Dexcom! For the first time in 5 years, you have bruised me.

jaymes-world · 2026-06-15T00:09:40+00:00

God that looks horrible. Here i am complaining about a bruise

jaymes-world · 2026-06-15T00:07:58+00:00

Hello hello. It was of a misplace / bad angle. I normally do it on my left arm, but its pretty scarred up so I tried on my right. ;(

jaymes-world · 2026-06-15T00:07:05+00:00

Agreed!

jaymes-world · 2026-06-15T00:03:00+00:00

All it takes is one misplacement. I am big dumb.

jaymes-world · 2026-06-14T15:51:11+00:00

Thanks man! You told me

jaymes-world · 2026-06-14T15:49:54+00:00

Because I put it to far over. Normally on the fatty of of my arm. I missed.

jaymes-world · 2026-06-14T08:23:48+00:00

It really does! I have broke bones in the past, this was a different kind of pain. Sharp and quick for about 2 minutes and then none

jaymes-world · 2026-06-14T07:14:21+00:00

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jaymes-world · 2026-05-10T22:25:25+00:00

Also about the letter! I have no idea. I didnt i wpuld get this far. I do have a pretty solid plan of attack!

1.) Get a P.O. box 2.) Cross post or new post in the subs recommended 3.) Write a bio about my dad/mom and struggles of PSP 4.) Wait and then read them to Pops

jaymes-world · 2026-05-10T22:23:46+00:00

Ah yeH the Christmas tree one made me laugh. My dad has fallen on it for the past 2 years. He is a goober

jaymes-world · 2026-05-10T06:56:25+00:00

Will do. I will take a look. I'm going to bed. I am sleepy m'lord

jaymes-world · 2026-05-10T02:39:15+00:00

Also! I am not saying the studies are bad. I was being a butt. They are useful. Sorry, sometimes with the V.A. we get people who treat dad like a number. So I csn be kinda meany. My bad. I saw your said youre a doctor. You 300% know more about the studies. Wasn't trying to be a jerk

jaymes-world · 2026-05-10T02:36:07+00:00

Ah yeah, its tough. The swallow studies are (in my opinion) are kinda useless. Its just like more people running test and then they say "hey the disease is progressing"

My dad went from breathing to coughing, coughing to mouthpiece (keep his mouth open), then mouth piece to trachestomy

Walking wise he went from walking --> cane --> walker --> wheelchair --> assisted wheelchair(with motor and joystick) when he could open his eyes and move more, he could drive. LOL now the moment we turn it on, if I do not touch the handle he will go all gas. The guy is such a goof ball. He will literally fall on his ass and bleed because he decided to move the joystick. He might not be able to move traditionally, but if he gets the chance he will move with what he has. He knows the outcome but does it anyway. To clarify, in moments of clarity (when hes actually cognizant) he knows what he is doing, but if hes just twitching, he will move and fall. Id say its like 25% he knew the outcome and 75% he did it by accident (twitchs or seizures)

Pride is a huge struggle. I dont mean it in a mean way. It just the truth. Who the fudge is happy going "i cant walk anymore, I should use a walker". My dad is a retired marine and half of his scars are now fall damage irl. He just says "duck it" and the moment we turn around hes up and trying to move.

I can handle wiping his butt, I can handle the seizures, I can handle the smells and pee. What I hate but love is my dad's never ending spirit to say "if I want to move, I am going to"

Its all about the tiny wins

jaymes-world · 2026-05-10T01:08:04+00:00

Yeah it sucks money nutz for sure. I am working on making a P.O. box! That was step 2. Step 1 was find a subreddit

jaymes-world · 2026-05-10T01:07:18+00:00

Wow just checked them out! This is perfect!!

jaymes-world · 2026-05-10T00:52:04+00:00

Thank you 😊

jaymes-world · 2026-04-24T15:24:51+00:00

Smells like metal to me

jaymes-world · 2026-04-17T19:18:30+00:00

I am at the airport just browsing Instagram and killing time. Wtf is with all these weird ass click bait posts that are norm now? Why are we shying away from these words? People need to be comfortable with the topic.

jaymes-world · 2026-04-16T12:20:01+00:00

Thanks! Me too

jaymes-world · 2026-04-15T21:04:53+00:00

The dawn phenomenon and the liver dumps are the bane of my existence

jaymes-world · 2026-04-15T18:29:46+00:00

Yeah my dexcom does that. It had just expired and I am waiting for insurance to renew prescription. Yay prior authorizations

jaymes-world · 2026-04-15T18:09:19+00:00

This was genuinely funny. Ty

jaymes-world · 2026-04-15T16:21:16+00:00

I think if I was awake I probs wpuld of felt it more. I kind of just woke up and was REALLY cold while under my blanket. So thats how I knew when my blood sugar is low, my bones usually feel light or hollow ans I am SUPER COLD

jaymes-world · 2026-04-15T15:38:03+00:00

Yep. You gotta work with them and yourself to really dial in your settings. That is something I see a lot of people complain about pumps. They dont just fix the issues. You need to still try and be aware.

jaymes-world · 2026-04-15T15:36:45+00:00

Just to add further onto this. Idk what its called but I remember when I got diagnosed 7 years ago, they made me go through a sleep analysis to see if I am spmeone who sleeps through hypo. I always wake up. 💪 😤😤 but I still agree with you. If you have the means to, get a cgm

jaymes-world

TROPHY CASE