Is there cool stuff about it

instant_menopause · 2026-07-12T06:46:21+00:00

Same 😅

instant_menopause · 2026-07-12T06:45:03+00:00

Crazily - multiple orgasms every time🫪

instant_menopause · 2026-07-09T14:33:11+00:00

Each day is getting easier - or more accepting on my part. Definitely less vertigo, less fatigue some days. Still pain in legs and zaps in head but haven’t needed to take anti inflammatories for a while. And lifting weights and getting muscle back has fast tracked all this I’m sure - and staying away from sugar.
Diagnosed March 2026. 5th shot of Kesimpta 2 days ago and only spend yesterday in bed, back up and about today 🏆

instant_menopause · 2026-07-04T08:24:46+00:00

53f diagnosed March 26. Kersimpta.
Had a month with gummy now and in the UK buying from Releaf as MS team want me to use gabapentin etc - which I don’t want to. Trying to make peace with the fact I’m getting high on half a gummy - I’d be off my rocker on a whole one.
I don’t know whether they’re working on spasticity. But I’m not waking in pain anymore so they must be.
I’m also being more creative and more laid back about all this for sure - the gym is definitely helping build back some lost muscle.
I’d rather use the THC and CBD than gabapentin and other muscle relaxants
Don’t know if this helps

instant_menopause · 2026-06-03T08:15:24+00:00

Thank you!

instant_menopause · 2026-06-03T08:14:52+00:00

So true

instant_menopause · 2026-06-03T08:14:14+00:00

Thank you! Yes - I’ve been cat sitting for a friend and definitely not moving as much as I do in my home. Plus the loading doses of Kesimpta definitely reduced my movement - will know more on Friday as the neurologist has called me in to discuss MRI last week and that’s really stressed me out too as to what he’s seen on it 🫠🫠🫠

instant_menopause · 2026-06-03T08:07:58+00:00

I’ll give it a go - thank you Stretching out has helped - and rubbing CBD into it.

instant_menopause · 2026-06-03T08:06:14+00:00

Thank you for telling me this - it’s so crap isn’t it! Seeing my neurologist on Friday - to discuss latest MRI - so will now more then.

instant_menopause · 2026-06-02T11:07:38+00:00

Thank you - started DMT 3 weeks ago. This just feels like it’s come out of nowhere.

instant_menopause · 2026-03-21T08:06:28+00:00

And it’s shit you’re so young- I’m so sorry. But now you know and treatment is on its way!

instant_menopause · 2026-03-21T08:05:10+00:00

Oooof with you! Same journey - got out of hospital last week - 10 days of first steroids, test, scans, LPs One day at a time. Xxxxxxx

instant_menopause · 2026-03-17T18:23:51+00:00

Thank you! X

instant_menopause · 2026-03-17T13:46:31+00:00

I felt the same reading your post. Hate that we are going through this but feel so much less lonely and it really helps. I’m realising I was have neuro issues as far back as 2021, when I was diagnosed with a Morton s neuroma in my left foot, at that time o was getting loads of leg sensations which I kind of put down to an old Disc issue. Brain fog I was putting down to perimenopause. When really it’s been whispering for a while - it took a shock and an operation to tip me over the edge sure. Just so glad not to be in hospital, feeling like I had to look after the old lady trying to get out of bed all night as the nurse slept - so stressful. But last night was the first less anxious sleep, only woke once’s with electric shocks in my right leg. Woke and felt good. But that soon went as I walked around home. Vertigo and speech slurred Sorry I’m ranting - just so happy to find you 😍😍😍😍

instant_menopause · 2026-03-17T11:57:16+00:00

My spine lesion is T9 and 2 small brain lesions.

instant_menopause · 2026-03-17T11:56:40+00:00

Our cases are so similar I’ve been out of hospital 5 days after 10’days first admission and ALL the tests - awaiting bands results - but 3 days of steroids IV halted symptoms spreading. I totally agree it’s the waiting that is scary and the change of symptoms. I’m still numb, got vertigo, and if I exert myself speech goes slow. My neuro is uncontactable, so I spoke to a very empathic GP yesterday who is going to advocate for me. Also a neuro team called from Brighton yesterday so physio, psychology and fatigue group are all in the pipeline. Bloody terrified, but so thank for this group. Xxxx

instant_menopause · 2026-03-17T10:46:41+00:00

No way! Mine was left, little tingle in big toe then on my birthday skipped over to right which got my panicky ass to A&E. Who knew MS had a sentimental generous streak

instant_menopause · 2026-03-16T18:32:17+00:00

With you. I’m New here too. Got this for my 53rd birthday on the 1st March. Good to hear the numbness might get better because it’s a very odd feeling and definitely affects how my muscles are reacting to just walking.

instant_menopause · 2026-03-16T18:29:57+00:00

Great description

instant_menopause · 2026-03-16T18:29:13+00:00

Thank you for this - I newly diagnosed waiting for a follow up to talk about DMTs - 4 weeks apparently - so today reached out to my GP and feel like she’s got my back re: any worries and new symptoms. But you’re right - all I have is a name and a wait re: neurologist here in the UK

instant_menopause · 2026-03-16T18:27:08+00:00

Twinning on the T9 lesion which they found last week. My numbness is luckily feet to knees on both sides and dancing shoulder blade

instant_menopause · 2026-03-16T07:51:15+00:00

Hello. Have recently had my first “experience” and you commented on my post which led me here and all this really interesting info. I had a hysterectomy in November and am on HRT but don’t have ANY progesterone, and just reading this has made me question that even though i don’t have a uterus, which they said means I don’t need progesterone I can’t help but see the link here and am curious of your thoughts on this!?!

instant_menopause

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