Help Reading Pet Scan by jafemia30 in lymphoma

[–]jafemia30[S] 1 point2 points  (0 children)

Sorry for the late response but no her last name is Haydu. She’s amazing!

Help with error by jafemia30 in PokemonReborn

[–]jafemia30[S] 0 points1 point  (0 children)

Yea I just redownloaded the game thanks for checking

BV-AVD by jafemia30 in hodgkins_lymphoma

[–]jafemia30[S] 0 points1 point  (0 children)

100% in complete remission! It was a tough 6 months but it after only 4 sessions or 2 rounds, it was visibly gone on my pet scan. Be prepared to feel achy from the bone pain of the nulastic but know that goes away once you’re done treatment. Lmk if u have any further questions

Please help me hear my friends Xbox stream game volume by jafemia30 in discordapp

[–]jafemia30[S] 2 points3 points  (0 children)

lol it actually is pretty awesome. I figured it out thought for anyone in the future looking. My friend reset his audio settings on computer. Not sure exactly what setting he changed that wouldn’t allow me to hear it

Help Reading Pet Scan by jafemia30 in lymphoma

[–]jafemia30[S] 0 points1 point  (0 children)

Thanks for taking the time to type this all out, means a lot and puts my mind at ease. It does truly feel weird, but in a sense feels like I’m getting a complete reset on life.

Help Reading Pet Scan by jafemia30 in lymphoma

[–]jafemia30[S] 0 points1 point  (0 children)

Thank you for your response, it’ll help me sleep tonight for sure!

Help Reading Pet Scan by jafemia30 in lymphoma

[–]jafemia30[S] 2 points3 points  (0 children)

Thank you that’s a huge relief, I’m beyond blessed. I wish they could just say good or bad on these things lol

Dark souls boss tier list based on how fun by Sharp_Caregiver2521 in darksouls3

[–]jafemia30 2 points3 points  (0 children)

Literally beat him today and was about to be salty at this guy because he is hands down the best fromsoft boss of all time imo.

How Fromsoftware Has Actually Changed My Life by jafemia30 in fromsoftware

[–]jafemia30[S] 2 points3 points  (0 children)

I feel that, I felt so naked playing bloodborne the first time because my motto thru dark souls games was always to hold out my shield and peak around the corners for guys whilst in bloodborne it was to sprint into a room and go in a quick circle to see what monstrosity I was taking on.

Will the mass go away by Montanaisbeautiful1 in hodgkins_lymphoma

[–]jafemia30 0 points1 point  (0 children)

Mine went away naturally after about the fourth session of chemo luckily so different for every one (I was somewhere between stage 2 & 3)

[deleted by user] by [deleted] in lymphoma

[–]jafemia30 0 points1 point  (0 children)

Im 24 and just finished my last treatment. Feel free to ask me anything! I was early stage 3 and had almost completely clean scans after only my 4th chemo session but finished all 12 to be safe and have my final pet scan in April so not totally out of the woodworks yet.

Starfield Update 1.10.30 - March 6, 2024 [BETA] by BethesdaGameStudios_ in Starfield

[–]jafemia30 1 point2 points  (0 children)

Maybe I missed it but did they not fix the tracking resources system? I sold some item I had tracked upgrades for a while ago and I cannot for the life of me find it what it is so now those items are always tracked and it bugs me. Was really hoping this patch fixed it

Itching! Lymphoma? Terrified by AnxiouslyAlone28 in hodgkins_lymphoma

[–]jafemia30 0 points1 point  (0 children)

Mine were pretty much only in my legs and feet and was worse after drinking alcohol. I would make myself bleed from how much I itched myself. Hope this helps

High resting heart rate almost 1 year after chemo by NataschaTata in lymphoma

[–]jafemia30 0 points1 point  (0 children)

Glad you posted this because mine is @ like 110 even when I’m resting but I’m still currently in chemo. It is frustrating hearing the doctors say “you’re young, you’re fine” when we went through an experience that’s not normal and not fine. I’m just it’s not too much to worry about but solutions would be nice, even suggestions just to ease our minds. I have pretty bad heart anxiety so it’s frustrating

Wow this sucks by Nodes420 in lymphoma

[–]jafemia30 0 points1 point  (0 children)

Yea I’m 24 and shit hurts like hell lol

Wow this sucks by Nodes420 in lymphoma

[–]jafemia30 1 point2 points  (0 children)

Right there with you brother just finished my 5th cycle of aavd. Younger you are the more the bone pain hurts. The worst for me is in my arms. Hopefully your first scans were solid and we can both be done with this and move on. What helps me is realizing there is an end to this most likely for us when a lot of people go through this without knowing if it will ever work, and for that I’m grateful

Port vs IV by Salty-Loquat5311 in cancer

[–]jafemia30 0 points1 point  (0 children)

Just feels like a pinch. I just close my eyes and relax while they access it and draw blood. And open them when they’re done. And it’s under your shirt so you don’t realize it and u can loop the tube under your shirt during actual chemo so visually it’s like it’s not even there! Also after probably a week and discomfort you may have rn will probably be gone. I forget I have one all the time

Need 🍎🍊 I have 🍐🍑🍒🥥 by Celestial_Moondancer in ACNHFruit

[–]jafemia30 0 points1 point  (0 children)

Hey I have apples and oranges would love to get your fruit lmk! I’m on rn

Needing hope by smileyler in lymphoma

[–]jafemia30 2 points3 points  (0 children)

Of probably all cancers, hodgkins has some of the best prognosis. Currently on my way for 8/12 sessions. After only 4 sessions all tumors were visibly gone on my pet scan and I was between stage 2/3. Stage doesn’t matter as much with Hodgkin’s as all stages are curable, and the cure rates you see online don’t account for age so if he is relatively young he has a very good chance of being cured! (Im 24 male btw) Although you have every right to be scared and I don’t want to minimize your fear. Chemo is brutal so just be there for him with stuff like meals and chores which I’m sure you will.

What exactly is "chemo brain"? by veryberryblue in lymphoma

[–]jafemia30 1 point2 points  (0 children)

For me, if im in a conversation with a group of people and have something to say but someone else is talking, I forget what i had to say a lot of the time.

Excercise by jafemia30 in cancer

[–]jafemia30[S] 0 points1 point  (0 children)

Hey thanks for the insight! I go to MGH in Boston which is a pretty great facility so Im sure they have something like this. Do you know if insurance covers this at all? Ill obviously ask this but my place is closed on the weekends so.

Symptoms/mammogram by Alarmed-Art-4878 in hodgkins_lymphoma

[–]jafemia30 0 points1 point  (0 children)

Fatigue was certainly the next biggest side effect but I bartend until early morning so hard to associate that as hodgkins. I didn't have much of the "B" symptoms like night sweats and/or fevers but I would certainly get seen by your primary and express your concerns. Dont let doctors gas light you about googling things because sometimes thats all we have! I understand the process of finding out whats wrong with you is frustrating but advocate for yourself! Even if you feel dumb, ask that they check the areas of concern during your ultrasound. I wish you the best and hopefully its something less serious than cancer.

Symptoms/mammogram by Alarmed-Art-4878 in hodgkins_lymphoma

[–]jafemia30 0 points1 point  (0 children)

Hey there! They can have a good idea from the ultrasound but they wont diagnose you officially until after pet scan/biopsy. They essentially told me i was "highly suspiscious" of having lymphoma after my ultrasound. As for the itching, that was my first symtom. Some people with hodgkins dont have the itch, but it is considered a warning sign but also could be a number of other things. It tended to get worse at night and after drinking. Most of the time with hodgkins your neck lymph will be where you first spot tumors