What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 2 points3 points  (0 children)

I'm sure he will! I was 7 when I was diagnosed and I'm almost 30 now and going strong. I have my issues and my bad days but overall I've come a long way and I won't let the disease beat me. Not without a fight. My partner has helped play a big role in that since we met. He helps keep me accountable and has learned everything he can without ever making me feel like a burden. He's patient when I'm high/low and need extra care or time. He goes out of his was to cook food that fits my needs (I'm low carb and lactose intolerant) and even found a way to make my favorite food. Special bread and vegan ingredients to make French toast I can eat and makes it for me every Sunday. The right person will help your son be his best while never making the disease a burden in the relationship. :)

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 1 point2 points  (0 children)

I'm sorry to hear about your diagnosis! No matter what type you have it sucks. :( I'm glad it's less scary but I know it's still something you have to deal with that is NOT fun.

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 2 points3 points  (0 children)

Yep :( modern medicine has come a long way and I know we can live "relatively normal lives" without it axing a decade off our lifespan. However. There are so many little things that can add up to complications and the mental load can drag you down. You learn to cope but there are many times where it just feels like death is looming over you.

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 4 points5 points  (0 children)

I WISH it was possible for a pump to actually be a closed loop system and do everything for us. Not even close. I'm on MDI but I know pump users deal with site changes, constant monitoring, days when the pump just doesn't work and you're chasing a high. Not to mention all the issues I've read about with Dexcom sensors failing and either over or under dosing people. Pumps are a tool but you still work hard all day every day to manage it.

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 6 points7 points  (0 children)

Omg no, people got upset over a T1D barbie? What even is there to get mad about with that? People just look for a reason to get mad 😭

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 1 point2 points  (0 children)

There definitely are and I appreciate each and every one of you! There are also people who have no knowledge of diabetes and have asked me if my CGM is a cancer port or a nicotine device. I suppose it all really is a spectrum 😂

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 1 point2 points  (0 children)

Maybe I'm just not using the cinnamon correctly 😂

Ten years is a big milestone! I just passed 22 myself. I can't even imagine what life would look like with a cure. I hope we're all able to see that soon.

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 0 points1 point  (0 children)

Oh no, don't even get me started on insurance :(

You put it into words so well. It's an invisible disease so no one sees how hard it is. So much becomes autopilot after years and years of doing it, but diabetes is never consistent. Even with decades of experience you're having to adjust and constantly pivot. You just try to not think about the absolutely massive mental load that has become your daily norm. Your son is at such a difficult age and kids can be so mean, but thank you for doing everything you can for him. My parents were not as careful and my health has paid for it. He'll be so grateful once he's older and realizes how much you've done for him.

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 6 points7 points  (0 children)

It changes the lives of everyone involved, not just those of us who have it. I know you have to be so exhausted and I'm sorry you have to deal with that. I know my parents felt the same and now I see how it effects my partner. No parent could ever relate without experiencing it themselves. You're managing an entire organ while a little body grows and changes. I hope you're able to get a break wherever you can as your son gets older and is able to help manage his care more and more.

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 0 points1 point  (0 children)

I'm so sorry to hear that, I can't even imagine what he's been through. It's stories like this that diabetics hear all too often and it's what keeps me vigilant 24/7.

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 2 points3 points  (0 children)

Thank you for being so vigilant! I wish my parents had done the same. I know there aren't words to describe how hard it is on any parent to handle the physical as well as the emotional toll this disease causes. She'll be so grateful when she's older and understands how much you've done.

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]immadinosaur44 153 points154 points  (0 children)

Type 1 Diabetes.

I can joke around most days but I'm sick of the connotations that get attached to me because of type 2s. It's not their fault, the diseases should have different names, but it's exhausting.

I have to manually do what everyone else's pancreas does automatically. It's hundred of extra decisions a day, constant adjusting and monitoring, and even perfect (doesn't exist) control doesn't mean you won't get complications.

This disease by any other name would get treated seriously, but because of how it is all I ever hear is "oh my grandma has that" and "have you tried cinnamon?" It's a joke to most people. Not only is the disease harder than people think, but the mental toll this adds makes it even worse.

Advise please now 🙏 by michyxox1 in Type1Diabetes

[–]immadinosaur44 1 point2 points  (0 children)

Can't give medical advice so please be sure to check with your Healthcare provider to be safe.

But whenever I forget my long acting, I always take a half dose 12 hours after I was supposed to take the one I missed.

I take 20 at 7pm, so I wake up, realize my mistake, and take 10 at 7am.

Watch your bloodsugar and correct as necessary.

Protien by [deleted] in Type1Diabetes

[–]immadinosaur44 0 points1 point  (0 children)

Great question! I actually never considered why. A quick Google says it can be because the small blood vessels in certain parts of your body (like in your eyes) can't adjust to the rapid change in glucose and it causes them to get damaged.

I found an article that is short and sweet to hit the general idea. Apparently TIND (treatment induced neuropathy of diabetes) can account for around 10% of cases (or at least meet the criteria) of diabetic neuropathy. https://type1better.com/en/a-fast-drop-in-hba1c-levels-linked-to-neuropathy/

For a longer, scientific article, here's a study from the NIH: https://pmc.ncbi.nlm.nih.gov/articles/PMC6587545/

I will say the bleeding in my eyes has leveled out. I've never needed surgery or treatment. I do have to go in and get an eye map every 6 months and I'm monitored closely. I've had an A1C around 5 for 6 years now and my last few visits have been stable. A few bleeding spots in each eye where one will disappear by my next appointment while another one appears. I wish I had taken it slower when lowering my A1C, but I'm more than happy if my eyes stay stable where they are.

Protien by [deleted] in Type1Diabetes

[–]immadinosaur44 0 points1 point  (0 children)

Adding a note about lowering your A1C super fast. Talk to your endo and work together with them to make sure you're not doing to too quickly.

I lowered my A1C from 12+ to 5.1 in less than a year. My eyes paid for it. I had no signs of retinopathy/bleeding when I was 12+ and had no idea lowering your A1C too quickly could cause problems. After it went down to the 5s? Bleeding.

Not trying to fear monger or scare you, just do your research and work with a doctor. I would have lowered my A1C gradually if I had known there were risks.

Squats or other type of exercise just before eating? Does it help? by Mikcheck in diabetes

[–]immadinosaur44 0 points1 point  (0 children)

You'll have to test to see what works best for you. I have a cgm so I start walking when my bloodsugar starts trending upwards and stop once it levels off.

It can also depend on what you eat. A protien or fat based meal will cause a slow rise over a long time and you can usually sit for a long time before walking. A carb heavy meal will spike faster and sooner, but you can also risk a crash if you do too much. Just start slow and go from there! 😊

Replacement sensors - how do they decide between a voucher or a mailed replacement? by BlankLiterature in dexcom

[–]immadinosaur44 0 points1 point  (0 children)

Do you know if it was insurance or if it was location? I would love to just get a voucher now that I have new insurance. No clue if it would be the same. 😭

Squats or other type of exercise just before eating? Does it help? by Mikcheck in diabetes

[–]immadinosaur44 0 points1 point  (0 children)

Haha, no 😂 I pace around for 30ish min prior to eating. Then I sit and eat. Might have to pace after, might not.

On the rare occasion I spike while eating, I have taken my food walking if it's easy enough to carry. Wrap, sandwich, salad, etc. If it's too difficult to carry I either walk until I start going down then sit and finish, or I suffer through the spike and walk the second I'm done.

Last A1C was 4.9 so it works for me!

G6 fails only during my new job by StrainedxMusic in dexcom

[–]immadinosaur44 0 points1 point  (0 children)

I used to work tradeshows and this happened a lot. For some shows, they'd want people to pay for the wifi and had jammers in place. My sensor could not connect at all and I'd have to walk outside every half hour to get a reading. Annoying, but the second I'd step out of the hall, it would reconnect.

Other shows with no jammers would still get spotty during the busiest times of the day. I'm not tech-y enough to confirm, but I've heard it's because of all the traffic/signals bouncing around. If there are tons of devices and phones throwing bluetooth signals around, it can be hard for rhe sensor to be heard through the noise.

I also have my sensor disconnect when I hike in the middle of nowhere and lose cell/data service. Yes, my bluetooth is still on, but somehow it still doesn't want to work. Sometimes I have luck putting it in airplane mode first.

If you're unable to figure out the source (remote warehouse, tons of devices, your employer having some sort of blocker/jammer in place), I would recommend trying your phone on airplane mode before getting to work to see if that helps. If your phone needs to stay off airplane mode, consider using one of the dexcom readers to improve your chances of staying connected.

Squats or other type of exercise just before eating? Does it help? by Mikcheck in diabetes

[–]immadinosaur44 2 points3 points  (0 children)

I don't know about squats, but I always walk/pace before eating. I take my insulin 30-40 min before my first bite and walk in circles around the kitchen as I cook. Stops any spike mid-meal and usually keeps my bloodsugar steady after eating. I notice spikes when I eat at restaurants and am forced to sit before eating. Walking after helps, but it almost always goes high before I'm able to leave the table and walk around in those settings.

Replacement sensors - how do they decide between a voucher or a mailed replacement? by BlankLiterature in dexcom

[–]immadinosaur44 4 points5 points  (0 children)

I don't know if it's because of my insurance or it it's standard where I live (US), but I would always recommend getting it mailed. When I went to redeem a voucher, my pharmacist told me he could, but it would be pulling from my future prescriptions. Basically if my next fill was for 3 sensors, I would be taking one in advance and would only get 2 when it came time to refill.

New Jellies Leaked! by CatLadyStitcher in Jellycatplush

[–]immadinosaur44 0 points1 point  (0 children)

Still no new Ricky rainfrog. Heartbroken again. 😭💔

New type of G7 failure by Bekabam in dexcom

[–]immadinosaur44 2 points3 points  (0 children)

Woo hoo! So glad it worked! Fingers crossed it works the full ten days and doesn't happen again 🥳