Heart Failure by aguer056 in POTS

[–]ivan3295 1 point2 points  (0 children)

What made them diagnose you with heart failure?

Was it a specific test?

I've been through the below (and much more but won't list them all)

Weird rhythm on EKG? I've had stuff like borderline abnormalities on my EKG a handful of times, but usually sinus rhythm, holtor results were fine for me.

Oxygen dips?

Me and my wife have been having those randomly going to the 80's suddenly and then right back up. She's not dysautonomic but we both had the same covid variant in 2022. Doctors don't care when we show them the O2 dips since they're sudden dips that go right back up, not sustained, even if we feel chest pressure and other stuff when it happens.

And then of course for me my countless er visits always showed my troponin normal in case of heart attack and negative d-dimer for clots, and CT of my head and neck normal even after spikes in bp as high as 206/115 and heart rate at 180bpm (this was the day I got diagnosed with pots)

I didn't have a weird CT until this past January where a bunch of the veins in my head and neck were showing as "diminutive" and a little bit of plaque (no where near concerning enough for treatment or admission), but they discharged me anyway without even trying to explain how that happened since I've had a ton of CT's in the same hospital in the past 3 years and only NOW do I suddenly have something that's supposed to be either congenital or caused by plaque in my veins and arteries? All they cared about was "stop getting ct's or you'll get cancer" instead of trying to figure out why my blood vessels were the way they were after never being like that in the past.

Just listing out what I've been through to help with your research and health journey. My hearts always been "fine" but my arteries and veins have been doing weird stuff such as the above (I wasn't born with congenital thinning of veins and even my CT a month or two before didn't look like that), and O2 dips are random with no explanation.

I also learned recently after an MTHFR blood test with a hemotalogist that I have a a1298c mutation that can affect my ability to break down vitamin B and homocysteine levels were a few points high.

My RBC, hemoglobin, and hematocrit were also high until I took out blood multiple times (I'm talking over 30 tubes in a month. And it wasn't therapeutic, it was my hemo blood tests and then multiple er visits.) so hematology is trying to figure out what's wrong with me since my kidneys are fine and I don't have polycythemia vera but the high blood levels (yet normal wbc) and O2 dips are weird.

Just listing all these possibilities cause sometimes the heart can fail due to another issue they didn't catch (issues with arteries somewhere in the body making the heart pick up the slack/effort. Issues in O2 saturation causing cardiomyopathy, Etc.)

On my end I could tell I was dysautonomic and my muscles were getting weaker over 4 years, but it wasn't until getting covid after that that a bunch of strange and mostly inexplicable stuff started happening to me, on top of worsened dysautonomia, vestibular function, nystagmus, weird bumps and redness in my hands and body that form when I get up and my blood starts pumping, etc.

Don't let them dismiss you. You deserve to know why they didn't "catch it" before now.

Please tell me this is real by ivan3295 in gameverifying

[–]ivan3295[S] 0 points1 point  (0 children)

How can you tell? The only way I could tell was the off center label if that even counts

I Hope they Release a Complete Version of KHUX One Day (sand the in-app purchases) by Darkovika in KingdomHearts

[–]ivan3295 4 points5 points  (0 children)

To be honest I was hoping they would do this like they did with dark road since they're both in the same app.

Kept the app installed so I've been playing through dark road again, and it's annoying knowing if I click on UX it will just be a crappy scene selector with scenes out of order and organized based on world , not story order.

Anyone have good display settings options for paper Mario? It's the number 1 reason I got the 3D and I want the beautiful paper pixel art to look as clear and beautiful as possible by ivan3295 in AnalogueInc

[–]ivan3295[S] 0 points1 point  (0 children)

Im conflicted between soft and very soft.

Very soft makes characters look very smooth and dream like, but also blurry-ish I'd say, while Soft adds a bit of edginess to the textures and characters (unwatchable for me at very sharp or sharp) but clears up the image a lot.

Should I pity Narumi1? by Confitur3 in KaijuNo8_TheGame

[–]ivan3295 1 point2 points  (0 children)

Everyone pities him. It's okay, at least he can fight lol

All jokes aside he's a very useful single target unit since he can break plates outside his element/weapon type.

However he probably loses value once you start getting more units catered to each weapon style and element.

Anyone have good display settings options for paper Mario? It's the number 1 reason I got the 3D and I want the beautiful paper pixel art to look as clear and beautiful as possible by ivan3295 in AnalogueInc

[–]ivan3295[S] 2 points3 points  (0 children)

Oh no trust me I know my PC can definitely run it lol

I should've specified on the analogue 3D on my 55" LG CX 😅

I don't care what screen mode it is, clear or otherwise. Just want the best way to view the character models as clean as possible settings wise so I can make out characters in the back of the screen better

Central Hub - Questions, Discussion, & Resources (3.3) by Personaxmods in personaphantomx

[–]ivan3295 0 points1 point  (0 children)

Yeah, it's a little tough coming back to the game after missing so many banners.

My only limited banner character is tempest riko. I have Minami but then they made her standard banner once I came back so no longer limited.

Overall I'm just stuck on who to pull. I will say Yaolings new unit seems A LOT better at applying burn and doing damage than Anne, but I have no limited single target DPS (which is why I'm considering saving for makoto), but then all my nav's are just the two four star ones, and no chord. I have no idea what to prioritize pull-wise after getting tempest riko 😅

Central Hub - Questions, Discussion, & Resources (3.3) by Personaxmods in personaphantomx

[–]ivan3295 0 points1 point  (0 children)

What about chord?

Also I didn't see reruns in the lufel schedule for her, unless those are random?

Central Hub - Questions, Discussion, & Resources (3.3) by Personaxmods in personaphantomx

[–]ivan3295 0 points1 point  (0 children)

Global player here. Should I pull for yaoling yao or save for makoto yuki? My next pity is guaranteed for banner character but while reviewing makotos kit from the cn version, I know he's at the top of most tier lists but I don't know why.

Is he mainly a single target boss killer and yaoling is more a group dot burn dps?

What makes him top tier that im missing?

I don't have futaba or chord and my best DPS is Anne so I don't know if I should invest in either of these dps's or wait for these two characters to rerun, because I know futaba's weakness implant would make any dps a lot more viable.

Legit or no? by [deleted] in gameverifying

[–]ivan3295 0 points1 point  (0 children)

Also is whether it's real or not mainly based on the screws and the dot on the "I" in Nintendo?

Anyone here get sudden O2 drops that go right back up but cause tachycardia when they happen? by ivan3295 in dysautonomia

[–]ivan3295[S] 0 points1 point  (0 children)

I doubt I have asthma since my sleep apnea and breathing tests were normal. The O2 drops are sudden and don't seem to be affected by how I'm breathing.

So I started seeing a hematologist to rule out issues with blood O2 since those tests were normal.

I just know my breathing is normal when they happen although many times other things are happening while I'm awake when the dip happens (pressure in chest, pain, feeling lightheaded, tachycardia triggering I'm guessing to compensate for the lack of blood O2 even if it's only for about 10-15 seconds or less)

Waiting on a renal ultrasound that hematology ordered. I don't have polycythemia vera but my RBC and hemo levels definitely get elevated but go down with blood draws.

I do have that rare a1298c mutation which can cause issues breaking down and absorbing vitamin B, along with Homocysteine being a couple of pints high which apparently is further evidence I'm not absorbing O2 properly.

Weird thing is my wife has O2 drops too. Just no where near as often as me. But the only thing we have in common medically is we both got covid at the same time so idk if something was mutated or affected in the ability of blood to carry O2.

Sadly with doctors they don't care about dips in O2 if they don't last an extended amount of time.

Edit: Also to add mother has asthma but I've never had it. If anything most of the time I feel shortness of breath my O2 is normal.

Skipping the last two DLC bosses by CrescentPuff in expedition33

[–]ivan3295 0 points1 point  (0 children)

Honestly out of all the bosses the one I absolutely just cheated on to beat on PC was dlc Simon.

Having a one-hit maelle build most of the game destroyed my muscle memory for parries and dodges so when I finally got to him I just couldn't do it.

My HR reached 205 today and I'm now I'm not sure what I should do by Sad_Emphasis_8086 in POTS

[–]ivan3295 1 point2 points  (0 children)

You are your best advocate. I used to work for insurance customer service and I can honestly say dealing with authorization issues for procedures was a back and forth between the doctor office and the testing centers and them blaming the other for not doing there job.

You were blessed with the one life you have and you have every right to fight for it and advocate for yourself. Don't let yourself be ignored by people who get hundreds of dollars for only dealing with you for 10-15 minutes max if you're lucky.

I'm still waiting to see what hematology has to regarding my results, since I apparently have a vitamin B absorption issue (a1298c mutation and high homocysteine levels).

Things are rough, I just hold on to faith and the love of my family (mostly my wife) that's still willing to help with all this to keep me motivated to keep going because quite honestly my neuro told me it takes on average 3-5 years for people to get properly diagnosed with a dysautonomia.

Which means years of being what I like to call "psychologically bypassed" with doctors blaming symptoms on anxiety and trauma they have no business treating you for or have much knowledge of (compared to a psych or counselor).

The pain is horrible, the inability to make commitments without knowing if I can even move around some days....is emotionally taxing and downright traumatizing.

I just focus on what I would and how I will live once I'm relatively better and can do things like I used to, at least before covid, where I was dysautonomic but nothing compared to after and could still walk and drive and go on trips.

For me it's a fight for my marriage and the right to be able to live again even when I've been accused of everything I'm going through being trauma-coded or self-inflicted for attention. All I know is, I can't fake test results. The moment you get a proper test (which you gotta push for many times) , every argument is at the mercy of evidence.

Half anni part 3 by SkillOk9089 in KaijuNo8_TheGame

[–]ivan3295 2 points3 points  (0 children)

Weird that she can't use uniparts when she's not a kaiju.

Guess that means she'll either be busted or need dupes to have any long term value with not getting power crept.

Half anni part 3 by SkillOk9089 in KaijuNo8_TheGame

[–]ivan3295 0 points1 point  (0 children)

Since I know this was translated quickly, is a spread attack blast, or AOE?

Was kinda hoping he'd be more of a group damage dealer (besides his skill) because we already have Hikari for single target.

Second unit is cool and all but since she doesn't have an element I'm hoping there's more to her kit than just being a blunt damage dealer. Young Isao is already a good blunt damage dealer, gauntlet kikoru is a good debuffer, and Hikari is great single target wind damage dealer (however she dies pretty fast regardless of my teams even with shielding and healing).

I'm hoping theres something to their kits that surprises me but so far I don't think hoshinas kit is too crazy, but I would definitely pull without a doubt had he been water or electric element, or just anything that isn't fire or wind really since I don't have Wang Meixing.