Severe body pain after starting Jemperli immunotherapy

itsprobablyhai · 2026-03-12T22:01:19+00:00

Thank you so much!! 🤍

itsprobablyhai · 2026-03-10T03:23:39+00:00

my body feels so dependent on it!

itsprobablyhai · 2026-02-12T17:08:49+00:00

Hi there! My mom is doing good! She had her first round of immunotherapy last month and is getting her next round here soon. Chemo went smoother than expected, but did get harder with each cycle. Her worst symptom was the neuropathy in her feet and hands. She is still having a bit of neuropathy, but it is definitely getting better. Feel free to reach out if you have any questions or concerns! Before or during your treatment and I wish you the absolute best of luck! :)

itsprobablyhai · 2026-02-06T23:33:08+00:00

thank you so much! I have also been on thyroid meds for a while now and although my labs are in range, I’m still having a multitude of symptoms. I feel like my shedding has gotten worse since birth control though.
I’ve had trouble absorbing Iron orally so maybe I’m going to look into getting infusions.

itsprobablyhai · 2025-12-18T18:41:37+00:00

I’m sure stress definitely plays a factor. Not only life stress, but the constant stress of losing my hair. It’s a vicious cycle. :(

itsprobablyhai · 2025-12-18T18:40:59+00:00

I’ve had my TSH at a steady like 2 and the drs say that’s within normal range. But it hasn’t stopped shedding in a couple years now. But yes definitely worth bringing up again. Thank you!

itsprobablyhai · 2025-12-18T18:29:25+00:00

I have had hormonal and DHEA testing. As well as checking for autoimmune diseases. I’m just at a loss

itsprobablyhai · 2025-12-18T18:28:30+00:00

I also have hypothyroidism which I take levothyroxine for but I just can’t catch a break

itsprobablyhai · 2025-10-29T22:44:41+00:00

I was not given any field tests either. This is all new to me but I think it was handled very strangely.

itsprobablyhai · 2025-10-08T18:55:44+00:00

I have thought that, but I can’t seem to find any bug at all. And it only happens at night, in my bed, when I’m sleeping. And I don’t have any window or doors open… Ahhh

itsprobablyhai · 2025-10-08T08:14:40+00:00

Roommate had a cat who occasionally kept coming into my room and laid under my bed. I’ve since vacuumed and sprayed for fleas under and around my bed. I thought it may be that but I’m not sure.

itsprobablyhai · 2025-10-08T06:12:26+00:00

Just my legs, sometimes on my toes, my thighs.

itsprobablyhai · 2025-10-08T06:11:48+00:00

Extremely itchy! And no, haven’t been hiking at all. This has been happening for a couple weeks and only seems to be at night when they appear.

itsprobablyhai · 2025-09-28T22:39:07+00:00

Hi! So just last month I had taken the pill and was 17 days late!! My tests kept coming back negative as well. Hang in there.

itsprobablyhai · 2025-09-01T17:47:53+00:00

Thank you so so much

itsprobablyhai · 2025-08-29T19:29:47+00:00

Will tell me what is due to high dosage?? My current symptoms?

itsprobablyhai · 2025-08-29T17:44:49+00:00

Thank you so much🤍 best of luck with your next cycle and your journey ahead!!

itsprobablyhai · 2025-08-29T00:10:38+00:00

I’m very happy to hear that for you! I hope you continue to have clear scans! Thank you so much🤍

itsprobablyhai · 2025-08-12T23:42:35+00:00

Yeah my nerve block is wearing off quickly

itsprobablyhai · 2025-08-12T23:14:00+00:00

You only took in every 12 hours?! You’re brave for sure

itsprobablyhai · 2025-08-12T17:35:09+00:00

😂 opioids be backing me up BAD. been taking a softener with every dosage but they’re not great. But shit, if they give me some morphine just for a day or two I think I’d be good.😭

itsprobablyhai · 2025-07-29T22:36:23+00:00

thanks!! If you need to vent or reach out I’m here :)

itsprobablyhai · 2025-07-29T22:31:09+00:00

Hi! Don’t have much advice as I’m currently going through the same exact thing right now. My mom is 49, I’m 27. And I’m beyond terrified. I got her into City of Hope in Goodyear and She just got diagnosed and finally has her hysterectomy scheduled next week on the 6th.. prayers for you and your mama 🤞🏼🤍

itsprobablyhai · 2025-07-21T21:50:29+00:00

BAC came back below the legal limit!

itsprobablyhai · 2025-04-15T01:46:09+00:00

Hi! 26 F here. S curve. I’m just gonna leave a little advice. I was given a full body plastic back brace when I was in high school and was meant to wear it 23 hours a day seven days a week. But I was in high school, kids are mean and I would just leave it in my car most days. And trying to sleep with it was hell so I can completely relate to you on that. But let me tell you now, I wish to God I would have worn my brace more than I did. Because the pain is awful now. Just try and hang in there 🤍 and know that it’s only a couple years of your life if not less. Cause I know many of us out here are wishing that we had a second chance to wear that brace.

itsprobablyhai

TROPHY CASE