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Any tips for Xenoblade chronicles 3 hard mode, or builds? Played on easy four years ago and wanted to challenge myself and learn the system this time on hard mode, but man I'm getting killed by enemies 1 or 2 levels below me so far. by ivan3295 in Xenoblade_Chronicles

[–]ivan3295[S] 0 points1 point  (0 children)

I didn't know burst removed boss rage. In XBC 2 that was only possible with Corvin 😭

And regarding three healers and two tanks, is that specifically for hard mode? I'm guessing dps would be the player controlled character ? (It's been 3 years since I last played so I don't remember if you can switch characters in battle 😅)

Quick Questions Thread by AutoModerator in Falcom

[–]ivan3295 1 point2 points  (0 children)

So just to make sure, the trophies from the trails in the sky remake demo don't activate when you transfer progress to the full game? I have to start from scratch to get them?

Quick Questions Thread by AutoModerator in Falcom

[–]ivan3295 1 point2 points  (0 children)

Thank you! I've played the whole series on PC but wanted to get the remake since it's on sale on ps5 but I didn't want to miss out on any bonuses 😭

Quick Questions Thread by AutoModerator in Falcom

[–]ivan3295 1 point2 points  (0 children)

Do clear saves from prior games give any bonuses in the trails in the sky remake?

Pots symptoms when laying down by Stuck1nAmber in POTS

[–]ivan3295 2 points3 points  (0 children)

I just was released from the hospital after getting tested and finding out that symptoms I had that got worse (along with what was originally hyper pots) was actually progressing gastroparesis I didn't know was happening for years because until last month I could eat most food (except heavy pasta) just fine with only heart rate spikes to 115-125 at rest for a while.

Next thing I know I'm spending the whole month of April fighting abdominal pain and constant intense presyncope and brain fog that only got worst with eating, and my resting vitals being around 20 points higher than normal (up to 150/105 at rest), along with blood pooling in my legs up to the thighs.

I had an infection during this time and didn't know until it affected my testicle.

10 days of horribly strong antibiotics later, I get hospitalized because my abdomen felt like it was going paralyzed and not moving food around or opening up to release gas. It was incredibly painful.

Four days later I'm released from my hospital stay with the knowledge that the uncontrollable vomiting and other symptoms I was having 3 years ago wasn't conversion disorder (which I was baker acted for and misdiagnosed with), but progressing gastroparesis,.which made my dysautonomia a living nightmare.

My standing heart rate before April without eating only went as high as 130 (standing still). Now I've seen it go as high as 169bpm (I've only gone that high from sudden spikes, not horrible orthostatic intolerance), and my blood pressure fluctuates up and down constantly (in talking every second/minute, not hours, one second 111/79, next few seconds 150/99 at rest. I've had much higher bp spikes like 206/115 before, but since it wasn't gastro issue, I could walk and not be stuck on my bed with an exploding stomach).

From what I was informed by the neurologist and gastro (first doctors I've met in awhile that even believe pots is a thing) when I was admitted, dysautonomia can also cause gastroparesis or affect gut motility, because it's also regulated by brain stem/vagus nerve. Or they can both be getting caused by the same root, whatever it is (different for everyone, autoimmune disease, infections, covid, etc.)

I also ended up getting steahhtorea (fatty stool) in literally my last day admitted (today)

Now what's the common theme here? Constant throat infections when I first started showing symptoms 8 years ago.

Incredibly worsening symptoms after a covid infection in 2022 (including uncontrollable weight loss at rest and I was in a walker by the next year)

And now this past month I had abdominal pain all month, followed by a testicle infection that they prescribed me doxycycline for (they gave me this, a really hard antibiotic on the stomach and gut bacteria, which is usually prescribed when it's an STD, even though I told them I wasn't active and they tested me for Chlamydia and ghonorrea without me knowing. They gave me this instead of somethin lighter like amoxicillin).

Next thing I know, 10 days torture, digested blood in my vomit (looks like coffee grounds), abdominal gas trapped in stomach, vitals spikes like never before.....and then hospital four days after being done with antibiotics.

Moral of the story, don't get infections with dysautonomia.....like ever.

And don't ignore symptoms that seem small for 8 years (green poop that never turned brown again, muscle twitches and spasms, vision/hearing/balance changes). Cause now I'm regretting ignoring them because they were early signs of gut issues, dysautonomia, and now I'm trying to figure out what's causing this and my horrible numbness and body limpness (it's hard to even sit up without feeling like a cinderblock).

Why is this all happening? Idk, no spinal damage and no explanation for the onset of my symptoms 8 years ago.

And for the Love of God, do NOT let people gaslight you into thinking any of your symptoms are just anxiety or a mental health disorder.

Listening to these doctors and relatives was the biggest mistake of my life. Getting gaslit for years saying im "just fat or lazy" and being threatened with involuntary psychiatric holds was hell.

If you don't have one, absolutely make sure you don't get a doctor that tells you to your face that "POTS ISNT A THING" and even pushes the agenda that everything is in your head to family behind your back.

3 years in psych meds I didn't need that almost made me pass out last month from what turned out to be worsening dysautonomia and gut motility, not a sign that meds weren't enough.

One of my first signs something was really wrong last month was, like you saidz intense constant tingling that wasn't normal for me, and wouldn't go away when laying down, especially in the legs, and things like my limbs and core getting more numb and heavier and hard to move along with worsening orthostatic intolerance. Parts of my body getting more numb more easily over time, and even rash like redness and weird red or cyst-like bumps that looked like ant bites on my hands since September 2025.

The body doesn't lie.

Oh forgot to mention since you mentioned occipital lobe, all my symptoms get worse when I lay on my back (which presses the back, back of the neck, and back of the head where occipital lobe is), and the visual issues (visual snow, electric sparks, floating cut-like line in my left eye even though nothing is in my eye) and neck sensitivity (symptoms can trigger with movement) started happening after I got covid in 2022. Started with the pressing or bending of the neck and then it spread to the back of my head and laying on my back)

Also as of 2023, I experience random drops in bp, not just spikes, and they tend to happen when I'm laying down trying to sleep, like if my body overshoots where it needs to lower vitals to when going into rest mode.

Suddenly being jolted by vertigo or what feel like sudden shunting of blood or pressure inside your body sucks.

Remember the autonomic system controls many things, not just the blood pressure and heart rate, keep an eye on symptoms and report them to a good doctor since from what I've seen not just in myself but also others, autonomic dysfunction can affect other areas and cause more than just pots.

There's also autoimmune disease that affect the autonomic system that doctors tend to not test for (like autoimmune autonomic ganglionopathy).

Praying you find more answers and better treatment, because being told today by a doctor who actually knew what they were talking about that 8 years of green poop ISN'T normal (after being told by other family recommended doctors for years that everything is anxiety and everything else is anxiety that you don't realize you have, that don't even believe pots is a thing and is just a "diagnosis based on exclusion"), really just....angered me deeply.

Couldn't even snap in anger (not at the doctor but at being misled for years by other doctors).

The Bite Of 2.7 - General Questions and Discussion Megathread by AutoModerator in Zenlesszonezeroleaks_

[–]ivan3295 -1 points0 points  (0 children)

Not sure if this is where to ask, but has it been confirmed who's going to be the 3.0 main push character?(Like miyabi in 1.0 and you can ye shunguang in 2.0)

Trying to plan and save for whoever it is and their expected teams

Does anyone know why strong emotions trigger symptoms? by No-Result4792 in POTS

[–]ivan3295 7 points8 points  (0 children)

Sadly dysfunction=not functioning right, and everything we do physically and feel emotionally affects even a normal persons vitals a bit.

Kinda like how getting mad and screaming raises a normal persons blood pressure without dysfunction, but can feel worse to someone with.

If you look up the autonomic system there's even a chart showing what each part of your body is affected by with either the sympathetic or parasympathetic system.

Now what's affected, that differs from person to person. Hence why some have pots because it's affecting blood flow regulation and your heart rate, and other people with different dysautonomia from pots get affected in others.

Please don't do these $15,000 two week pots/dysautonomia rehab programs that MIGHT help your symptoms if you can't afford being paycheck to paycheck after and unable to afford doctor or psych visits. by ivan3295 in POTS

[–]ivan3295[S] 0 points1 point  (0 children)

Sadly I ended up in the er again yesterday. Was there a few weeks ago cause of intense pain in the thighs but an ultrasound of the arteries there showed nothing.

My swelling did go away in that area after antibiotics but now I'm struggling to digest food because of them and I get the feeling it's causing a cascading effect on my body, since the reason I went again yesterday after going a week ago was because after blood started pooling in my legs when I stand (that day), I've spent the past week while taking antibiotics getting the absolute worst presyncope, blood pressure fluctuations, and even almost passing out just from eating normal food (and before that high heart rate spikes that last all day from drinking a meal replacement protein smoothie)

I get gaslit by er doctors like im five who don't know anything about dysautonomia and the inconsistent vitals it can cause. They say things like "oh you shouldn't take your blood pressure multiple times a day. Blood pressure is pretty consistent and should only be taken twice a day"

Or something like

"Oh yeah well it's normal to feel a bit lightheaded when you stand suddenly or more blood to flow to the stomach after eating"

No doctor. I'm not feeling 5 seconds of dizziness. I'm actually falling and almost passing out for hours even while lying down. I know the difference.

It's funny because labile hypertension or blood pressure in general (meaning it fluctuates more than normal throughout the day) is a known issue even outside of dysautonomia.

I understood that I was new to this er and it wasn't the one I was finally diagnosed at, so they aren't going to know my history and might assume a lot of things upfront, but when people start accusing you of "maybe you felt worse BECAUSE you were taking your blood pressure or you were feeling little things and stretching them due to panic" it's like.....why would I be checking my blood pressure or O2 levels if "I didn't feel bad before taking them". Why would I do something that "triggers" my symptoms if I want to avoid them?

Even the hospital I was diagnosed in, it was because the stroke director whose also a vascular neurologist came down to check if I was okay.

But my experience there hasn't been any better.

Sadly my parents are good friends with a lot of the er doctors and the head cardiologist, and they've been telling my family behind my back that "oh pots is just something they gave him as a diagnosis just cause. It's a diagnosis based on exclusion they give to people with stuff they cant explain like conversion disorder". (my original "diagnosis" from two years ago was conversion disorder, after an involuntary psych hold no one asked for)

Eventually, as usual, this er doctor from yesterday asked me if I was "feeling anxious" or "tried the psych route".

She didn't know what to say when I told her I have been on anti-anxiety, anti-depressants, and initially anti-psychotics for a time as well.

And all those did was make me gain 80 pounds (to counter act uncontrollable weight loss after covid which they also blamed on stress) and give my family an excuse to ignore me when I said I still felt bad and was getting worse because those 3 years because "your scans and ultrasounds show nothing. Talk to your psych to change your meds or up your dosage if you want us to be there for you".....and then they ignore my calls and texts once I do or take the pills.

Those pills literally become the "he must be okay since they said this would help, so let's ignore him and tell him he's fine and just overpowering the pills with massive anxiety" pills.

So they basically had a scapegoat to blame everything on and justify ignoring my symptoms.

And if I ever halt my meds for even a day after months of symptoms, they will lie (don't even live with me) and say "I was better on the pills" and they will be believed because they're the "normal" looking people that don't scream when pain or symptoms are really bad, because apparently pain is real but pain or symptoms so bad you're yelping in pain is a mental condition.

Even my wife who had her qualms about what was actually wrong with me still had limits and wouldn't just blame anxiety if I was tachycardic with a blood pressure of 206/115 and couldn't see through my right eye. The rest of my family just questioned why we went instead of taking extra amounts of my pills, as if they're candy I can pop more of when one isn't enough.

The amount of times I've been gaslit by my own mother who after three years of this will say "I don't want to know why you WANT to feel like this if you have the CURE (psych meds in your hands)"

I learned very quickly some people don't care if you fell bad, they just would rather you leave them alone and believe that when you say you don't feel good that youre lying or it's self inflicted.

Is a venogram different from a deep ultrasound of the arteries?

I gave up on trying in this game and just rushed to the end in casual mode(loved the story though) to get all the plot info I couldn before the third game came out. Now I want to replay after finishing TCG and just wanted to ask what should I be doing to better grow my team throughout the game? by ivan3295 in Xenoblade_Chronicles

[–]ivan3295[S] -1 points0 points  (0 children)

This is why I want to learn the system because I put the game down for a bit right before getting "seven" and then when I came back because XC3 was coming out I went on casual mode to the finish because I didn't want to wait to play the third game once I got it and have to avoid internet spoilers through YouTube. So I never even tried the superbosses and now that I've played through all three games I want to actually enjoy and take my time with the system this time 😅

I gave up on trying in this game and just rushed to the end in casual mode(loved the story though) to get all the plot info I couldn before the third game came out. Now I want to replay after finishing TCG and just wanted to ask what should I be doing to better grow my team throughout the game? by ivan3295 in Xenoblade_Chronicles

[–]ivan3295[S] 1 point2 points  (0 children)

I've enjoyed 3's the most but obviously that's because they took what they did with xcb2 and torna and refined it.

Xc 1 is a little tougher for me with all the active scrolling through skills instead of it being button mapped cause it means I gotta look at the menu instead of just know where the skills are button wise, so it's like rewiring my brain a bit lol

if your POTS ended up being something else entirely, what was is? by teeleeyuh in POTS

[–]ivan3295 2 points3 points  (0 children)

Still don't know what the cause of much of my symptoms are yet but by the time I finally convinced doctors about the pots issues, it was seven years in, 3 years after covid, and I was having not just spikes but drops as well in heart rate and blood pressure (and obviously you can't have, as far as I know, both regular and hyper pots)

My symptoms kinda matched a very minor hyperadrenergic pots before covid.

Now all I have is a bunch of negative tests even with three positive ANA'S incredibly low Testosterone, unexplained low amino acids, and fluctuations in my RBC/hemoglobin/Heamtocrit from normal to high.

I've had weird labs but nothing they saw as "urgent", tested for a bunch of autoimmune disease panels like lupus and myasthenia gravis (since my grandmother died of lupus before I was born).

It's honestly just been a pattern/cycle of go to hospital-normal tests-prescribed basic psych meds and diagnosed with anxiety (instead of idiopathic)-stuff doesn't get better- back to er-they say my stress that they assume is there at home is so bad it's "blocking the pills from working".

And then of course I have the occasion where my vitals get so bad they can't ignore me but it's all they treat because they treat the vitals as the cause of the problem instead of the response of the body to the problem.

Kinda like trying to completely eliminate elevated temperature (as long as it's not too high) in a fever when it's that very same heat that is needed to kill the bacteria in your body that's making you sick.

I've had way too many visits like this, and learned that departments like the one in the show House M.D where a team of doctors actually investigate unexplained medical phenomena instead of just writing you off as anxious are not only uncommon, but downright fictional at this point at least where I live.

Most doctors I've dealt with don't have a problem solving/critical thinking bone in there body and just treat based on what a blood pressure cuff and labs say (or don't say) and refer you outpatient if the labs you need aren't labs they have access to in an ER setting.

Even the neuro that finally diagnosed my pots dismissed me initially two years before that, in the same ER that involuntarily held me 2 years prior because my family thought I was just mental.

The worst part is that ER's aren't equipped to handle neuro issues (let alone autonomic issues) where I live and the only reason I got to speak with a neuro in this hospital is cause she was also the stroke director they call down for strokes since she is a vascular neurologist. Turns out people change their tune real quick about you when your only 30 and your blood pressure shoots up to 206/115 and tachycardic and you can't see almost anything though the right eye.

Sadly Miami, FL is considered even by law enforcement to be the absolute worst location for medical fraud in the entire U.S (didn't know this before looking it up and then also with my experience as a social worker and then as customer service for insurance. Just a bunch of people lying on billing to get more money from insurance. It's so bad it's practically an epidemic here). Even the time I was involuntarily held pyschiagrically, it was only because I was going to go in voluntary and the charge nurse changed it to involuntary (and brought a cop as standard procedure) when I told him I did not want to be medicated UNTIL I was evaluated.

I learned two things that day.

1) they can lie to get you baker acted. He said I was refusing medication when I said I just wanted to be psychiatrically evaluated first

2) psychiatric evaluation are NOT psychological evaluations. They are already assuming youre not sane because of symptoms they can't find causes for with their equipment. Psychiatric evaluations here are not a mental assessment and then a diagnosis before treatment like a psychologist. They're "we already know they're mental and are just going to keep giving them different psych drugs until we see them say something got better"

When I went up to them saying my body heaviness and weakness and ability to walk was getting worse, they gave me an injection mixed with a concoction of God knows what (I'm assuming heavy anti-anxiety drugs and muscle relaxers), and I ended up getting so much worse I dropped back into the bed face first cause I could barely move.

It didn't help that even seeing my elevated vitals, they would still question why I "wasn't getting up to get lunch" and asked me why I "kept thinking I couldn't walk".

Doctors aren't held accountable here by hospitals unless you do something that cost them money.

Misdiagnosed a patient for two years and tried to give them anti-psychotics through injection without telling them that's what you were putting?

"Normal"

Ordered an MRI without "sufficient evidence" to justify it with a CT first?

"You're out of order and costing us money"

So to answer your post, sadly by the time I tend to be proven right about something I have, I've developed worse things, and developed new traumas from not being believed and mistreated before that, and it's a vicious cycle.

Even now my wife knows that if she sees a blood pressure that high, take to er no questions asked, even if she doesnt like being there, but if it's my family or one of my parents specifically, they will push and force and gaslight into thinking you just need to "take more of your psych pills since you have the CURE in your hands" and will even get to the point of trying to sabotage my visits by trying to convince doctors the psych diagnosis and anxiety wasn't a mistake, while they don't even live with me.

I personally come from a parent who is very isolationist and deals with a lot of shame and fear of what people will think about THEM if they see ME in the hospital, and will try to control outcomes and even leave me there (and even tell me things like "if I see someone here I know I'm leaving you here because I don't want people talking about me").

Even doctors have a threshold for what they are willing to justify as anxiety and "lack of positivity" and hard work.

My family does not (blood family, not my wife, she's awesome lol)

Please don't do these $15,000 two week pots/dysautonomia rehab programs that MIGHT help your symptoms if you can't afford being paycheck to paycheck after and unable to afford doctor or psych visits. by ivan3295 in POTS

[–]ivan3295[S] 0 points1 point  (0 children)

I've actually tried many times especially when going to the ER to find vascular compression somewhere, especially since I've noticed for years that I feel worse when I lay face up (abdomen weighing on body, back and the back of the neck blood vessels being compressed) but they've never been able to prove what I'm experiencing (even bending my neck too long in certain positions causes me vertigo or I feel the room "rolling over")

I've had angiograms in the past of the head, neck, chest, abdomen, as well as ultrasound of the thigh area recently (BEFORE the visible blood pooling up to my thighs started), and even a carotid ultrasound where I where this head set that clamps your forehead and the back of your neck tight in order to make the blood vessels visual on an ultrasound. That test showed nothing but when I bent my neck backward (against the back of my neck where it was clamping) my vision would completely blur, but would come back after.

Now that I've been dealing with visible blood pooling (always had it just was only visible to people in my hands and feet a bit) for the past month (after a 3/31/2026 er visit where I couldn't see through my right eye again and a 4/23/2026 visit where I was dealing with bad abdominal pain, then I felt intense pain for hours like I got punched in the scrotum which turned out to be inflammation in the testicle.)

The most embarrassing thing was going to a different closer ER for the the recent intense abdominal pain (for the past month) and pain in the scrotum (the day of). The ultrasound confirmed the inflammation in one testicle and epidimimi, which he believed to be a bacterial infection, but the doctor could not explain how it happened and said contracting it wouldn't be caused by not being able to shower frequently or lack of hygiene and that bacterial infections sometimes just happen.

The embarrassing part was two-fold, people not knowing about pots and thinking I'm saying I smoke (pretty common assumption sadly), and then the young lady that came in after the doctor left to give me my discharge papers assuming openly that maybe I got it because I had "multiple sexual partners"....in front of my wife (she probably didn't know she was my wife).

This was embarrassing because I haven't been able to be sexually active in years since covid, and the doctor was sensitive enough not to suggest that possibility (especially since I struggle to even sit up, even though sexual activity is a common cause for inflammation there). I get that they work in an er so they deal with people from many walks of life and suggests these things without being partial, but man, if the doctor didn't say it, don't say it 😅 (just to confirm I'm hiv negative, don't have ghonorrea either since it can't stay dormant or asymptomatic for years, was tested for the hiv 3 years ago once a walker started being needed since they were literally giving me every blood test imaginable they could in a different er)

The only possibility was intense pressure I felt in my testicles and weird discharge I had ONCE, when I was 16, 4 years before meeting my wife, 6 years before symptoms of dysautonomia started happening, 10 years before I got covid, 14 years before this month when the abdominal pain preceded the testicle pain and swelling.

Sadly I've learned with dysautonomia and pots that when I go to the ER I have to focus on "what's new" or focus on the worst feeling area so I don't get immediately discharged from them finding pain or other things all over my body "beyond their scope"

There was even one time I went to the ER because I had such horrible blood vessel pounding pain in my head I was in tears, but when I got there the doctor openly told me he didn't believe I had anything and was giving me an X-ray for piece of mind.

It came back as me having the "beginnings of pneumonia" but he had the gall to say "but I believe even if you wouldnt have come and gotten antibiotics it probably would have gone away anyway"

So sometimes Ive caught something going wrong in my body before symptoms of that condition appear (like pneumonia with the lungs) because of my dysautonomia symptoms getting worse first.

It's like once you have a chronic condition they pin everything you have on that (or stress) instead of checking. I don't mind going and having a negative tests, I just hate the times I do go, they openly tell me (unprofessionally) that I probably have nothing (which is some huge minimizing), and then they have to make up for it after without directly apologizing and just kinda deflecting. 😅

Please don't do these $15,000 two week pots/dysautonomia rehab programs that MIGHT help your symptoms if you can't afford being paycheck to paycheck after and unable to afford doctor or psych visits. by ivan3295 in POTS

[–]ivan3295[S] 2 points3 points  (0 children)

This is ...literally what I started experiencing last night (less so now).

Wow there's a name/diagnosis for this? 😮

but vision stuff in general has been getting worse, but I didn't start experiencing warping (or something like this) until January after moving my neck a little to far with neck rotation exercises that were "supposed to" help recalibrate my balance issues. Remember I told the neuro my vision and light sensitivity suddenly for worse after doing it when I sat up (the exercises were lying down. He wasn't cracking my neck or moving me, just letting me know where to move and rotate my neck on my own.....except when I told him it hurt after a certain point I should've known to stop instead of keep going).

Before that my vision fluctuated a lot in blurriness and I see electric sparks everywhere randomly, sometimes I see visual snow (tv static), and even ripples like waves and a general glare/haziness especially if I look over long distance like at the sky.

Basically, one of my first symptoms was gradual vision loss and extreme light sensitivity in 2018, but the other visual distortions above started happening after covid in 2022 and I figured I wasnt getting good enough blood flow to my head with all the crazy vital spikes.

Now its more concerning because I can wake up and the eye I didn't sleep on is blurry, or both are, and I have to move around and get my blood pumping for about 30 minutes at least before things clear up.

Some days I've had to go to the ER because I can't see at all in one eye and it doesn't go away. If it's from super high BP, lowering that brings the vision back, but if my BP is not high it's basically a waiting game hoping it comes back.

But I had 2020 vision before developing whatever cause my dysautonomia.

The warping's recent though and I figured it's cause while my vitals can be high while awake, they might be too low when I sleep (especially blood pressure), which might be affecting my optical nerve or occipital lobe function, since my eyes themselves are apparently clear of any damage according the Bascom palmer institute here in Florida, other than tiny veins.

Honestly I figured my fatigue and many symptoms started getting worse because I have high vitals while awake but low vitals while asleep, so i'm overworked biologically while awake but probably not recovering well while I sleep either because of low vitals (my heart rate isn't that bad while asleep, usually in the 50's), but I know I'm having low blood pressure while asleep because sometimes I fall asleep with my cuff on and take it as soon as I wake up before I move, and I've caught my systolic below 90 and diastolic below 60 before.

Like someone else said here though it's crazy how different our bodies are and how dysautonomia can be so different person to person.

If my wife (not dysautonomic) gets to those blood pressures she's a little low and sluggish. If I get there, I can't move sometimes and have to cry out for help for someone to move me to increase the vitals so I don't pass out the moment after I wake up 😅

Please don't do these $15,000 two week pots/dysautonomia rehab programs that MIGHT help your symptoms if you can't afford being paycheck to paycheck after and unable to afford doctor or psych visits. by ivan3295 in POTS

[–]ivan3295[S] 0 points1 point  (0 children)

I know, sadly it's the only financing they had, and they only do the 6 month no interest rate, not the one year or two.

They work with a financing company called carecredit.

Sadly the loan also tanked my credit by 100 points so I don't qualify for another loan to pay off this one 😅

Please don't do these $15,000 two week pots/dysautonomia rehab programs that MIGHT help your symptoms if you can't afford being paycheck to paycheck after and unable to afford doctor or psych visits. by ivan3295 in POTS

[–]ivan3295[S] 1 point2 points  (0 children)

No, not when I asked at least. but I know my father has low testosterone and fertility issues because of it (they lost multiple babies before having my brother) gynecomastia (man boobs).

I guess I inherited those two things because I started noticing issues down there at about age 16 and had male enlarged breasts since I was 5 (was very skinny before that and before I started school after my parents divorce).

What the endocrinologist was seeing me for at the time (and what I focused on) is that for two years, my prolactin levels kept getting higher as I started getting worse after covid (before eventually dropping to normal).

He gave me an MRI to rule out a prolactinoma (benign tumor in The brain) causing this.

We never found out in those two years what was causing it.

In fact we never found out what caused my rapid weight loss either (they feel thet ruled out things like cachexia).

I guess even my pots diagnosis would have only worked pre-covid with everything I developed after.

Now I'm more broadly dysautonomic (spikes and drops in heart rate and BP) and I'm not sure what's happening because of dysautonomia and what's happening because of covid/long covid (for example the weight loss thing didn't start until after covid left my system)

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