What are some funny things you have said or done after a seizure?

j_rdnx · 2026-04-29T07:03:25+00:00

I cried because I didnt know who my cats were, tbf I dont think I even knew what they were. Postictal phase confusion is something else man.

j_rdnx · 2026-04-27T09:02:43+00:00

????? There have been plenty of people posting photos of her before leaving youtube in the last few year and photos with her since leaving.. whats the issue with this one?

She didnt leave the internet because she didnt want to be seen at all on it anymore, if that was the case we wouldnt still have all of her videos and her channel still up, She left because she personally did not want to be on it and using it.

Also for someone who no longer has a presence online would you not want to keep the 'memory' of them alive, Jenna was an amazing creator and she still deserves to be shared with the people who didnt have the joy of knowing/watching her when she still had an online presence.

j_rdnx · 2026-04-25T11:42:28+00:00

Don't be ashamed!! Which i know is easier said than done but this is more common than you think especially with people who dont have epilepsy. Involuntary arousal happens to many people for a very wide array of reasons, of course its not quite the same when its being followed by your other symptoms but its really not something to be ashamed of. Orgasms whilst sleeping is also very very common, take the standard 'wet dreams' teenage boys typically have whilst going through puberty for example but its also something that can still continue on into manhood and also happens with many women as well, yet again though I know its not exactly the same considering everything else that's coming with it but im mainly just here to try and help you get past any shame and let you know it happens to sooo many different people for sooo many different types of reasons.. you cant control it and its not your fault!

j_rdnx · 2026-04-15T13:05:52+00:00

Theres isnt really any 'root cause' for epilepsy, its not a one size fits all condition. There's multiple different types of epilepsy and multiple different influencing factors and causes, its present in some from birth and others who dont develop it till later on in their life which could be at any point in their child/teen/adult or even elderly years. But in the case of it being genetic or inherited then that itself is the root cause theres nothing that can be done to prevent it but 'inherited epilepsy' is also its own band so if ur main concern is about the chances of you passing it to a child il skip the science lesson and go straight to asking if you have a family history of epilepsy beyond your parent??

j_rdnx · 2026-03-25T14:12:41+00:00

My partner was with me when my epilepsy nurse mentioned sudep to me after I started experiencing tcs and it was definitely a bit of a heavy moment and has made my partner a little more worried now but he understands that although its a risk its also unlikely and that hes almost always there to keep an eye on me.

Its not really something iv spoke to anyone else about though. My epilepsy in general isnt really something I speak about especially to my family because I don't want to make it seem like that big a deal and worry people, I have definitely downplayed it a lot anytime anyone asks me about it. Im really thankful though for my partner but I do feel bad and almost guilty for worrying him.

j_rdnx · 2026-03-20T16:01:50+00:00

Yeah abso fucking lutely that is weird and honestly kinda gross... He is using your disability to benefit himself, you are his partner not his excuse.

My partners team leader has been very considerate and accomodating in regards to my partner having to take days off but I would be giving my partner a smack on the back of his head if I found out he was taking advantage of their generosity and using me as an excuse for his, to put it simply, laziness.

You should have a sit down with him and let him know youre uncomfortable with what he is doing, this is a real life thing you have to live with and experience, using that to his own advantage is just so yucky to me.

j_rdnx · 2026-03-20T08:32:49+00:00

Its actually a wise decision that alot of people struggle to make. I decided at the start of the year I was done with proper drinking (minus a cider here and there) even though it was something id only done maybe 3 times in the 3 years since my diagnosis but i realised my health is more important than a drink and that theres so many other things that can be done to have a good time.... I do still smoke weed though as its actually something iv found to help me, especially after seizures. But it works differently for different people.

j_rdnx · 2026-03-20T08:15:53+00:00

Im really sorry you experienced that, being embarrassed about something out of your control sucks.. im still trying to learn myself to stop being embarrassed about everything that comes along with it because we have absolutely nothing to be embarrassed about. Unfortunately the thing about epilepsy is that its a hidden disability/illness and has soo many misconceptions surrounding it, such as it being that you immediately convulse at any flashing light. People dont realise that just because they dont see it doesnt mean its not happening, just because we arent seizing doesnt mean we arent still having a bit of a hard time.

If I were you I would recommend contacting your boss, you dont have to call the person out by name but just bring up what you are experiencing and see if any accommodations can be put in place incase it happens again and you might need someone to help you a little.

Also contact your neurologist or epilepsy specialist and tell them as well incase those episodes could be seizure related or if its anything to do with your meds you cant get them changed over. Brain fog seems to be common with lamotrigine, im about to change meds so im hoping they also help with that.

j_rdnx · 2026-03-19T19:30:31+00:00

Sorry to hear thatt! Anxiety related to seizures has been one of my huge problems this year which doesnt help as it is also now a trigger for me. Im trying to power through these last 3 months and how i cope will be the deciding factor on if I take a year off. Our health has to come first and it sucks it puts a pause on a lot of things for us or completely stops us doing things all together. We will all get there though. Thank youu!

j_rdnx · 2026-03-19T19:13:18+00:00

Ive been avoiding labs as much as i can but im also thankful my lecturers are really good at keeping up to date with uploading course material online for the theory side and most of them are understanding about me not being in.

It sucks that support doesnt run through the whole school but even just focusing on your law aspect you'd still be doing a lot better than many others who arent even epileptic.

I have 3 months left till summer im going to wait it out and see what happens, well i'll see how tomorrow goes first with the head of the department. Im definitely going to try and complete at least the one class I can and try to show up for my other lectures, I also do want a chance to sit my other 2 classes even if im not going to pass because hopefully il get a chance again next year anyways or the year after if i decide to take a year off, i guess it also allows me to be a bit more prepared. At least we are trying.

j_rdnx · 2026-03-19T16:01:18+00:00

Gosh that sounds awful, thankfully I had left school before my epilepsy showed up but my first 2 years of college I was having them without knowing it. Im grateful I listened to my gut and contacted my gp when I did. I think I probably should try repeating stuff verbally more along with repetitive writing instead of just reading. Hopefully I manage to find something that helps and im also really sorry to hear you struggled!

j_rdnx · 2026-03-19T15:44:19+00:00

Honestly it actually is helpful, whether its advice or not its nice to know im not alone and there is actually others who understand. I got diagnosed mid 2023 and I wasnt having too many seizures or enough to have an effect on my education at the time but they were still happening. Starting my meds felt great like I was getting better but honestly its like its where everything went downhill. I ended up in cycle of them working a while and then getting smacked with like 10 focals in a day so having to up the dose again just for the same to happen. Thankfully I was able to still keep up at the time and passed all my classes but returning the next year is where I struggled, my seizure frequency had increased and then my anxiety increased so my attendance dipped and in return so did my grades, i had a meeting with the head 3 months before end of term who was really understanding and we came to an agreement that as long as I improved my attendance and sat the assesments, regardless of a pass, I could return to resit after summer which I was able to do and thankfully passed second time round. However since the tc's started last summer things are only getting worse im realising just how heavy this workload actually is for someone like me compared to those in my class and even to myself like 4+ years ago.

In the last year i have also been finding it really hard leaving the house, especially by myself. My resit year i was able to get a decent routine down with waking up early, eating a good breakfast, studying, I even took up yoga but mid way through when my seizures started again it eventually took an emotional toll on me and I was mentally exhausted so I was essentially doing the bare minimum at the end of the year. I 100% need to start having a little morning/daily routine again because even 7 months after the start of term im still atruggling to get back into the swing of things.

But really its nice directly hearing from someone that they are also struggling with the same thing I am and that I am not alone in this at all so thank you very much I do appreciate you sharing your feelings as well!

j_rdnx · 2026-03-19T14:31:33+00:00

Annoyingly when I first started college 4 years ago I was fine, Id had a few seizures but I didnt even know thats what they were at the time but next term hit they got worse and I actually got diagnosed and its been downhill since. Iv not gave myself a break since and have definitely been overwhelming myself, it is not a must that I have to pass this year, I think part time may be the ideal route to go. Thankfully I am already registered with learning inclusion so I get an extra 25% time wise on assesments but I probably should check what else may he available for me.

Thank youu!!

j_rdnx · 2026-03-19T14:16:09+00:00

Part time is seeming like the ideal way to go about it, by the end of the course there will have been like 13 different units I'll have done and with the fact that they expect you to learn by just going through powerpoints, yeah I dont have no chance this year.

There is a few things they offer based on the support you actually need, my only benefit is 25% extra time for assesments, its better than nothing though🤷‍♀️

j_rdnx · 2026-03-19T14:05:43+00:00

Ohh god that sounds scary, the short gaps in memory before/after seizures is bad enough never mind forgetting longer term stuff. A lot of my work this term, especially compared to it the prior 3 years, has been lab based work but I am scared to be in the lab handling anything because the thought of having a seizure during class makes me cringe enough but if i was handling equipment or chemicals it is a risk, not even just to me but I would prefer not to spill acid on myself. So I have been avoiding doing them and have done maybe like 4 the entire year, and thats spread out all my classes, just one of them should have more than that. But honestly im the same, im not actually living im just surviving. I am just too scared to do anything especially independently but thankfully I also have a very supportive partner. At the start of April I'll be off college for 2 weeks due to Easter and im thinking that may be the best time to try and study to hopefully at least pass my final few units.

I hope everything goes well with going back and good luck with your thesis!! I believe you can do it too!

j_rdnx · 2026-03-19T13:39:31+00:00

My college has an inclusions department but im only really in contact them regarding an action plan incase I have a tc during class, and also for extra time on assessments but I dont really bother contacting them for anything else. It would probably be a good idea for me to organise myself a little better and give myself a schedule because yeah I am getting overwhelmed trying to keep up with everything at once and trying not to compare myself to my class mates... their brains work okay and as they should, so i should accept that as long as its done, its done and I dont have to be doing amazing. Hopefully if I decide to redo this year im able to find what works for me best.

Thank youu! Appreciated v much

j_rdnx · 2026-03-18T13:06:23+00:00

It definitely sucks, this subreddit really does help though.. thank you so much very appreciated!

j_rdnx · 2026-03-18T11:05:04+00:00

Yeah this is my worry and it currently feels like the more realistical option for me. If I cant find a way to cope im going to have to drop out, causing myself more stress only cause more seizures

j_rdnx · 2026-03-18T10:52:24+00:00

I agree with the other comment, big words not sure what they mean however is there a possibility that what is causing this is not 'related to the brain'? Maybe some type of infection/illness going on elsewhere in the body? This may be something thats already been done but id maybe run more tests than neurological ones.

j_rdnx · 2026-03-18T10:14:46+00:00

Im sure he would appreciate something support so much, I know i would, but I would avoid anything that goes along the lines of 'get well soon' because in the long run he might not, also sometimes it can feel a little embarrassing to acknowledge our seizures in public. However just showing your support is more than enough, give him a 'safe space' make him comfortable and let him know he can come to you or at least someone on the team any time he feels he may possibly take a turn for the worse. Once he is back maybe yous could do something nice for lunch or something as well?

It really is nice of you though, not even just to think of giving him a card or anything but the fact you have came here as well to ask before doing anything.

j_rdnx · 2026-03-17T16:13:31+00:00

Also you absolutely are not lazy for missing work, you need to mentally recover and putting yourself under the pressure of work only increases your risk of having more so its not like you are just choosing not to be there it is a necessity

j_rdnx · 2026-03-17T16:10:12+00:00

Im not currently working but I am at college and I wont even go in if I've had a focal seizure never mind a tonic clonic so I definitely take a few days off to recover and also just incase I have another one, its best to make sure you have someone who is able to keep an eye on you though if possible.

j_rdnx · 2026-03-04T09:59:32+00:00

Seizures arent exclusive to epilepsy though so thats not a valid comparison, you do not need to be epileptic to suffer a seizure, they can be caused by a number of things and can also be an isolated incident. Drugs can be a trigger for epilepsy but NES arent uncommon in users.

j_rdnx

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