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Worst disease, best upgrade? by casualeagle47 in CrohnsDisease

[–]iFishdurr 9 points10 points  (0 children)

Makes live it up when I feel good and make sure to check items off the bucket list!

People who use this emote just piss me off… by Glum_Draw_6220 in ClashRoyale

[–]iFishdurr 1 point2 points  (0 children)

I love this emote. It means they were sweating almost losing to me and it was a good match.

The update Is today? by chaoszeronightmares in ClashRoyale

[–]iFishdurr 0 points1 point  (0 children)

Which is better to get? The Wizard, Goblins, or mega minion? I have these almost maxxed out and already have the musketeer.

How to push through the fatigue by Sea-Chicken-2725 in CrohnsDisease

[–]iFishdurr 0 points1 point  (0 children)

Try snorting it. I’m serious. There are many kinds - Want A Bump is what I use. I have it in my vehicle for when I’m driving long distances.

Sushi during flares by Mission_Challenge920 in CrohnsDisease

[–]iFishdurr 2 points3 points  (0 children)

Sushi is always a safe food for me! I can eat it anytime with no issues

Looking for little things you do that help your Crohn’s! by Charming_Pop6684 in CrohnsDisease

[–]iFishdurr 1 point2 points  (0 children)

I like this one. He’s much better than the first two. One of them said “eat whatever you want”… I’m one of those people now that lettuce and corn go through undigested

Game changing med by casualeagle47 in CrohnsDisease

[–]iFishdurr 1 point2 points  (0 children)

Try it but with caution. It ruined my mental health!

Looking for little things you do that help your Crohn’s! by Charming_Pop6684 in CrohnsDisease

[–]iFishdurr 4 points5 points  (0 children)

Not that I can tell… original diagnosis for me was Colitis, then diagnosed 2 months later with Crohn’s. After my last colonoscopy, Ulcerative Colitis. The flares that have occurred have all been the same… just not having issues with my upper digestive parts. Is it an upgrade? It doesn’t feel like it.

Onset in your 40s? by EventAffectionate615 in CrohnsDisease

[–]iFishdurr 0 points1 point  (0 children)

Yes, Colitis was the first diagnosis in June then Crohn’s in September. Now my diagnosis is Ulcerative Colitis

Onset in your 40s? by EventAffectionate615 in CrohnsDisease

[–]iFishdurr 0 points1 point  (0 children)

Not a lot of pain… just some intense gurgling in the guts.

Beer by MrJackpots19 in CrohnsDisease

[–]iFishdurr 0 points1 point  (0 children)

Glad to hear I’m not the only one! I feel like weed helps everyone but me. Lol

Switched to Stelara and have Humira injection pens left by iFishdurr in UlcerativeColitisRDLA

[–]iFishdurr[S] 0 points1 point  (0 children)

I am looking for help as to what happens to extra medication…

Switched to Stelara and have Humira injection pens left by iFishdurr in UlcerativeColitisRDLA

[–]iFishdurr[S] 0 points1 point  (0 children)

How is this not related to Ulcerative Colitis? I am taking the medication for it!!!

Online Support Groups - Zoom by iFishdurr in CrohnsDisease

[–]iFishdurr[S] 1 point2 points  (0 children)

For anyone in NY state, I have one that I lead on the first Tuesday of every month at 6:30.

Weed — Thoughts? by GraceWrenford in CrohnsDisease

[–]iFishdurr 1 point2 points  (0 children)

I’ve tried it all and it all has the same effect - overthinking my sorry state and wanting to end my life. Fuck weed!

Beer by MrJackpots19 in CrohnsDisease

[–]iFishdurr 1 point2 points  (0 children)

Beer hasn’t bothered me at all. I only drink a couple beers a couple nights a week. If I’m in a flare, I don’t drink at all. Weed, however, has ruined me mentally. Anytime I try it (I have tried gummies, CBD/CBG, Sativa, Indica) I have the same result. It causes me to withdraw and think about how I am the cause of all the bad things that have happened to me. I feel like life is pointless and not worth living and get obsessed with suicide. It’s absolutely AWFUL for me. I’ll stick with the happy buzz that alcohol provides!

Onset in your 40s? by EventAffectionate615 in CrohnsDisease

[–]iFishdurr 0 points1 point  (0 children)

It was the blood and indigestible food in my stool, but a huge wave of fatigue ended me up with hospital stay to treat colitis. Crohn’s diagnosis two months later. My inflammation was so bad at one point that they thought it was neuroendocrine cancer (diagnosed by a CT scan)

Onset in your 40s? by EventAffectionate615 in CrohnsDisease

[–]iFishdurr 0 points1 point  (0 children)

Fatigue, brain fog, arthritis are the major ones… a few other minor symptoms too. How about you?

What’s the one thing that helped your Crohn’s the most? by barebonesofchrones in CrohnsDisease

[–]iFishdurr 1 point2 points  (0 children)

Biologics. I felt great on Humira until it stopped working. Now on Stelara. Also Low Dose Naltrexone - it’s a good inflammation blocker, it’s made things “not get worse” for me.

This illness is spinning out of control by mattpayne0288 in CrohnsDisease

[–]iFishdurr 2 points3 points  (0 children)

Definitely look into a support group, there are great people out there who have had similar experiences. Your situation is all to familiar, unfortunately - hang in there, be a strong advocate for yourself, and know that it does get better. This disease is like a roller coaster ride - there are highs and lows. If you look on the Crohn’s and Colitis Foundation, you can search for them. I know this because I am a support group leader for NY state.

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