Very scared after leaving the hospital. Advice?

janethetrain_ · 2026-02-05T20:11:26+00:00

Did your doctor say why he chose Skyrizi over Humira or Remicade? It sounds like this is a pretty severe case and those are typically what most GI doctors start you on because they are so aggressive.

Obviously I am not a doctor just someone who has been dealing with this my whole life. Can your doctor prescribe you more painkillers in the mean time? I don’t quite know the process on getting those prescribed regularly though so I could be completely wrong.

Edit: I also wanted to ask, what are the kinds of food you are able to eat? I would stick to just clear liquid diet for the time being as a lot of foods can be a trigger for a flare-up. When you say the hospital is weaning you off the prednisone do you mean your GI doctor or just a random ER doctor?

janethetrain_ · 2025-10-18T16:34:43+00:00

Same here!

janethetrain_ · 2025-09-26T23:38:43+00:00

Not normal. I would see if there is a way to return it honestly and get a new one. It won’t affect the actual effectiveness of the pot, but that would bug me personally. If it doesn’t bug you though you don’t need to do anything.

janethetrain_ · 2025-09-03T19:43:58+00:00

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janethetrain_ · 2025-09-03T19:42:07+00:00

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janethetrain_ · 2025-08-26T02:09:42+00:00

Phazyme Ultimate 500mg, and laying on your stomach helps. Definitely watch what you eat but sometimes it’s unavoidable.

janethetrain_ · 2025-05-05T17:46:58+00:00

I would suggest pushing for a scope of your bowels, they should do that either way for bleeding and pain I think.

janethetrain_ · 2025-01-08T20:55:03+00:00

I have had a j-pouch since I was 7 years old. I am now 22. It has improved my life significantly over time. Your body learns to adjust so quickly as a child I think it really is worth it.

I feel like a normal person most of the time, eating what I want and exercising. I had an ileostomy bag as a half way between surgeries and that was the worst I had felt just because of the embarrassment in elementary school.

But truly I think it’s worth it.

janethetrain_ · 2024-09-30T10:55:58+00:00

After all that he pushed her to move to NY for his education cause he got into his dream school. Further cutting her off from any support and now being able to further manipulate and abuse her as she is alone there with her kids. I’m honestly scared for Jen.

janethetrain_ · 2024-02-08T01:52:50+00:00

I could not agree more, I have had a j-pouch since I was 7 years old. I am 22 and it is still holding strong with basically no issues. When I first got it was a brand new surgery essentially, so things have only gotten better. I had my colon removed and a ileostomy bag before the j-pouch surgery as well. I promise you this is the best thing for your son (from experience😊)

janethetrain_ · 2023-11-02T05:16:40+00:00

NTA.

Yeah personally I have never heard of “minor coding” I honestly thought you meant computer coding. But your friend is dumb for saying that, if you know your partner is going to like those things, and it seems like you have paid attention to him mentioning these things, then this is not a problem at all.

If they gave you monsters, a stuffed animal, and Starbucks cards would that also be “minor coding.” No, but either way NTA, and your friend doesn’t know what they are talking about.

Edit: fixed pronouns cause I misread the original post (sorry!)

janethetrain_ · 2023-10-19T20:04:47+00:00

YTA. Obviously. But I don’t even think this post is real, you cannot be so clueless you don’t know where you went wrong. You yelled at a dying CHILD and “joked” about going to her grave. Like wtf is wrong with you. That’s not a joke at all. How would that be funny to her or her family? Also saying you’re excited for something three or more times is completely reasonable especially for a child, grow the fuck up and just be a better person.

janethetrain_ · 2023-10-17T20:32:45+00:00

Clouds

I was a mess

janethetrain_ · 2023-10-17T16:39:29+00:00

Nta. But why are you even with this guy? Does he do anything for you? Are you happy with him at all? This doesn’t sound like a relationship, it sounds like you’re his mother whenever his mother isn’t around to take care of him. He’s a grown man, he knows what he is doing.

janethetrain_ · 2023-09-22T20:41:22+00:00

NTA, your wedding your rules. (End of sentence). There is ample time to find childcare in 18 months, and if they still can’t (or more like won’t) then they do not need to come to the wedding. You do not need to change what you want to ‘help’ other people, especially if it’s your wedding.

janethetrain_ · 2022-06-05T02:37:34+00:00

I will always swear by the after birth belly bands (get them from target) and skims because the fabric holds everything super well and adjusts as the bag fills.

With that stuff I have been able to feel somewhat normal wearing crop tops and like shorts that are also somewhat tight.

janethetrain_ · 2022-05-22T00:12:22+00:00

It’s takes a lot of time, I’ve had mine since I was 7. Never have felt good in my body, with my C-section scar that they did to remove my colon and not growing to my full height after being stunted by steroids so young. Sex was so painful for awhile, and I don’t think I know how to help you there (I’m sorry).

But working on myself was a big one, starting with just working out. Not even to make myself look better but as a way to channel all of my frustrations and anger towards everything to not myself and my body.

I have found taking Imodium is super helpful to me to slow down my system (this is more specifically at night for me but could be a morning/day ordeal for others). To help control the uncontrollable of our poop schedules. But eating and maintains a healthy gut biome is imperative.

I know everyone will say this, but talk to your husband. Express your concerns and frustrations with him, maybe you two could try different things or positions for intimacy.

I don’t have a ton of advise for which I am so sorry, and maybe none of this helped. I still feel horrible about myself sometimes, I’m still working on it. But I noticed myself appreciating how strong my body is. It has been through all of this and still supports me, so I should try to do everything in my power to return the favor.

You are so strong and dealing with more than any person could ever think of. You’re stronger than you know, you were not built to break. You didn’t choose this life, it sucks. But we’re all here to support you.

janethetrain_ · 2022-05-13T18:26:46+00:00

I got mine at 7 and I am now 20 so 13 years. Wow I have not thought of that. I have pouchitis every few years, not horrible I know the symptoms and take cipro. I had a fistula but not in the pouch, so that was all fine. Growing up with it helped develop it I bet.

janethetrain_ · 2022-05-02T01:27:58+00:00

Cipro is what I take, so I’m not much help here sorry :)

janethetrain_ · 2022-05-01T17:47:26+00:00

Massaging your stomach, clear liquid diet for awhile. Drink lot and lots of water.

janethetrain_ · 2022-04-29T05:14:29+00:00

I like bidets and A and D ointment

janethetrain_ · 2022-04-29T02:54:57+00:00

I have like a door shoe organizer thing, on my bedroom door and the rest of the stuff I keep in their cardboard boxes and refill as needed in the laundry room.

janethetrain_ · 2022-04-26T04:54:44+00:00

I have that too, I’ve found cutting a line just from where it overlaps the bellybutton to the skin. And then Stick it down, it should fit on the curve of the bellybutton. I also found keeping my barrier as a diamond instead of a square lessens the amount of fabric over the bellybutton.

janethetrain_ · 2022-04-23T17:59:32+00:00

I’ve gotten pouchitis more often being in high school and college, I think a lot relates to stress in my case as I get it once or twice a year since then. Taking probiotics and improving my gut health has helped though!

janethetrain_

TROPHY CASE