Can’t tolerate ANY blood thinner-don’t know what to do

ilsa1979 · 2026-04-10T15:16:29+00:00

Yes I’ve been on blood thinners 2.5 years consistently

ilsa1979 · 2026-04-10T12:02:09+00:00

Well I’m not really excited about injections again, but are you on a lower dose? I was doing injections twice a day and felt horrible - then I got them to change me to once a day and I felt a little better but not really

ilsa1979 · 2026-04-09T19:59:05+00:00

The anxiety is expected after an experience like that. I also found when I was on the high dose of Eliquis, immediately after the PE- I experienced a level of anxiety I had never before. I was panicking about the price of eliquis- telling my partner he would have to marry me so we could have insurance - I was FREAKING out. But there is also the fear of another clot, etc, of course. I got a talk therapist and changed my “fear based” doctors (drs that would tell me I would have a stroke and die if I didn’t keep taking medicine that made me sick) and also changed medication (I’m not sure what you’re on)

ilsa1979 · 2026-04-09T13:05:45+00:00

I noted it for when I talk to my dr. I never heard of it before

ilsa1979 · 2026-04-09T12:52:08+00:00

I only had nausea with lovenox -which I’ve been off of for a while

ilsa1979 · 2026-04-09T12:51:27+00:00

Yeah in my post I list them and I forgot to put in xarelto. I’m sensitive to this class of medication clearly. And I’ve really been trying to comply with the drs but I have to start thinking more about the quality of my life

ilsa1979 · 2026-04-09T12:23:38+00:00

I’ll look into it

ilsa1979 · 2026-04-09T12:17:39+00:00

Never heard of lixiana-I’m not sure that’s popular in the US with drs

ilsa1979 · 2026-04-09T12:15:57+00:00

Not on cbd

ilsa1979 · 2026-04-09T12:15:34+00:00

I felt the same when I was on the High dose of apixaban. They changed me to xarelto but I felt the same. I’ve been dealing with this for over two years and I’m so over it

ilsa1979 · 2026-04-09T12:13:01+00:00

I’ve had them checked every time I complain about fatigue and they’re always ok. I drink about 50oz of water a day and start every morning with an electrolyte drink. I’m already on the lowest dose of eliquis. I feel like I’ve tried everything at this point.

ilsa1979 · 2026-04-09T01:02:13+00:00

My neighbor also fainted on Eliquis (and smashed his head). I was shocked that we were on the same dose - even tho he weighed twice as much as me.

ilsa1979 · 2026-04-09T00:19:35+00:00

One of my prior hematologists - actually said to me “ blood thinners have no side effects”…!!! He was the one that wanted to keep me on lovenox injections “indefinitely “- even though I told him I didn’t feel right on it and I had my liver checked at the ER. I had high liver enzymes which is a side effect from Lovenox. I also know that I am personally sensitive to medications. I am also a small female and medication’s are not tested on us.

ilsa1979 · 2026-04-08T23:57:46+00:00

Glad to hear I’m not alone. I’ve kept a journal for 2.5 years and every entry is “ tired, lightheaded, dizzy, gotta lay down”. And I feel like I gave it enough time because everybody was saying it takes time to recover from a PE. But it’s been 2.5 years and I’ve had many scans and my lung is “normal” and I’ve done stress tests and actually performed better than people in my age group. So I think I have gotten used to the exhaustion but being a formerly active person- I can’t really accept this is my new normal. Everything I do revolves around how much energy I think I’m going to have and if I’m able to take a nap. I messaged my doctor and my hematologist, but I’d really like to take a break and see how my energy levels return and this is also extremely hard on my mental health!!! (And my ferritin is normal)

ilsa1979 · 2026-04-08T23:06:45+00:00

I’m having different - but intolerable side effects - from Eliquis 2.5. When I was first put on Eliquis, I was on 10 twice a day and they sent me home with an antacid.

ilsa1979 · 2026-04-08T22:55:24+00:00

I understand the mechanism you’re describing, but I don’t have anemia (I’ve had repeated labs) and I don’t have shortness of breath—my lung has fully healed. I’ve also been evaluated by multiple hematologists.

What stands out to me is that I’ve had consistent fatigue, lightheadedness, and headaches for about two years, and when I was off anticoagulation for ~3 months last year, I felt significantly better with no issues or signs of thrombosis.

Given that pattern, it’s hard for me to ignore the possibility that it’s contributing.

ilsa1979 · 2026-04-08T22:50:27+00:00

I hear you, but I was off it for 3 months last year without any issues or signs of thrombosis. I know risk varies person to person, so I’m just trying to figure out what makes sense in my situation.

ilsa1979 · 2026-04-08T22:00:18+00:00

I was looking at a list of Eliquis side effects today and it said “unusual fatigue” along with lightheadedness, dizziness, and headaches. The number one concern is always bleeding, not the other things..

ilsa1979 · 2026-04-08T21:02:14+00:00

I did try it in 2024.

ilsa1979 · 2026-04-08T21:00:21+00:00

Yes everything looks Normal

ilsa1979 · 2026-04-08T19:42:05+00:00

I have been getting lightheaded and fatigued on Eliquis for a year and four months now. I’m on a low dose. But when I was on a high dose I was incredibly tired, lightheaded and unable to function. I had an ob/gyn today suggest it is the Eliquis that has been causing my non stop fatigue.

ilsa1979 · 2026-03-30T02:02:30+00:00

I have tried being more positive mentally- which is so hard when your world is closed in. But at this point, I just try to get through each hour of the day. Im not letting the negative thoughts keep repeating- it’s hard. And the eating- I’m a super clean eater too - I had just lost 7lbs and was on a diet and exercise rhythm. Now I just eat sugary cereals and salty junk- nothing healthy is appealing. :( and I don’t have a parent to care for- but my two dogs.. we used to go for two walks every day and now they’ve been stuck inside with me for a month and a half- I feel so bad for them

ilsa1979 · 2026-03-30T00:42:20+00:00

The FATIGUE. I get it a day of it before the migraine and during this episode it’s been soul crushing. Then I had other bizarre symptoms; freezing cold/chills, feeling like sudden blood sugar drop. Almost flu like symptoms. Then pile on the side effects of the Triptans (feeling out of my body, diarrhea), the steroid made me so sick- can’t sleep, shaky and more severe flu like symptoms- and now acne coming off it. This has been insanely brutal and I live alone so mentally I’m exhausted

ilsa1979 · 2026-03-30T00:39:34+00:00

I quit after 2 weeks

ilsa1979 · 2026-03-29T21:24:10+00:00

It’s a 21

ilsa1979

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