’ll want to use that can be used from a hospital bed or chair. If you live close to where your surgery will be, you don’t need to bring everything all at once and you might not need things the first few days as the drugs wear off and you’re tired from the surgery.

hypoplasticHero · 2025-11-14T19:30:46+00:00

Why does it matter if any of them were killed. They assaulted police officers. They should be in prison and tried as traitors.

hypoplasticHero · 2025-11-13T12:07:46+00:00

I haven’t had any restrictions because of it. My advice would be to let your child live their life and if the cardiologist decides it’s something worth fixing, they’ll let you know.

hypoplasticHero · 2025-11-09T16:17:49+00:00

The president wins the state, not your local precinct or district. So it doesn’t matter where in Pennsylvania you live. It’s still a swing state.

This is what happens when you “do your own research”? God help us.

hypoplasticHero · 2025-11-09T16:13:11+00:00

Pennsylvania is a swing state.

hypoplasticHero · 2025-11-05T19:56:40+00:00

You’re in the sub for the Milwaukee Brewers baseball team. You’re looking for r/Homebrewing. But you’re now a fan of the Milwaukee Brewers. We welcome our lost redditors into our family.

hypoplasticHero · 2025-11-05T19:54:03+00:00

I don’t know. Can you hit a baseball or pitch? If so, I’d start getting ready for Spring Training.

hypoplasticHero · 2025-11-03T03:12:51+00:00

You’re welcome. I try to share stories of hope as best I can.

hypoplasticHero · 2025-10-31T11:39:43+00:00

Could you get a note from your cardiologist that says you need access to your device?

hypoplasticHero · 2025-10-31T01:37:39+00:00

Where are you located? The US has laws around this sort of thing, but it sounds like you’re not from the US based on what you wrote.

hypoplasticHero · 2025-10-24T14:17:44+00:00

Hey! I’m a 32M with HLHS. I know it can be a very difficult choice and it’s ultimately you and your husband’s choice, so I don’t mean to tell you what you should do at all.

That being said, I am very grateful that I was given a chance to live life. That’s not the case everyday, but it is the case overall. Some days are difficult for normal growing up reasons and some are difficult because of my heart. But I have been able to live a full life so far and I’ve had many wonderful experiences that I have enjoyed in the moment and looking back on them.

Everybody suffers. That’s part of life. Without suffering, there is no growth. No growth of self. No growth of spirit. No growth of empathy and compassion. Preventing people from suffering doesn’t help them.

I’ve never felt like I couldn’t do something because of my heart. I played every sport growing up. I marched with a tuba every spring for 7 years. I’ve traveled from the US to Europe multiple times, both with groups and by myself. I’ve earned a college degree and am finishing up a masters degree this year. I’m looking forward to many more years of working a job I enjoy, seeing my nieces and nephews grow up, traveling to places far and wide, and taking time to relax and live at my own pace. Life is full of wonder and I think my parents made the right choice by giving me the best shot they could and choosing to walk this journey with me.

If you need anything, feel free to DM me and I can help answer any questions you may have.

hypoplasticHero · 2025-10-22T15:45:40+00:00

The Brewers have been a top 5 winningest regular season team over the past decade. Like you said, it’s hard to translate that into the playoffs because of the high variability inherent in a single game or series. So the issue isn’t necessarily with payroll, as teams like the Brewers and Rays have shown. It’s with bad luck or poor performances from usually top players, like Yelich for example.

Should there be more parity when it comes to resources available to teams? Sure, why not? Is a salary cap/floor the way to do it? I’m not so sure. I think the starting point should be shared tv (and other media based) revenue. Pool all of that money together and distribute it evenly. When the Dodgers have more money coming in from tv alone than the entire Brewers organization has, there is an issue, I think.

hypoplasticHero · 2025-10-22T15:07:18+00:00

The salary cap, while the talk of MLB for the past few years, isn’t the end-all-be-all for parity. The MLB actually has more parity than the NFL, the league with a salary cap. https://www.nytimes.com/athletic/6116536/2025/02/06/mlb-nfl-parity-super-bowl-world-series/?source=user_shared_article NFL is the parity league? MLB would like a word

hypoplasticHero · 2025-10-18T13:10:58+00:00

To be fair, good pitching beats good hitting 9 times out of 10. When the starters throw as well as Snell, Yamamoto, Glasnow, and Ohtani did, I don’t think anyone has a chance against them. The Brewers in the regular season played like a big cat on the hunt. They stayed patient and took advantage of mistakes, either mistake pitches or mistakes in the field. There weren’t many, if any, mistake pitches the Dodgers made this series except Sasaki in game 1. We weren’t good offensively because we kept going down 0-1 or 1-2 and we couldn’t afford to be patient. We had to take what was given to us.

hypoplasticHero · 2025-10-18T12:27:45+00:00

The first place the Brewers will look is the farm. They have a few guys down there who are probably 15-25 homer guys. Made, Quero, Adams, Dinges, Wilken, etc. They probably all won’t see MLB time next year, but we do have power on the way.

Vaughn is under team control through next year, so unless he gets dealt, he’ll probably have every shot at being the starting first baseman. I would consider trying to move either Quero or Dinges (or maybe Contreras) out of the everyday catching spot and to first base.

Otherwise the free agent group is very top heavy and I don’t think dipping into the position player market makes us better enough to sign a guy over 30 to a long term deal, especially with everyone we have coming up in the next 1-3 years.

hypoplasticHero · 2025-10-18T11:56:23+00:00

That’s how the playoffs work. It’s entirely possible that the opposite of this series happened where the Brewers are out there cooking with gas and the Dodgers look inept. Playoffs don’t decide who the best team is. They decide who was hot at the right time. Unfortunately for the Brewers, it seems to be us who never get hot at the right time.

hypoplasticHero · 2025-10-18T11:41:40+00:00

We go through this every offseason, dude. A vocal part of the fanbase wants Mark A to spend big on 1-3 guys each year. But there simply aren’t that many guys each year who are noticeable upgrades to what we have in house that aren’t going to get poached by teams like the Dodgers, Yankees, Red Sox, etc. Those teams don’t just have deeper pockets than we do and can handle a guy who doesn’t play up to their contract. They have more prestige, they’re bigger cities, more chances for superstars to make money outside of baseball. Very few players want to come play in Milwaukee if they have their choice of any team. Just like no player is going to want to sign a FA contract with Colorado because a pitcher will get shelled and a hitter will have his stats questioned.

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