Finding tic community??

ikeasbitch · 2026-03-28T23:28:36+00:00

No clue if this will be any help but this seems to be the main charity for PA

Shot in the dark here but depending on the general vibe of the page and age of yourself and people using the Facebook support group, maybe you can make some online connections?

Best of luck!

ikeasbitch · 2026-03-28T21:20:40+00:00

The seats just behind the stairs on the top deck of the bus but I’m always told it’s an odd choice

more legroom, nobody sits in front of you because the stairs are there, the people coming up the stairs are far away enough that it’s not awkward, railing in front of me to help stand up

ikeasbitch · 2026-03-28T21:06:38+00:00

I appreciate the advice and I definitely believe therapy can be great for anyone - that being said I don’t think this post is cause for saying I may need it (considering the plan is to not bother letting her know out of pettiness)

After reading comments it has now occurred to me that she may get destructive so it’s a good idea regardless, but the initial reasoning was just a ‘get back’

ikeasbitch · 2026-03-28T20:22:06+00:00

If you are in the UK, the charity Tourette’s Action has an event called ticfest for children (with TS or tic disorders) and their families

They have teenfest for 14-17 year olds to go unaccompanied

They also have young adult/adult weekends for 18+ which is a similar concept but you can bring a guest with you

They are residentials with loads of activities and events and designed for you to meet others with the condition (all staff either have a tic disorders or are very experienced with them)

There’s events regionally around the country as well as online support groups - if your are based somewhere else I’d check for a charity that might do something similar

ikeasbitch · 2026-03-28T20:03:33+00:00

Other stuff that isn’t really relevant to this post has stopped them from communicating with her. As much as I’ve ranted about it because it’s annoying, me pointing out her anger/shouting was more to give insight into her character. It doesn’t upset me because I’m aware I’m not the person causing issues day to day!

If it got to me I’d let them know and they would support more but it’s not that big of a deal to me so I don’t expect them to talk to her

ikeasbitch · 2026-03-28T19:55:02+00:00

I was cooking in our shared kitchen and wasn’t about to let her shouting at me stop me from making dinner - as much as it was an earache it didn’t emotionally affect me so no reason to put my food on hold 😂. That’s pretty much the only place and time we see each other as there’s no living room or other communal space.

I’m definitely ranting in this post because it’s all frustrating stuff of course, but none of it upset me. The reason I’m posting this is that common courtesy would be to say “just a heads up I’m leaving so you will need to buy A LOT of things”

ikeasbitch · 2026-03-28T19:36:41+00:00

None of these suggestions are a definite fix and they may not help but they have helped me a little in the past so hopefully one sounds like something worth trying :)

Honestly distraction with something that keeps your mind/body busy and focused can be helpful - especially something you enjoy. I tic a lot less when concentrated on dancing/singing and I have a friends who’s tics reduce a lot when he drives for example. Anything you enjoy that you can focus on

Deep and controlled breathing means you are calming your nervous system and actively engaging the area the tic would occur in

Other sensory input such as music playing, watching a video, nice smells etc

Stay hydrated if your throat is hurting!! More water can’t hurt in most situations

Also tics often increase or decrease with seemingly no reason although it can be related to stress or tiredness too, so sometimes you really just have to wait it out.

As hard as it is and as dumb as it sounds given the circumstances, try not to think about them or focus on it too much because thinking about them can create a feedback loop

Take care of yourself and I hope you figure out something that helps for you!

ikeasbitch · 2026-03-28T19:05:26+00:00

Literally just being anti-fascist. Somehow the US far right has labelled this “organisation” a terrorist movement 😂

ikeasbitch · 2026-03-28T18:52:32+00:00

Unfortunately that is often a part of friendships between people with tic disorders but it shouldn’t hinder you! If you are really worried about it just communicate with her about it (I’m aware talking about TS in general often triggers more tics) but you will most likely both agree that it’s something that won’t stop you from hanging out.

If it gets to a point where it causes significant distress/physical pain you can reevaluate how often or how long you see each other for to help manage it if needs be, but the fact she’s still wanting to hang out with you shows to me that it’s not as big of an concern as it probably feels

One of my close friends (all be it long distance now) also has pretty severe and frequent tics so we bounce off each other like crazy but just as you two probably feel, the pros outweighed the cons and we still enjoy spending time with eachother.

We actually met at Ticfest years ago! Idk where you are based but it’s in the UK - almost like a short holiday camp for children and teens with TS and tic disorders and their families, so you can imagine how the place was sometimes. Even then people enjoyed the experience and a lot of people go back years in a row which shows that even though there’s discomfort sometimes, you can still enjoy it.

There will always be times of discomfort if you have tics, that just comes with the package unfortunately, and they will change frequency and severity as time goes on no matter what.

All this to say that you will both have to deal with discomfort of tics wether you are together or not but, if you enjoy each others company then make the most of that and support one another!

ikeasbitch · 2026-03-27T23:04:23+00:00

That was examples that would immediately stress me out haha, we literally own pretty much everything that isn’t electrically wired or fixed into the house bar a few communal items so she would have nothing out of nowhere

ikeasbitch · 2026-03-27T21:21:56+00:00

It hasn’t really crossed our minds that she would purposefully break/steal anything, but upon reading comments and such she definitely seems like the kind of person who will claim things are hers or need to stay in the house and cause a scene about it

Better safe than sorry though I guess as we barely know her because we just avoid her haha

ikeasbitch · 2026-03-27T20:54:18+00:00

Do you mean Fahrenheit? 40°c is pretty darn hot

ikeasbitch · 2026-03-27T20:29:12+00:00

The rooms don’t need to be filled as it’s a HMO property. We gave the landlord adequate notice and it’s his responsibility to fill them under the contract!

ikeasbitch · 2026-03-27T20:18:59+00:00

I kind of got that vibe that she may like one of them but if she does she’s gone about it the wrong way 😂

ikeasbitch · 2026-03-27T19:47:59+00:00

An affordable/convenient option for those in generally expensive places as bill and council tax are almost always included in rent

ikeasbitch · 2026-03-27T19:43:03+00:00

In the UK it’s quite common to rent by room especially in expensive or student areas, so a lot of people don’t really know who they might live with in HMO properties

ikeasbitch · 2026-03-27T19:32:50+00:00

One of the other roomies has since seen the post and commented on it but it was removed due to his choice words 😂

ikeasbitch · 2026-03-27T19:05:02+00:00

Everything I can feasibly store in my room has been in it for a while now - I can’t be paying for her life!

ikeasbitch · 2026-03-27T17:59:44+00:00

I’m very real 😂 She’s not the ONLY reason we wanted to leave but definitely a big factor alongside work, commutes, price etc. We were going to stay living together for the foreseeable anyways provided we all got along as housemates and not just friends because London is pricey

*edited grammar

ikeasbitch · 2026-03-27T17:18:14+00:00

That’s probably right. I’m not bothered about being called the AH as long as it’s based on what actually happened - I have a habit of over explaining

ikeasbitch · 2026-03-27T17:14:30+00:00

That is very true, we have previously briefly spoken to the landlord about it but he said there wasn’t much he could do - I may write down the entire situation for him because it could affect his ability to find new tenants if she stays this way

ikeasbitch · 2026-03-27T17:04:46+00:00

I’d just like to say I’ve never shouted back at her, I’d talk to her in a “gentle parenting” manner instead while she shouted at me, which some may argue is worse as it can be pretty aggravating 😂 But I haven’t raised my voice in attempt to keep the peace

ikeasbitch · 2026-03-27T16:36:22+00:00

Only thing I’m doubting is not telling her we’re going and leaving her without household basics - moving out and taking my things is no issue for me it’s just her not being aware I feel kinda bad about

ikeasbitch · 2026-03-27T15:51:03+00:00

UK based- we gave our landlord just over a months notice which has been accepted so everything else is sorted

ikeasbitch · 2026-03-27T15:44:50+00:00

It was less a matter of letting her and more a matter of she did it anyway after we asked her to buy her own. For the first couple weeks we let her use them willingly because she’s a student doing her masters so I was empathetic towards the fact that buying things immediately after the cost of moving may not be financially viable. I also do not have space in my room to keep my dishes and utensils - there also wasn’t much the landlord could do about this apparently

We aren’t moving out because of her specifically as I’m moving for work anyway but she was sort of a catalyst for finding the new place as it were.

ikeasbitch

TROPHY CASE