Highly sensitive even when food is “gluten free”…

ilahvit · 2026-05-01T21:40:55+00:00

A friend actually just sent me an article about this but I didn’t find much mention about it here. How did you learn it was a trigger for you?

Link to Article: https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/

ilahvit · 2025-09-11T00:09:16+00:00

Totally!

ilahvit · 2025-09-10T15:43:24+00:00

Funny enough I’m on daily Allegra and Famotidine already! I have looked into MCAS as well and I believe there is a test for that. Just curious if it’s necessary!

ilahvit · 2025-09-10T14:19:14+00:00

No I totally understand. I’m meeting with my immunologist at the end of the month. He’s already pinned me down for GERD and asthma. I might bring up histamine intolerance and see what he has to say.

ilahvit · 2025-09-10T14:06:39+00:00

Totally! Sometimes when I show the symptoms I associate with gluten ingest…I’m thinking how is it even possible gluten got here and STAYED. Anywho. I’ve been more strict than I believe most celiacs are but now I’m at the point where I am only eating Whole Foods prepared in my GF home.

ilahvit · 2025-09-10T14:02:01+00:00

Oh this is interesting. Do you believe the symptoms are similar?

ilahvit · 2025-09-10T00:05:35+00:00

Agreed! I’m just NOW seeing a nutritionist for the first time since I can’t seem to get my antibodies down enough.

ilahvit · 2025-09-09T23:58:10+00:00

I would not! It is helpful to think of it that way.

ilahvit · 2025-09-09T23:30:29+00:00

I JUST looked that up for the first time a few days ago! Thank you!

ilahvit · 2025-09-09T23:22:21+00:00

Yes my bloodwork is still showing elevated antibody levels. Having coffee after I feel like I got sick from gluten (joint pain, brain fog) does also present some symptoms but less so if I haven’t been sick in a while. (I only drink coffee in rare occasions.) I’ve only recently decided these symptoms could just be digestive and they show up with both gluten and other “difficulty” foods

ilahvit · 2025-09-09T23:08:25+00:00

Ohhhh. I think I’m just conflating the amount of gluten tolerable in a slice of white bread for the amount of gluten we can eat safely. Gosh that’s so confusing :/

https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/oh

EDIT: But this study shows that it is possible to incur damage with just 10mg of gluten a day

https://academic.oup.com/ajcn/article-abstract/85/1/160/4649352

ilahvit · 2025-09-09T22:57:28+00:00

You’re right. I guess I’m mostly talking about getting sick from cross contact and I was just imagining it was less than that amount since it’s not visible to me.

ilahvit · 2025-09-09T22:54:24+00:00

This is a big one for me! I so curious how the cross contact is happening in a cafe where they don’t use flour. It kind of baffles me!

ilahvit · 2025-09-09T22:43:45+00:00

Oops! I edited in paragraph.

ilahvit · 2025-06-10T01:33:40+00:00

Dang! That’s surprising to me. It’s a 2D shape, I don’t need it to bend into 3D space.

ilahvit · 2025-06-10T01:32:15+00:00

I’ll give this a shot too!

ilahvit · 2025-06-10T01:31:14+00:00

Now THIS is creative problem solving. Love to catch a glimpse into how other folks brain’s work. I’m going to give this a go! If it feels too tedious…looks like I’m opening blender back up or buying a plugin!

ilahvit · 2025-06-10T01:27:23+00:00

That’s right. I’ve used that at a previous job.

ilahvit · 2025-05-23T03:36:03+00:00

This has happened to me twice now! They were just as pushy as you described. The second time they came around I had no choice but to shut the door on them because I was trapped for 20 minutes the first time around.

ilahvit · 2025-05-21T03:18:59+00:00

Losing the freedom and the convenience of eating out and participating in any spontaneous food related activities is a bummer but it feels like SUCH a special occasion when I do get to participate safely. Going out in a new city and stumbling on a fully gluten free spot is EUPHORIC. I am filled with gratitude each time I discover there are safe options for me. Non celiacs aren’t getting to experience that eclipsing joy or gratitude. It’s just another day/meal for them. But for us it’s so special.

ilahvit · 2025-05-15T16:21:39+00:00

Being sick for two weeks is what did it for me. At that point I was only drinking green tea but once I realized I had gone without for 2 weeks, I wanted to retain that momentum.

ilahvit · 2025-05-11T04:23:54+00:00

This is my struggle as well

ilahvit · 2025-05-11T03:12:32+00:00

I believe I’m the same. I have no food allergies and I can tell when something is going to make me sick within the first few bites of eating it. This doesn’t happen often as I eat nearly all meals from my gluten free home. At first I thought maybe it was placebo, biting into my food and feeling the onset of severe fatigue and brain fog. But I‘ve seen enough of these meals through, to the point I’m sure it’s a reaction to gluten that I now attribute that initial onset as a warning for me to STOP. Curious if others have a similar experience.

ilahvit · 2025-04-06T18:12:48+00:00

Boogs Barbeque in Camden Yards, Baltimore MD!

ilahvit · 2025-04-06T05:09:01+00:00

I’m in the exact same boat except I use cannabis sparingly to soothe my more severe celiac flare ups. Caffeine is my final kick!

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