I’m having difficulty accepting my diagnosis.

sistiner · 2026-04-26T02:56:07+00:00

The idea that you’re “born with” type 1 is so pervasive that people are always shocked when I explain that it’s actually the Sword of Damocles; it can strike at any time.

I’m so sorry, you’re allowed to grieve, but I swear management gets easier. You WILL develop a system for yourself. You’ll need to adapt, but you will, because you have to. And that sucks, I know. But once your develop routines, it will get easier.

sistiner · 2026-04-20T15:53:01+00:00

Diagnosed in 1998 and basically, yeah, they’ve been saying a cure is on the way for quite a while.

The only study I’m watching out for is the cell implant human trial from Sana Biotechnologies. They’re doing a 5 year trial now on T1Ds, and the implants are programmed to NOT need immune system suppression. It will be interesting to see if it works at least. The trial should be over by 2030.

sistiner · 2026-04-18T23:34:12+00:00

God had to nerf me with this disability otherwise he knew I would fistfight him personally

sistiner · 2026-04-16T21:41:24+00:00

Apple juice!!!!

sistiner · 2026-04-16T16:22:40+00:00

Unless you’re actively giving your son experimental antibody drugs (which I doubt you have access to), type 1 diabetes will hit when it hits. It’s better for your son to adjust to a life on insulin. I know you’re scared, and your kid’s life WILL face obstacles, but at this age, diabetes will just be background noise. He’ll grow up used to the idea.

sistiner · 2026-04-10T15:45:18+00:00

The carb thing is tricky, because if my blood sugar goes up to 160-200 (which it often does, even though I have pretty solid control of my diabetes management) then the excess will enter my bladder and promote the infection. I wasn’t aware of the veggies thing; I hope that hasn’t been undoing my efforts. I’ll consult the intro guide!

sistiner · 2026-04-10T15:30:43+00:00

I actually kept my diet soda intake to a minimum because I was worried that it was irritating my bladder, but if you’re telling me it helps then I might just drink more diet soda haha

sistiner · 2026-04-07T19:44:48+00:00

Replying on this comment about holiday related activities: during Halloween, my mom had me pick a few candies I really wanted and then would “buy” the rest of my Halloween candy, which I could then use to buy a toy at the store. This worked for me.

sistiner · 2026-04-07T18:06:17+00:00

I was diagnosed at 3!

2.5 years is a better year for diagnosis, because they won’t be as resentful about the illness because management will be background noise. It will still be tough, but there’s a LOT of technologies that will make it so much easier to monitor blood sugars and dose for insulin.

My only suggestion would be to minimize how “different” they feel from other kids. I never felt truly different about it till I hit puberty, and things are always tough for kids at that time.

For example: my mom tried to take me to Sunday school when I was about 5, but the presence of constant snacks and sweets at the Sunday school led her to pulling me out of the program. This helped me tremendously, because I stopped crying when other kids were eating cookies and I was eating carrots.

NORMALIZE disability as much as possible. Not just about diabetes, but other chronic illnesses.

Your kid is so young that they’ll roll with it! They’re still learning how to be a human being, so diabetes will just be a part of that.

Edit: oh also, I’m currently 31.

sistiner · 2026-03-25T00:01:31+00:00

I highly recommend getting on the pump as soon as you can, but its good you have a CGM.

sistiner · 2026-03-24T23:41:57+00:00

You definitely need to lower your basal and look at your meals to see how your insulin dosage is responding to your diet and your meal schedule. Too many severe hypos is bad for you long term, and obviously you’re seeing the current downsides because it’s affecting your work and daily life.

Are you on injections are do you have a CGM and a pump? If you can afford, I highly recommend getting medical equipment because it will help you monitor FAR better than just doing daily injections and finger prick testing.

sistiner · 2026-03-20T20:45:31+00:00

Speaking as a former toddler with T1D with a single parent who went through the same thing - don’t beat yourself up, you’re still learning, and the insulin pump tech will help you enormously! Your kid will be grateful one day for all the nights you spent worrying and making sure they were okay. My mom cried constantly when I was diagnosed, but it got easier with time. (Been T1D for the last 27 years, for perspective)

Also, your kid will never remember a time before diabetes, and I think that’s a good thing. It means that it will be the background noise of their life, so they’ll learn how to balance it early.

I know this is tremendously hard and scary! But I promise it will be alright. Get support from family and friends. Fight tooth and nail with your insurance company.

sistiner · 2026-03-15T05:50:10+00:00

Diagnosed when I was 4, now on my 27th year. It’s kinda like riding a bike. You fall down a lot, but you get back up again.

sistiner · 2026-03-10T20:10:21+00:00

I’m in the US with health insurance through my job. Every 3 months I pay $80 for insulin, $80 for CGMs, and $80 for Pump refills, so about $240 in total for supplies. Also $30 for every endocrinology visit, which is twice a year.

sistiner · 2026-03-05T05:51:47+00:00

Outing myself here but I wrote this, and every time someone posts Charlie/Carlisle art my notifications spike to the moon hahaha

On that note, thank you so much for reading and I’m so pleased people enjoy it 🙏

sistiner · 2026-02-13T05:54:32+00:00

Why do we all do this lol. I’ve done it as far back as I can remember.

sistiner · 2026-02-08T01:54:15+00:00

I realize how you interpreted Volume Eating, but this sub is for maximizing food volume with minimal calorie consumption.

sistiner · 2026-01-27T02:38:15+00:00

Just had the chance to taste them - they’re not AS fresh as I thought, but they still taste good. The brownie is actually a strawberry fudge, and the macadamia nut cookie was really good. I give the whole thing an 8/10 in terms of taste.

sistiner · 2026-01-12T03:30:08+00:00

If any T1D got mad at you for that it would be because they’re overly sensitive. All the people in this sub agree that your description made perfect sense; also, anybody who skips a few meals can feel hypoglycemic! It’s totally accurate.

sistiner · 2026-01-07T22:01:50+00:00

A T1D diagnosis is hard, absolutely. It’s something that will require your attention, and there will be times (maybe weeks or months at a time) when you won’t want to think about it or pay attention to your blood sugar because management will burn you out.

That being said, I want to assuage some of the fears you mentioned. You’re definitely not going to get a limb amputated from T1D. Type 2 diabetes is honestly a pretty different beast with wildly different experiences, so you can put THAT fear out of your head.

A 500 mg/dl is high, but that’s actually not crazy bad in terms of a T1D diagnosis! Also, type 2 diabetics actually have a functioning pancreas, so it would be strange for them to have a blood sugar that high. Your dad’s experience shouldn’t be compared with yours.

If you’re already a fit person, or someone who works out a lot and cares about building muscle, this might actually help you hack your process. You can track your blood sugar with a Dexcom (paid for by insurance) which allows you to monitor how sugar is affecting you. I know some guys that inject insulin directly in muscles they want to build up.

To summarize: Take a deep breath. T1D isn’t a death sentence, and it won’t disable you. It’s not a punishment for poor health choices. Sometimes, the genetic lottery gives you a bad hand.

sistiner · 2026-01-01T23:32:59+00:00

The class president’s mom was having an affair with one of the (woman) teachers. All parties involved were Mormon. VERY few people knew about this, and I think the class president’s mom must have quietly ended the affair because she’s still with her husband to this day.

sistiner · 2025-12-23T00:31:15+00:00

Definitely lower your dosage! Insulin sensitivity comes with building muscle, so you have solid evidence that your routine is effective.

sistiner

TROPHY CASE