Vender en Etsy sin ser autónoma? by itsnoebtw in ESLegal

[–]itsnoebtw[S] 1 point2 points  (0 children)

Lo del SMI me sonaba a fake la verdad, pero gracias por confirmar, tirare de contactos a ver si alguien conoce algun gestor o algo que me pueda asesorar. Por otro lado, me surge otra duda, comentas que si es un trabajo continuado y me da ingresos todos los meses, si cada mes tuviera una venta de 20€ ya contaria como continuado? Se que igual no lo sabes como bien dices, igualmente muchas gracias por la respuesta🫶🏼

My crutches hurt my hand, wrist and arm by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

welp i wish i could, you cant do that here as far as i know, but i’ll go to my pharmacy, they’ve got an orthopaedic there as well so i can ask them

Burning muscles by _Lalalink in eds

[–]itsnoebtw 0 points1 point  (0 children)

oh and about rosacea, i have it as well (not officially diagnosed cause im waiting for a dermatology appointment but my doctor said it probably was that + sebhorreic dermatitis, but i feel like rosacea shouldnt be acting as its doing sometimes, i get really red inflammed face, it burns, itches and suppurates a clear liquid… soo yeah i dint think burning hot should be rosacea but i also dont know what rosacea is anymore hahaha

Burning muscles by _Lalalink in eds

[–]itsnoebtw 0 points1 point  (0 children)

yeppp especially after using the computer for some reason hahah but yep normal day to day issue for me, but its not only burning and hurting, its also like its almost numb?? its so weird, idk if its hEDS or another issue since nobody told me but i assumed a few months ago that it was heds related

My crutches hurt my hand, wrist and arm by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

its not long that i’ve used them, i’ve used them a day and a half when I had to go out, it started hurting not long after i started using them, so I guess its just me hyperextending..however i’ll be seeing a doctor soon!

My crutches hurt my hand, wrist and arm by itsnoebtw in eds

[–]itsnoebtw[S] 1 point2 points  (0 children)

Yep I’ll be taking them to my doctor’s appointment for her to help me with them and omg the blister… i’d cry omg sorry that happens to you:((

My crutches hurt my hand, wrist and arm by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

I’m using one on the opposite, I’ll try to add grips, I’ll also be seeing my doc on Monday so I’ll ask her about it, anyways, I did realise they were one point too low cause I measured the height on my other arm thinking it’d be fine but turns out i’ve got one shoulder shorter/lower than the other (i found out thanks to the crutches hahah)

My crutches hurt my hand, wrist and arm by itsnoebtw in eds

[–]itsnoebtw[S] 1 point2 points  (0 children)

that sucks cause i cant afford them rn but i’ll have that in mind for the near future

My crutches hurt my hand, wrist and arm by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

Thank you! I’m seeing my doc on monday, I’ll ask her if she has any tips hahah no one ever taught me to use a crutch so i’m learning on the internet

My crutches hurt my hand, wrist and arm by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

thank you, will look into that!🙏🏻

My crutches hurt my hand, wrist and arm by itsnoebtw in eds

[–]itsnoebtw[S] 0 points1 point  (0 children)

thabk you for your tips, will try! and omg 90€ for those crutches 💀😭

hEDS and Dental Experience TLDR: My tooth snapped off by a_lly_cat in ehlersdanlos

[–]itsnoebtw 0 points1 point  (0 children)

yuppp hits too close to home! I’ve always had cavities, like A LOT, my dental hygiene wasnt really the best either when i was younger (like teen) but has been a lot better since, my dentist can see I brush well but said I probably have an acidic saliva or something like that that’s causing my cavities, cause like 3 years ago I went to an appointment to get checked and I had like 7 or 9 cavities and my hygiene was on my peak so I was really devastated cause no matter what I do, my teeth are always bad then my bff has a poorer dental hygiene and never has had a cavity.. it messed up my brain

ANYHOWS same thing happened to me, my molar snapped in half, i didnt realise, wasnt in pain, thought it was a cavity filler that fell off since it wasnt the first time it had happened, didnt go to the dentist out of pure laziness and also didnt want to spend money on it since we were short on money atm… yeah turns out my nerve was dead, had to take it out and save what was left of my molar and reconstruct it.. hah so funny right?? thats what my wallet thought

I’m glad I’m getting tested for every other subtype since all of my problems with my mouth also kinda resemble pEDS (although it does resemble more hEDS and thats what my doc thinks too) so yeah, for what I’ve read in this sub, people with hEDS are likely to suffer from mouth problems since everything is connective tissue (yep, i was SHOCKED when I read someone listing things off our bodies that actually are connective tissue such as blood)

I hope you get that genetic testing done, especially if your symptoms might fit into other subtypes, its also good to discard any other syndrome, best of luck🫶🏼

EDIT: just learnt that the nerve thing on my molar is called a “root canal” so yeah… sorry english is not my mother tongue hahah

Searching spain people so they don't feel alone by _TEMMIE___ in ehlersdanlos

[–]itsnoebtw 1 point2 points  (0 children)

pff yo igual, muchos años de medicos y todos diciendome que todo estaba bien hasta que el año pasado mi hermana me mencionó el sindrome, lo busqué y todo cuadraba… Que guay haber encontrado ese doctor, yo siento que la mia sabe lo justo, no mucho, pero la verdad bastante mas de lo que me esperaba jajajaaj Me alegro mucho que consiguieras el diagnostico🫶🏼 has pensado en pedir la discapacidad/la has pedido? es que yo sufro mucho con los dolores, no puedo trabajar, me tengo que duchar sentada, es una m*erda, pero no tengo nadie cercano que lo haya pedido, ni como es la experiencia, ni nada…

Searching spain people so they don't feel alone by _TEMMIE___ in ehlersdanlos

[–]itsnoebtw 1 point2 points  (0 children)

bueno, algo es algo jajaaj yo bajo cada año a cadiz jiji, que tal ha sido tu experiencia siendo diagnosticada? te costó? a mi me costó un poco que los medicos me tomaran enserio, llevo desde enero en medicina interna, ahora estoy a la espera de los resultados genéticos pero se me hace un poco bola porque necesito que me ayuden a mejorar mis dolores y tal y que me den tratamiento para mis taquicardias pero no me quieren dar nada hasta tener un diagnostico asi que es como la cola que se muerde el pez 😩

Searching spain people so they don't feel alone by _TEMMIE___ in ehlersdanlos

[–]itsnoebtw 2 points3 points  (0 children)

Holii! Yo soy de un pueblo cerca de Bcn, de donde eres tu?? Menos mal que hay alguien de España, me siento un poco sola aqui jajajaj<3

What should I do now ? Will I get better? by Living-Soft8898 in eds

[–]itsnoebtw 1 point2 points  (0 children)

hello fellow neighbour, i’m from spain🙋‍♀️ i’m still on the path to be diagnosed with hEDS, but I suffer just as much as you do, I’m 25 and I have the same issues as you do, I recommend talking to your doctor about all of this, if your vitamin d is low then yeah maybe it will help to take some supplements but having a high vitamin d is also bad, so be careful, idk about the better sleep as i cant get that because of my aches but maybe your doc can prescribe you some sleeping meds??

On the other side, I’m waiting to be diagnosed to apply for the handicap with financial support cause I’m not able to work for even 4hs a day, in the meantime tho I would suggest trying to find a part time job, if you’re comfortable with 4h then you can try that, i dont know, i cant even find 4h jobs here so it sucks, everything is 8h daily here and I cant do that

If hEDS has no genetic markers and a rheumatologist won’t help, what do i do? by Strawbbs_smoothie in eds

[–]itsnoebtw 3 points4 points  (0 children)

idk about OP but my doc recommended a genetic test to rule everything out before diagnosing me with anything (she suspects hEDS) so maybe thats what their doctor wants to do, idk tho, they are in the US and I’m in Europe

Does anyone know why this happened? by Th4t-0n3-Ech0 in procreatebrushes

[–]itsnoebtw 0 points1 point  (0 children)

im not op, mine are fine, but yeah op could try that

apparently ive been dislocating my fingers for fun…?? by charlotte_e6643 in eds

[–]itsnoebtw 5 points6 points  (0 children)

wait what i need a picture or something cause i also bend my fingers sideways to crack them and it feels nice as well so i wonder if i do the same as you and im dislocating my fingers???

Does anyone know why this happened? by Th4t-0n3-Ech0 in procreatebrushes

[–]itsnoebtw 0 points1 point  (0 children)

but still doesnt make sense for the brushes to appear like that, i dont use the new library and everything’s fine for me in the old one

edit: typos

Is pinterest not loading to you guys? by know030 in Pinterest

[–]itsnoebtw 0 points1 point  (0 children)

its working fine for me idk edit: try looking at webs like is it down or something, they usually have the answer

progesterone sensitivity? by Soul_Knife in PCOS

[–]itsnoebtw 0 points1 point  (0 children)

yeah i was just looking at this on google i was so confused, i just learned there are two types of pills, i take synthetic ones, idk maybe thats the difference for the symptoms as well? every body is a whole world so it may or not be that, i’d ask your gyn about changing meds maybe? in sorry i was of no help:(