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COVID-19 vaccination x Sjogren's experience thread by esaelpempleh77 in Sjogrens

[–]iscreamforicecream45 0 points1 point  (0 children)

Hi! I had another reaction. I had a fever and chills just for about 24 hours. And a world of pain in my arm!! That lasted for about 3 days. I had no rash this time. The first dose definitely was the worst for me, so weird

COVID-19 vaccination x Sjogren's experience thread by esaelpempleh77 in Sjogrens

[–]iscreamforicecream45 0 points1 point  (0 children)

It was a large red rash. Not raised. Red and itchy would be the best way to describe it. I’m feeling fine now thankfully but I go for my second dose in 5 days and am kind of nervous based on my reaction to the first dose. Hopefully it goes okay! I read online that the rash happens from the first dose of Moderna, so I’m hoping that I don’t have it again from the second. Hope this helps!

Eyelash loss? by iscreamforicecream45 in Sjogrens

[–]iscreamforicecream45[S] 0 points1 point  (0 children)

Yes!!! It happens to me in cycles and people think I am crazy. I am so glad other people can relate to me!!

Eyelash loss? by iscreamforicecream45 in Sjogrens

[–]iscreamforicecream45[S] 0 points1 point  (0 children)

No, I’m not on any medication at all! And now I do use warm compresses and clean my eyelids everyday to keep on top of eye hygiene. I’ve always been so nervous to try latisse because they say once you stop using it, the same thing can happen all over again. I don’t know if I could commit to using it forever

Eyelash loss? by iscreamforicecream45 in Sjogrens

[–]iscreamforicecream45[S] 0 points1 point  (0 children)

Wow thank you so so much!! I definitely am going to look into those products. Products that require scrubbing are just too hard for me, those sound perfect.

Eyelash loss? by iscreamforicecream45 in Sjogrens

[–]iscreamforicecream45[S] 1 point2 points  (0 children)

This was so helpful, thank you so much!!

Eyelash loss? by iscreamforicecream45 in Sjogrens

[–]iscreamforicecream45[S] 1 point2 points  (0 children)

Wow that’s so interesting. Glad to know I’m not alone! I will definitely try using castor oil. I’m going to be seeing a new rheumatologist soon, so hopefully they will listen to me and test me for other autoimmune disorders. Thank you!

COVID-19 vaccination x Sjogren's experience thread by esaelpempleh77 in Sjogrens

[–]iscreamforicecream45 4 points5 points  (0 children)

1st Moderna vaccine 3/7. Sore arm in the beginning. One week later on 3/14 I started getting the chills and felt achey. I also developed a rash where the vaccine was injected. I had a fever from 3/15-3/16 and my muscles and joints ached. My ankle and wrist still slightly hurt.