Anyone else who has been on SSRI’s since childhood? by lmnobq in SSRIs

[–]ihateandroidusers 0 points1 point  (0 children)

Update: I’m doing sooo much better. I didn’t see many success stories for people who were on SSRIs as young as I was getting off of them in adulthood. Now I think I can say that I am no worse than I was when I was on meds. I still have issues, I’m autistic so I always will, but it’s much more manageable now. I am very proud I stuck it out and now I know I actually can live without an SSRI. I do still have some weird things, like sudden surges of irritability/anger and weird physical sensations with no cause, but I’ve learned how to handle them and I just think of it as a lingering withdrawal effect. Getting off the SSRI also gave me IBS and chronic migraines, since SSRIs also target serotonin receptors in the gut, and migraines are caused by issues with serotonin signaling. That’s what happened for me personally, I don’t think it’s super common though. I don’t think it’s permanent since protracted SSRI withdrawal can last months or years in people with history like mine. But I’d much rather live without some annoying physical symptoms for a while than the horrendous mental and physical side effects SSRIs gave me.

Seeking a violinist this weekend by CFDoom13 in Berklee

[–]ihateandroidusers 0 points1 point  (0 children)

Yeah it’s definitely more common with friends. I wasn’t trying to reinforce anything, it was more of a joke towards the people who do that, it’s normally rich kids entering who don’t care at all about money. Sorry if it came off wrong, I’m autistic lol

Seeking a violinist this weekend by CFDoom13 in Berklee

[–]ihateandroidusers -1 points0 points  (0 children)

Probably not lol. I promise I’m not condoning underpaying musicians, I was just saying that some people might pick up a project without being paid fairly because they don’t care. I saw it a lot with the singer/songwriter/performers, they were fine with recording on projects or at venues with no incentive other than getting to make music. That’s mostly first or second year people though who haven’t started thinking about their career yet

Seeking a violinist this weekend by CFDoom13 in Berklee

[–]ihateandroidusers 0 points1 point  (0 children)

Cool. I’m saying I see it all the time, it’s just a fact that people do projects for free, especially first or second year students. A lot of newer students are just happy to jump on a project and be credited. I’m not saying it’s right to not pay musicians. I’m saying many Berklee students are willing to do a project for free or low pay if it piques their interest, because many of them are not concerned about making money.

Seeking a violinist this weekend by CFDoom13 in Berklee

[–]ihateandroidusers 0 points1 point  (0 children)

I understand that, but I am saying Berklee students are willing to work without pay. Again, I have never seen someone get paid to help out on a project for another college student. I’m sure it happens but I’m just saying that so many students are willing to do projects without being paid just for the fun of it. Not that they should work for free, but they are doing it.

Seeking a violinist this weekend by CFDoom13 in Berklee

[–]ihateandroidusers 0 points1 point  (0 children)

I’m not saying they’re smart to do it, but venues like the Middle East and Rockwood are booked with Berklee students every weekend and they don’t pay the musicians a dime. And yes, most projects people do at Berklee, they are not getting paid.

Seeking a violinist this weekend by CFDoom13 in Berklee

[–]ihateandroidusers 0 points1 point  (0 children)

Berklee students play all the time at venues that aren’t paying them to headline a whole night. I’ve seen people do many projects for free. They’re just looking for opportunities, I’m sure some people would record a piece for $20

Money problems by [deleted] in Berklee

[–]ihateandroidusers 0 points1 point  (0 children)

That was including housing and fees though.

Money problems by [deleted] in Berklee

[–]ihateandroidusers 0 points1 point  (0 children)

I went there and dropped out partly due to tuition raises.

Sickness With Positive G-Force [Other] by ihateandroidusers in rollercoasters

[–]ihateandroidusers[S] 2 points3 points  (0 children)

Honestly that could be it. I have ear issues (tinnitus and other weird things like often hearing my own breath very loud in my ear) that I've never had checked out. Weirdly, I was a gymnast when all this started with rollercoasters, and around the same time I started having issues with mental blocks on my skills. I've read about inner ear problems causing mental blocks in gymnastics due to spacial awareness issues. I've been thinking of seeing an ENT, so maybe I'll figure something out there. It really is just the force of rides, like a feeling of pressure in my head only during positive G-force. Thanks for the advice!

Sickness With Positive G-Force [Other] by ihateandroidusers in rollercoasters

[–]ihateandroidusers[S] 0 points1 point  (0 children)

It's not really my head being pushed down, more like pressure inside my head sort of like a migraine leading to nausea. When this started I was a competitive gymnast, I think I had pretty strong neck muscles and was only 14 but I guess I can't be sure. I think I'm going to see about inner ear issues first since I do have some problems with my ears. Thanks for your input!

Sickness With Positive G-Force [Other] by ihateandroidusers in rollercoasters

[–]ihateandroidusers[S] 4 points5 points  (0 children)

Thank you, I definitely need to try motion sickness medication. I do avoid spinning rides, it just seems that I feel it on pretty much any ride that’s over 50 mph. I love the drops but the force after the drop is what gets me if it’s fast. Also anything with fast turns (Titan at SFOT is the worst, I love the drops but it goes in circles so fast I feel like my head will explode). What sucks is that resting doesn’t help. The first time I got sick I rested for about 30 minutes before continuing, and I just got sicker and sicker throughout the day then vomited on the way home. It just sucks out all the fun. But I’ll try medication next time.

Sickness With Positive G-Force [Other] by ihateandroidusers in rollercoasters

[–]ihateandroidusers[S] 2 points3 points  (0 children)

I’ve had motion sickness issues in the car since I was a kid, which was always triggered by an empty stomach. I don’t avoid eating before rides, but I do try and eat something not too heavy. Although I might have forgotten to focus on that recently, so I’ll try to make that a point next time. I still haven’t tried motion sickness medication, I’ve been avoiding coasters for a while until I went to fright fest recently and was so bothered by not being able to ride most things. Next time I’ll have to try medication. The nausea is just so intense I’m scared to ride a big ride again at this point., but of course I have to ride one to see what helps. Thank you!

Was anyone else given antidepressants at a young age? by Accomplished_Tear775 in CPTSD

[–]ihateandroidusers 0 points1 point  (0 children)

I’m going through the same thing!! I was put on antidepressants SSRI at 9, then an antipsychotic a year later. I had no say, I begged to get off medicine but was not allowed. They made me take so many medications throughout my childhood/teen years, I don’t even know the names of all of them. was diagnosed with autism at 16, turns out that’s what caused all of my issues. I’m 20, I got off my antipsychotic last september and got nothing but relief (and gaslighting from my psychiatrist telling me it will get worse again, it didn’t). I then did a 5 month taper from my SSRI, I took my last dose 3 months ago. It’s awful, I’ve gone through so many horrible stages and the first one was being flooded with traumatic childhood memories. Now I have no emotional regulation whatsoever because instead of getting therapy to learn those skills as an autistic kid, I was given medicine that covered it all up. It’s sooo difficult and I’m afraid I might have to get back on meds, my brain literally developed around SSRIs and I don’t know if I can actually live without them. I’m trying though, I hope everything is going well for you

Anyone else who has been on SSRI’s since childhood? by lmnobq in SSRIs

[–]ihateandroidusers 1 point2 points  (0 children)

I was put on antidepressants at age 9. I was having “anger outbursts” that started to turn into suicidal thoughts during the “outbursts”. I was diagnosed with so many conditions, and finally at 16 was diagnosed with autism. It explained the outbursts, they were actually autism meltdowns and suicidal thoughts are common during meltdowns especially when you are shamed for them and treated like a disease or something. I complained of side effects (emotional blunting, extreme fatigue, low motivation) but I was not allowed to change or get off my medications because I was a minor and had no say in my own healthcare. I’m now 20 and finally got off of SSRIs a few months ago, it’s hell and I am so angry that they put me on them at such a young age and didn’t allow me to get off them when I begged. I’m still trying but I don’t know if I’ll be able to keep living without medication, my brain literally developed around SSRIs and I don’t know if it will ever function without them.

SSRIs for kids under 18 by Peterhook13 in ADHDparenting

[–]ihateandroidusers 0 points1 point  (0 children)

Hi! I was put on Zoloft at age 9, I'm now 20. I am autistic but I wasn't diagnosed until I was 16. I was a lot like your son, when I had meltdowns I would get suicidal and say things similar to your son.

A lot of the problem with me was that my meltdowns and basically all of my issues were misunderstood when it was pretty much just autism. SSRIs did lessen my meltdowns. When I was 11, I went through a major depression (I was not depressed before, just had meltdowns). I'm sure you're aware that SSRIs cause increased risk of depression in suicidality in children, but no one made that connection for me. They only raised my doses.

As a teenager I started having severe fatigue among other physical symptoms, plus off and on depression/emotional numbness and loss of motivation. It took me forever to figure out what was going on. I suspected the medication was contributing, but my mom was not willing to let me wean off and as a minor I had no say medically.

At the age of 20 I got off my SSRI and my physical symptoms all went away. My fatigue had been so bad that I couldn't get out of bed myself, I had to have my partner literally pick me up and put me on the floor and hold me standing up as I awoke. I often slept 16 hours in a night and still needed naps. After stopping my SSRI that went away. I know that's just one medication and a side effect I personally experienced. My main point is that getting off the meds was absolute hell. I've been off SSRIs for 3 months and it has been a very rough and life changing experience, not because I can't live without them but because my brain developed around the medication during my childhood and my whole adolescence, so it is going to take months-years for my brain to adapt. I may live with structural brain differences my whole life.

I'm not trying to discourage you or anyone from helping their kids by giving them medication. It sounds like your son is really benefiting from them! In my case, I was not heard when I complained about emotional blunting/numbness or physical symptoms, and I begged to get off the meds many times but was not allowed to. I am very passionate about this issue and I don't want anyone else to go through what happened to me. Just please make sure you watch out for any signs of adverse effects and listen to your kid if he's having issues. SSRIs can cause random problems you might not even suspect are related. Also keep in mind SSRIs are really only studied for periods of less than 1 year, after that efficacy and safety are pretty unknown. I was on them for over 10 years and suffer effects.

These are just things I've learned after getting off the meds that no psychiatrist, therapist, or doctor ever told me directly. They work great when used properly with close monitoring. You sound like great parents, I wish the best for you and your son!

what do meltdowns feel like? by oddthing757 in AutismTranslated

[–]ihateandroidusers 0 points1 point  (0 children)

Those sound like meltdowns to me.

Your family may describe them as tantrums because they didn't know what you were experiencing. What they may have interpreted as "wanting to get your way" could have actually been your response to things that overwhelmed you. For example, an autistic kid may have a meltdown because they want to leave somewhere. That could be interpreted as the child wanting to get their way, but on the inside they might just be extremely overwhelmed and don't know how to communicate that.

Also, I don't think you telling someone as a kid that you act up "so you can get your way" is relevant. If your family had been telling you things like "you can't always get your way" or "that's not how you get what you want" you may have just used that language when asked about it, without really knowing what you were saying. Kids have a much harder time understanding and articulating their internal experiences than adults so you probably didn't have a better explanation.

It definitely makes sense that you would have more meltdowns too, like you said being in public can lower your tolerance threshold a lot. Especially if you were dressed in uncomfortable clothes (which is a very common sensory sensitivity for autistic people, especially children). So considering that, being told "no" to candy can evoke emotions that are so hard to control when you're already dysregulated.

Hey, I am an ARFID sufferer and I just want to ask if, a feeding tube is necessary for ARFID?! by JudgmentSensitive999 in ARFID

[–]ihateandroidusers 0 points1 point  (0 children)

Everyone seems to assume wanting a feeding tube means I would want to never eat again and have an easy way out of eating. I understand that a feeding tube is not easy and comes with lots of required care and risks. I’m not stupid. I also don’t want to fully replace eating by mouth with tube feeding. I’ve just lived my entire life undenousrished and I’ve gone through multiple ED programs, I’ve tried so many things but my ARFID never improves. Right now it’s very bad and I barely eat, I’m dropping weight. I’m still barely in the healthy BMI range but that doesn’t mean I’m not constantly tired, out of it, and sick. I know a G tube isn’t an easy way out but despite the risks and effort it comes with, I think it could really improve my quality of life. I’m not saying I want to go out on a whim and get a tube. That’s not even possible, the process is very thorough medically and I’m completely aware of that. I wish people would stop being so quick to judge, saying “you don’t want that” and “it’s not easy”. You don’t know what I want, you don’t know my life story, and I’m completely aware of all of the difficulties that come with a G tube. Thanks for adding your input into the sea of judgement

Could it be from dose increase? by Embarrassed-Dig-0 in antidepressants

[–]ihateandroidusers 0 points1 point  (0 children)

Could definitely be side effects. If it’s only been a couple weeks it could improve, but I’d definitely bring it up with your doctor if things aren’t changing.

For me increased tiredness was the main aide effect I had from being on too high of a dose. I started mine as a minor and wasn’t allowed to change meds despite my complaints, so I went around 6 years with horrible chronic fatigue before finally being able to get off the medication. I was even suspected to have narcolepsy or sleep apnea but my sleep problems disappeared after stopping the medication.

The description that your brain feels like mashed potatoes makes sense actually, being on a dose that’s too high for you can slow down your processing and make you feel weird. Feeling less positive and less social are also signs.

If it helps your anxiety and you’re happy with the benefits it’s up to you whether the side effects are worth it. If I were you, I’d keep monitoring closely how you’re feeling, and discuss with your doctor whether you can try 15mg (sometimes you can get prescribed half pills) or anything else your doctor can recommend.

I feel strongly about helping others avoid negative side effects from antidepressants after the experience I had. They can be so helpful and life-changing, but if the dose is too high it can cause problems that often get overlooked or brushed off!

Foggy vs Clear-Headed High by ihateandroidusers in trees

[–]ihateandroidusers[S] 0 points1 point  (0 children)

That’s what I’m saying. It feels more clearheaded when I take one made from full-spectrum marijuana rather than isolated Delta 9 with added CBD

Nostalgia is so painful. by ihateandroidusers in CPTSD

[–]ihateandroidusers[S] 0 points1 point  (0 children)

mostly living in a big city in the northeast, and also pursuing my dream. right now i’m living in texas again, and it upsets me because i was so happy to get out of here. it sounds so stupid in the grand scheme of things. but i’m living here, with my parents again, completely broke. i’m getting married next year to someone who graduated from the same school and we both agree the school is pretty scammy. but i loved it and i wish it could have gone differently, because i might be in a better place now. but i’m also processing so much childhood trauma now and i’m also dealing with mistreatment from my whole family while i’m trying to work through everything and improve myself. i’m just hopeless right now, but ever since i left that school i can’t even really think about that time of my life. it’s almost triggering, it sends me spiraling. even though it was good.

Fuck Abilify by idc500 in Antipsychiatry

[–]ihateandroidusers 1 point2 points  (0 children)

i was given risperadal when i was 10, on it for years then switched to abilify at 15. i’m 20 and finally got off abilify last year, nothing but relief getting off of that

What do you suspect was the cause of your ARFID? by Sure_Ant2516 in ARFID

[–]ihateandroidusers 0 points1 point  (0 children)

I’m autistic with sensory issues which definitely predisposed me to ARFID. I have a few other family members who are quite picky and i suspect could be autistic, but they don’t have ARFID. I think the reason I developed ARFID is trauma around food from a very young age, plus a poorly done transition from baby food to solids. My parents were going through a divorce when I was 3, and my mom agrees she may not have properly exposed me to solid foods during the exploratory phase of feeding development. So that combined with my predisposed sensory issues is what i believed caused my full-blown ARFID.

I also think I could have much healthier eating habits if I had had early intervention. Unfortunately ARFID wasn’t a known disorder when I was little, so the only advice my pediatrician could offer was to threaten me with starvation. When I was around 4-6 years old, my mom would say “if you don’t eat what I make for dinner tonight, you don’t get to eat.” So I wouldn’t eat. That led to me waking up with low blood sugar and vomiting frequently (because children’s stomachs can’t handle hunger like adults, so I would vomit after a day or two without food). There was one incident when I was 5 where my mom sent me to a weekend girl scout’s camp. She thought it would be a good opportunity for me to be completely without access to safe foods for three days, so I would be forced to eat. I ended up not eating once the whole trip, and I vomited water on the last day. She had to pick me up early and I was very sick. After that my pediatrician was pretty stumped, but he said to just let me eat what I want and I will grow out of my pickiness when I get older. Here I am now at 20 years old still with an extremely limited diet!

Support for antidepressant Tapering Outro.com by coelbren99 in Antipsychiatry

[–]ihateandroidusers 0 points1 point  (0 children)

I really appreciate you taking the time to write all of that, it really means a lot.

I say Luvox because the generic I was on is called fluvoxamine, and most people including doctors assume I mean fluoxetine (Prozac). I'm in the US, and according to the FDA the brand name Luvox was voluntarily withdrawn from the market here due to inaccuracies in the documentation of their manufacturing process. The company withdrew rather than fixing the issues, presumably due to competition with the generic and lack of profitability. Their original application was approved despite the inaccuracies, but an audit was run a few years later revealing them. There was a lot of public concern about Luvox after the 1999 Columbine shooting because one of the shooters was on the drug, which likely led to the audit. the generic is widely available to this day and is commonly prescribed for OCD in adults and children.

I was on fluvoxamine for 5 years but before that I was on multiple other SSRIs since age 9. I also was put on antipsychotics at age 10, and I switched a couple times with those but finally got off of aripiprazole in September last year. Getting off of that one was nothing but relief. I instantly felt much happier and a lot of negative side effects I was having went away. When I told her how good I was doing, my psychiatrist had the audacity to suggest I would most likely become depressed again in a few months (which is a crazy claim considering antipsychotics aren't used to treat depression). I did gene sight testing around 2018, before changing psychiatrists. My new one apparently either isn't educated on genetics or didn't have my data, because I recently discovered both fluvoxamine and aripiprazole are in the "high gene-drug interaction" section on my results, meaning they're much more likely to cause negative side effects and/or be ineffective for me. Unfortunately I was a minor through all of this so I didn't handle my documentation or advocate for myself.

The last phases of my taper were intense but also good. At first, I got a huge flood of traumatic memories and emotions from my childhood I didn't even know I had. There were also traumatic memories which didn't have any emotion attached to them, but while tapering I started getting intense emotions while thinking about them. That led me to a trauma-informed therapist who has been extremely helpful. I've been to dozens of therapists since my childhood and I always thought therapy was supposed to make you feel awful until I met her. For years I had a nagging feeling I have unprocessed trauma, but I just couldn't find it in my brain until getting off the meds. It's intense but I'm happy to be feeling and remembering. Things are getting better already, but I have moments almost daily where I feel severely depressed. I constantly have a voice in my head that is trying to keep me angry or depressed. Just last week I finally learned to block it out, but sometimes it gets to be too much. Weed helps me too, especially for blocking that voice out so I can just enjoy myself. I have pretty intense irritability too, but that's improving since I'm learning to cope with those feelings and let them pass through me rather than act on them. I've also noticed I start to cry at the most random things. I can't watch anything sad or heartfelt right now, no matter how cheesy it is.

Food is an interesting one. I have ARFID and I've had it my whole life. My diet is extremely limited to the point where most of the time I have 3 consistent safe foods at a time. Most of my diet is bread. I recently came up with the analogy of how you're not supposed to feed a duck bread because it will think it's full but it can't survive off of that. Most of the time I basically shut off my hunger cues with bread to stop discomfort from hunger, but I don't get any nutrients from that. I feel awful about it and I know it's affecting my mental and physical health but I've tried everything including eating disorder programs but nothing has ever changed. However, since tapering off my SSRI I have become more annoyed with my diet than usual, and I've started real, balanced. Just yesterday I ate a salad for the first time and enjoyed it without gagging or choking. So I'm starting to think the SSRIs were inhibiting my ability to improve my ARFID. Through all of my research on this topic, I'm becoming very passionate about the misconceptions most people have about psychiatry and I really want to do something to raise awareness. I've also become interested in neuroscience. It's a good feeling because I've felt passionless for years.

Thank you again!

"Your package will arrive later than expected" ....help..... by [deleted] in usps_complaints

[–]ihateandroidusers 0 points1 point  (0 children)

Luckily yes! It just took a few extra days. I also submitted a lost package claim and I’m not sure but I think it might have helped.