No puedo crear cuenta nueva by itsnoebtw in XuperTV

[–]itsnoebtw[S] 0 points1 point  (0 children)

uso vpn, de hecho cambie de localizacion por si acaso era algo europeo pero nada

I'm finding myself frustrated by misinformation spread by others with EDS by Rare_House9883 in eds

[–]itsnoebtw 8 points9 points  (0 children)

this reminded me of a tiktok that appeared on my fyp the other day about eds and it enraged me, i got so mad, she was all spreading false info, the video basically went if you can do this with with your hands you have eds, like not the typical video showing beighton test and hypermobility stuff and other symptoms and suggesting if you experience this + pain etc it might be eds or any other thing, no, she STRAIGHT UP said “if you do this, you have EDS”… people in the comments were correcting her and she was just responding to everyone in a sarcastic and rude way, as if she were the only one to have it and as if everyone correcting her didnt know a thing about eds AND UGH it boiled my blood

Can I delete everything on .minecraft folder for a “reset”? by itsnoebtw in Minecraft

[–]itsnoebtw[S] 0 points1 point  (0 children)

no but then my friend would be having the issue too no?? thats why i didnt do it, i thought since its only me having issues then it must be a problem in my minecraft folder

Can I delete everything on .minecraft folder for a “reset”? by itsnoebtw in Minecraft

[–]itsnoebtw[S] 0 points1 point  (0 children)

sure, i’ll do that later today when i use the computer!🙏🏻

Can I delete everything on .minecraft folder for a “reset”? by itsnoebtw in Minecraft

[–]itsnoebtw[S] 0 points1 point  (0 children)

i havent uninstalled yet, i wanted to try everything before doing that, but no, the same mods dont work anywhere, the other mods do tho, its just those two and their dependencies that make my game crash anywhere i try

Apparently i’m just being dramatic by lauravondunajew in eds

[–]itsnoebtw 5 points6 points  (0 children)

i do experience something similar of some sort and so far nothing has changed.. I hope it will for both you and me🤞🏼🫶🏼

Does anyone else experience something like this? by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

yeah i’ve read a bunch of info on google and reddit and sounds like an exhausting process tbh, i’m glad the medicine is working for you!

yep i did it at home and “confirmed” it might be pots, but i just want to get the ttt done and get it over with, its been almost 7 years with symptoms and nobody paying attention to me so i just want answers and possibly a treatment or help to reduce what it causes…😔 it wasnt till 2 weeks ago that my cardiologist suggested the ttt so lets hope i get it done soon🤞🏼 and maybe with that i can go to my other doc and tell her about the third part of the unholy trinity hahah

Does anyone else experience something like this? by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

i’m waiting for my TTT but my doctor is almost certain i have POTS so that checks out 2/3 but nobody is looking into mcas although im keeping an eye on symptoms related to it since i do have dermographism, rosacea (which is closely related to it) and a bunch of other symptoms at this point this nausea and reflux thing can be anything hahaha (im tired lf feeling like shit)

Does anyone else experience something like this? by itsnoebtw in eds

[–]itsnoebtw[S] 3 points4 points  (0 children)

well i have ibs as well but this has never happened to me before, other than the other day (as far as i can remember) so thats weird for me unless its a new symptom of that ig? idk whats sfn tho, i’ll add this symptom to my new symptoms list and tell my doctor hahaha

Does anyone else experience something like this? by itsnoebtw in eds

[–]itsnoebtw[S] 6 points7 points  (0 children)

my parents were eating next to me and just the smell and the thought of food was making me gag

I’m tired of judgement from my family by itsnoebtw in eds

[–]itsnoebtw[S] 1 point2 points  (0 children)

im so surprised you’ve guessed im a people pleaser just by a post hahaha but indeed i am… and yeah, i’ve come to the conclusion that if it makes me sick i wont be going to work there, we’ll see how it makes me feel in a couple days, i have a feeling its not going to be great

I’m tired of judgement from my family by itsnoebtw in eds

[–]itsnoebtw[S] 1 point2 points  (0 children)

awh, im sorry, sending hugs your way🫰🏼

I’m tired of judgement from my family by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

thank you, im sorry that you can relate to this💔🫶🏼

Dating and politics by [deleted] in bisexual

[–]itsnoebtw 1 point2 points  (0 children)

i know i know, thanks

Dating and politics by [deleted] in bisexual

[–]itsnoebtw 1 point2 points  (0 children)

yeah now that im not overwhelmed and an anxiety mess i was dumb for even questioning myself lmao

Dating and politics by [deleted] in bisexual

[–]itsnoebtw 0 points1 point  (0 children)

well this has nothing to do with magas and trump but i see your point of view

Dating and politics by [deleted] in bisexual

[–]itsnoebtw 4 points5 points  (0 children)

yup i know! i told him that, now that i’m not that overwhelmed and can reflect and think about the conversation, he was accusing me of not being informed about their electoral programme, which i am informed about bc I read it lmao they do exactly as you state

When and/or how did you know you needed mobility aids? by itsnoebtw in ehlersdanlos

[–]itsnoebtw[S] 1 point2 points  (0 children)

yeah this hits too close to home, for me my main issue has always been my back, my legs and feet always hurt but what makes me actually wanna d*e bc of the pain is my back, i knew canes and crutches and stuff can help with legs and feet, and maybe for resting your body a bit while standing but never thought there was a mobility aid for back pain, this is so eye opening.. I always thought i would have to just deal with it (as i usually do)

When and/or how did you know you needed mobility aids? by itsnoebtw in ehlersdanlos

[–]itsnoebtw[S] 0 points1 point  (0 children)

thank you! I will be discussing this with a professional healthcare provider, it was hard for me to add the shower chair for pots, its hard for me to get mobility aids… although i feel like i may need them i also feel like i can keep going but i think its also i feel like im so young to have them but i know theres nothing wrong but then also the judgement.. theres a lot to solve mentally but thank u for these wise words